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SufferingtheSilence

@ststogether

501(c)(3) nonprofit raising awareness of the lived experience of chronic illness & disability.

 New York, NY
sufferingthesilence.org
Joined July 2015
  • Tweets2.9K
  • Following457
  • Followers1.3K
651Media
Photo by SufferingtheSilence (@ststogether)Photo by SufferingtheSilence (@ststogether)Photo by SufferingtheSilence (@ststogether)Photo by SufferingtheSilence (@ststogether)Photo by SufferingtheSilence (@ststogether)Photo by SufferingtheSilence (@ststogether)Photo by SufferingtheSilence (@ststogether)Photo by SufferingtheSilence (@ststogether)Photo by SufferingtheSilence (@ststogether)Photo by SufferingtheSilence (@ststogether)
Replying to @ststogether
@ststogether "you don't every get a break from being chronically #ill" powerful stories from @soulpancake youtube.com/watch?v=07OizRnp…
Image from Paul Brennan (He/His) (@brennanpcardiff)
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“Most ableist news would lead you to believe that disabled lives are burdens on the economy; our murders, though tragic, are understandable; our existence, disposable, and our deaths merciful.” —me. refinery29.com/en-us/2021/08…
Death by a Thousand Words: COVID-19 and the Pandemic of Ableist Media

Death by a Thousand Words: COVID-19 and the Pandemic of Ableist Media

The COVID pandemic isn't the only threat; the ableist media is another pandemic putting everyone's lives in danger.

refinery29.com
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SufferingtheSilence retweeted
WeThe15 💜 (@WeThe15) profile picture
WeThe15 💜@WeThe1518 Aug 2021
People with disabilities make up 15% of the world’s population. Let’s break down the barriers that keep us apart. #WeThe15

WeThe15

#WeThe15: A global human rights movement for the 1.2 billion persons with disabilities, involving multiple international organisations for a decade-long campaign.

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SufferingtheSilence retweeted
Julie Flygare (@RemRunner) profile picture
Julie Flygare@RemRunner10 Jul 2021
When Hollywood decides to portray a character w/ a disability or serious medical condition, how might partnering w/ patient orgs & pple living w/ condition become standard practice & a win/win for all? @Respect_Ability @ststogether @PeterGSamuelson @ReelAbilitiesLA @Marrzipanna
Julie Flygare (@RemRunner) profile pictureJulie Flygare@RemRunner9 Jul 2021
❓Patient orgs or people w/ #narcolepsy consulted in creating #TheMysteriousBenedictSociety's portrayal of #narcolepsy? I don't think so but it should be standard practice for Hollywood depictions of real-life chronic conditions to consult the community. julieflygare.com/narcolepsy-…
Image from Julie Flygare (@RemRunner)
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SufferingtheSilence retweeted
Sneha Dave (@snehadave98) profile picture
Sneha Dave@snehadave9823 Jun 2021
Speaker Request! We are looking for someone who is chronically ill to talk about navigating #SSI and financial resources in the U.S. Feel free to message me here or below if you can recommend someone! Event page: 2021-virtual.splashthat.com/ #DisabilityTwitter #NEISVoid
2021 International Virtual Summit - Splash

