@RemRunner

President & CEO @Project_Sleep, Author of Wide Awake & Dreaming: A Memoir of #Narcolepsy, #MedX Scholar, #TEDx Speaker, @BrownUniversity @BCLaw Alum.

 Los Angeles, CA
julieflygare.com
Joined January 2010
  • Tweets12.6K
  • Following5.1K
  • Followers5.8K
1.6KMedia
Let’s talk “energy economics” when living w/ a chronic health condition. ☀️ I’m honored to speak at the Autoimmune Association (@AutoimmuneAssoc)’s FREE virtual Autoimmune Community Summit on Thursday, Oct. 15th! 👩🏻‍💻It’s free! It’s virtual! Register: autoimmune.vfairs.com/
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I told The Guardian about my stalker. Sleepiness. Waiting outside my house every day while I try to get ONE more thing done before it breaks in. TY @guardian @guardianscience for making space for what living w/ #narcolepsy really feels like: theguardian.com/science/vide…
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Huge thanks to @AlJean for being one of the kindest humans and giving me HOPE that Hollywood can listen, learn, and craft creative portrayals of #narcolepsy. It means so much to have your voice included in this story. 💛 #WorldNarcolepsyDay cnn.com/2026/09/22/health/na…

Narcolepsy isn’t a punchline. Why does Hollywood keep treating it like one? | CNN

Hollywood’s narcolepsy jokes can shame patients, spread misconceptions and discourage treatment, according to a new analysis.

cnn.com
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9月22日は世界ナルコレプシーの日。 World Narcolepsy Day 過眠症に対する社会的理解がもっと進みますように。 今年も動画を制作しました。 youtu.be/zeVNNRLwXvQ?si=SIIM… #世界ナルコレプシーの日 #WND2026

世界ナルコレプシーの日 World Narcolepsy Day 2026

9月22日は世界ナルコレプシーの日（WND）です。日本ナルコレプシー協会では今回、2026年7月23日、24日に横浜で開催された睡...

youtube.com
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ちなみにラスカー賞の柳沢先生から睡眠科学の未来に関するプレゼンで感謝されたのは私です😂 2019年から7年先の未来で世界初のオレキシン作動薬
Julie Flygare@RemRunner24 Sep 2019
.@Tatsu_Fujimoto thanked by Dr. Yanagisawa in his presentation on the future if sleep science! #worldsleep2019
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Today in 🤯 science: A team led by @Sergiu_P_Pasca engineered mice to be missing a large swath of their brains. Next, they transplanted human brain organoids, which grew and filled in the void. They're still mice, but with a human-dominated cortex. nytimes.com/2026/09/16/scien…

These Mice Have Partly Human Brains

The animals may help reveal the causes of brain disease in people and point the way to treatments. But researchers already are calling for new ethical guidelines.

nytimes.com
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It's truly such an incredible scientific story and you captured is beautifully! Thank you @Carolynyjohnson @nytimes !!
carolyn johnson@CarolynyjohnsonSep 9
Replying to @Carolynyjohnson
An alluring scientific idea from the late 1990s came to fruition - showing how basic research can yield fundamental insights into something as fundamental as the neurobiology of sleep. This work just won the Lasker, a big-deal science prize: nytimes.com/2026/09/09/scien…

How Sleepy Dogs and Collapsing Mice Taught Scientists About Narcolepsy

Two researchers who study the debilitating sleep disorder have won a prestigious Lasker Award. Their research in animals laid the groundwork for a new drug that addresses the condition’s root cause.

nytimes.com
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I'm not crying, promise!!! 🥹 Thank you so much for sharing this amazing full circle story, it's so special to me too.
carolyn johnson@CarolynyjohnsonSep 9
Replying to @Carolynyjohnson
I got to catch up with Julie after 17 (?!) years last week, and learn how that diagnosis inflected her whole life. I met her at what was probably somewhat of a low point, trying to sort her way forward - and to reconnect now was really special.
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Julie Flygare retweeted
carolyn johnson@CarolynyjohnsonSep 9
Fast-forward to today - after a lot of time, advocacy, failure, chemistry - there's now a first narcolepsy drug that mimics the missing ingredient in narcolepsy, orexin, and many following behind. 🎁 link: nytimes.com/2026/09/09/scien…

