501(c)(3) nonprofit raising awareness of the lived experience of chronic illness & disability.
New York, NY
Joined July 2015
- Tweets2.9K
- Following457
- Followers1.3K
- Likes3.4K
Thank you so much, Alana 💓
You’re unable to view this Post because this account owner limits who can view their Posts. Learn more
We are so proud to share your amazing work!
You’re unable to view this Post because this account owner limits who can view their Posts. Learn more
SufferingtheSilence retweeted
@ststogether "you don't every get a break from being chronically #ill" powerful stories from @soulpancake
youtube.com/watch?v=07OizRnp…
SufferingtheSilence retweeted
“Most ableist news would lead you to believe that disabled lives are burdens on the economy; our murders, though tragic, are understandable; our existence, disposable, and our deaths merciful.”
—me. refinery29.com/en-us/2021/08…
Join us on Mon, Aug 30 at 6PM on Zoom for a discussion about Madison Thorn's COVID-19 photography series, High Risk Humans. Register for free: bit.ly/2VJaQRM
"As Paralympians, we train as hard as our counterparts, the Olympians. We deserve the same quality and safety nets that our able-bodied teammates will receive in just a few days’ time." - @becca_meyers
usatoday.com/story/opinion/v…
The @HA_Summit is led by young adults with #chronicconditions who focus on empowering the next generation of patients. Join us August 7-8 to be part of the second International Virtual Summit! Register for free here: 2021-virtual.splashthat.com/
We are so proud to announce the recipients of our We’re Still Here grants! We cannot wait to work with this incredible group of artists & writers and so look forward to sharing their work with you in the fall. sufferingthesilence.com/were…
SufferingtheSilence retweeted
When Hollywood decides to portray a character w/ a disability or serious medical condition, how might partnering w/ patient orgs & pple living w/ condition become standard practice & a win/win for all? @Respect_Ability @ststogether @PeterGSamuelson @ReelAbilitiesLA @Marrzipanna
❓Patient orgs or people w/ #narcolepsy consulted in creating #TheMysteriousBenedictSociety's portrayal of #narcolepsy? I don't think so but it should be standard practice for Hollywood depictions of real-life chronic conditions to consult the community. julieflygare.com/narcolepsy-…
We are so excited to be an outreach partner for the @HA_Summit International Virtual Summit for young adults with chronic & rare conditions. On August 7-8, participants can hear from incredible speakers such as @SelmaBlair! Register for free here: 2021-virtual.splashthat.com/
"There are around 1.3 million active adult guardianship or conservatorship cases nationwide, with at least $50 billion in assets involved, according to the Justice Department." vice.com/en/article/jg8d8y/b…
SufferingtheSilence retweeted
Speaker Request!
We are looking for someone who is chronically ill to talk about navigating #SSI and financial resources in the U.S.
Feel free to message me here or below if you can recommend someone!
Event page: 2021-virtual.splashthat.com/
#DisabilityTwitter #NEISVoid
“It’s important that people see and affirm me as a Black disabled woman, because I have to move about in the world as such. By not recognizing those things, people are either isolating me or putting me in danger."- @Imani_Barbarin vice.com/en/article/m7e7mp/t…
Join us for a guided art workshop with @inclusiveartsvt on Monday, March 15 from 5-6 PM EST on Zoom. The workshop will focus on the role of community in the midst of the isolation of the pandemic. Spots are limited so sign up here: forms.gle/FhpnjAv6FtQpVZxx6
Read this thread ⬇️
You’re unable to view this Post because this account owner limits who can view their Posts. Learn more
Listen to @alliecashel on No End In Sight podcast by @bennessb!
Latest ep of No End In Sight podcast by @bennessb about life w/ chronic illness:
Interview w/ @alliecashel, co-founder of @ststogether on lyme disease, medical gaslighting, and the power of storytelling
noendinsight.co/2020/10/04/e…
#NEISVoid #LymeDisease
Questions about your rights as a chronically ill/disabled voter or how to get involved over the next 2 weeks? Civil rights activist, community organizer, accessibility consultant (& more!) @SeeMiaRoll will be answering your questions, tweet or DM us with yours #CripTheVote