2021 International Virtual Summit - Splash

2021-virtual.splashthat.com
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Let’s Talk is a new documentary that follows 5 members of the #bleedingdisorders community as they explain their personal #mentalhealth journey. The film aims to spark conversation, decrease the stigma around #mentalhealth. Check it out here: bit.ly/LetsTalkMHEvent #LetsTalkMH
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SufferingtheSilence retweeted
Generation Patient (@genpatient) profile picture
Generation Patient@genpatient2 Oct 2020
Check out this incredible documentary series!
SufferingtheSilence (@ststogether) profile pictureSufferingtheSilence@ststogether1 Oct 2020
You can watch Part 3 of #TrustMeImSick on @soulpancake here: m.youtube.com/watch?v=0-mdCE… #chronicillness #spoonies
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SufferingtheSilence retweeted
Generation Patient (@genpatient) profile picture
Generation Patient@genpatient8 Sep 2020
Check it out!
SufferingtheSilence (@ststogether) profile pictureSufferingtheSilence@ststogether8 Sep 2020
Our #chronicillness docuseries is now available on @soulpancake! Watch Part 1 here: m.youtube.com/watch?fbclid=I…
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SufferingtheSilence retweeted
Erica (@ericaloops) profile picture
Erica@ericaloops8 Sep 2020
Watch #TrustMeImSick - Part 1 out NOW on @soulpancake! #chronicillness m.youtube.com/watch?fbclid=I…
SufferingtheSilence (@ststogether) profile pictureSufferingtheSilence@ststogether8 Sep 2020
Our #chronicillness docuseries is now available on @soulpancake! Watch Part 1 here: m.youtube.com/watch?fbclid=I…
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SufferingtheSilence retweeted
Good Days (@MyGoodDays) profile picture
Good Days@MyGoodDays5 Jul 2020
Jim worked hard but never put time aside to take care of himself. He talked to @ststogether about the wake up call that changed his life for the better. Watch his story at ChronicDiseaseDay.org #ChronicDiseaseDay #ChronicDiseaseAwareness #AccessToCare
Image from Good Days (@MyGoodDays)
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SufferingtheSilence retweeted
Good Days (@MyGoodDays) profile picture
Good Days@MyGoodDays6 Jul 2020
Jodi and Doug knew #BreastCancer ran in her family. But what would the results of Jodi's screening reveal about their daughters' future? Thanks to @NBCF and @ststogether for capturing this important story: ChronicDiseaseDay.org #ChronicDiseaseDay #ChronicDiseaseAwareness
Image from Good Days (@MyGoodDays)
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SufferingtheSilence retweeted
Danny's Dose (@dannys_dose) profile picture
Danny's Dose@dannys_dose7 Jul 2020
7 of 10 people suffer with a Chronic Illness! Happy to help support, fight for & bring awareness with a great group of orgs. @MyGoodDays @UCApatients @PSI4Patients @US_HAEA @americanliver @ChronicCapable @ststogether @NationalBCFDN @ChronicRights @gbs/cidp @FSIG @FLAWarriorOrg
Image from Danny's Dose (@dannys_dose)
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SufferingtheSilence retweeted
Public Books (@PublicBooks) profile picture
Public Books@PublicBooks4 May 2020
"It’s not a fucking community if you make it so that a ton of people can’t actually show up." @riceevans on disability exclusion in the academic and literary worlds: @cunyds @cdsNYU @EndInvisibility @ststogether buff.ly/2Yfw9cA
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SufferingtheSilence retweeted
Alanna Wong (@Alanna_Wong) profile picture
Alanna Wong@Alanna_Wong27 Apr 2020
I attended the @ststogether Chronic Illness Retreat in May 2019. One of the exercises we did, was to write a letter to our illness and then write a letter back to ourselves from our illness. This was a very cathartic… instagram.com/p/B_f7kQwjSat/…
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SufferingtheSilence retweeted
Gregg Zwilling MD (@GreggZwilling1) profile picture
Gregg Zwilling MD@GreggZwilling111 Mar 2020
My hat is off to to Aerie, they recognized an untapped need & designed a fashion to address it! Bravo! 👍
SufferingtheSilence (@ststogether) profile pictureSufferingtheSilence@ststogether10 Jul 2018
Check out this wonderful campaign by @aerie & @AEO featuring women with illness and disability. We hope that other brands will follow suit and make their campaigns more inclusive and representative of the world we live in.
Image from SufferingtheSilence (@ststogether)
Image from SufferingtheSilence (@ststogether)
Image from SufferingtheSilence (@ststogether)
Image from SufferingtheSilence (@ststogether)
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Posted withregram • @ststogether “It is not overreacting to ask for what you want and need.” 📸: @gracedchin instagram.com/p/B9YGQv0nFSr/…
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me gazing adoringly at Cosmo while he considers which angle captures his true essence at the photo shoot
Image from porochista khakpour she/her پوروچیستا خاکپور (@PKhakpour)
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Love this project! So relatable
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SufferingtheSilence retweeted
Erica (@ericaloops) profile picture
Erica@ericaloops5 Feb 2020
Thank you Hampshire 😊 #TrustMeImSick @ststogether
Hampshire College (@hampshirecolg) profile pictureHampshire College@hampshirecolg4 Feb 2020
New documentary series co-created with #HampshireCollege alum Erica Lupinacci links the lives of people living with chronic illness: ow.ly/6TQB50ybVSd via @TheBodyDotCom #HampshireChangemakers
Image from Hampshire College (@hampshirecolg)
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SufferingtheSilence retweeted
MedTruth (@medtruth_) profile picture
MedTruth@medtruth_1 Feb 2020
“People living with chronic illness deserve to have their stories seen and heard." medtruth.com/articles/health…
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