A New Drug Lifts the Fog of Sleepiness for Those With Narcolepsy (Gift Article)

The first-of-its-kind drug offers a reprieve for people who live with the debilitating sleep disorder.

nytimes.com
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Julie Flygare retweeted
carolyn johnson@CarolynyjohnsonSep 9
A reflection on getting older: When I was starting out in journalism, I met @RemRunner. She was super self-possessed, high-achieving - and she had only recently been diagnosed with narcolepsy. I wrote a story about the idea (then kinda fanciful) of creating a targeted drug.
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Julie Flygare retweeted
Project Sleep@project_sleepAug 6
Huge news! @US_FDA approved #Takeda's ORZEYFUL (oveporexton) today, making it the first #orexin agonist approved for adults living w/ #narcolepsy type 1 in the US. The approval marks a significant advancement in neuroscience and #sleep medicine project-sleep.com/orzeyful-f…
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This is such an exciting time for #narcolepsy, w/ #orexin agonists moving through clinical trials, yet KEY aspects of narcolepsy research remain underdeveloped and ready for students, #sleep specialists or social scientists to join us. 2026 wishlist: linkedin.com/pulse/narcoleps…
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✨BEYOND honored that "Wide Awake and Dreaming: A Memoir of #Narcolepsy" is Stanford SASI's Summer 2026 Book Club pick! San Fran friends, join for this special event next Thurs. 7/2 at Stanford Medical School from 5-7pm PT: evite.me/Y8f5mmcg5n
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Julie Flygare retweeted
Project Sleep@project_sleepApr 27
🎸 Wow, JACK BLACK @jackblack is rocking #sleepapnea awareness by joining our #SleepApneaLetsFaceIt campaign today! Thank you, Jack Black for elevating our efforts to new heights! Learn more and join us in flipping the script on sleep apnea stigma: project-sleep.com/sleep-apne…
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Julie Flygare retweeted
Matthew Horsnell@matthorsnellApr 21
Replying to @RemRunner
Ooof. It’s like they mated hypersomnia and narcolepsy to make a Hollywood stigma baby.
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👀Hyper narcolepsy’ isn’t real. But narcolepsy is—and it’s far more complex than TV usually explains. 🎬 So when The Pitt, known for medical accuracy, drops a line like this, it’s odd. 💡An accurate portrayal of a doctor or patient with #narcolepsy would be innovative.
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Did you know there’s a Sleep Helpline to help people navigate sleep issues and #sleep disorders? Thank you Spectrum News for covering my journey and why I wish @project_sleep had existed when I was diagnosed with #narcolepsy many moons ago. spectrumnews1.com/ca/souther…

LA-based Project Sleep works to 'make sleep cool'

March is Sleep Awareness Month

spectrumnews1.com
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Julie Flygare retweeted
Axios
@axiosMar 14
WATCH: Day 2 of #AxiosHouse at SXSW is live! Tune in to hear conversations looking at the role of media in shaping society's approach to health and wellness. xitter.cf/i/broadcasts/1MKgNgbBD…
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Can inaccurate TV portrayals actually delay diagnosis? Our community’s story just hit national news. @FastCompany published a major piece on @NBC's portrayal of #narcolepsy in #Stumble: fastcompany.com/91446176/stu…

NBC’s 'Stumble': Why does Hollywood insist on treating narcolepsy as a punch line?

The network's new comedy series features an exaggerated depiction of the neurological condition for laughs. Experts say that could delay real diagnoses.

fastcompany.com
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Can we reach 2000 signers? With 1 in 2,000 people living with narcolepsy, it would be SO meaningful, especially since the majority of people living with narcolepsy are UNDIAGNOSED so unaware of what they are up against. c.org/P64B9D55H6

Sign the Petition

Urge NBC to ensure accurate portrayal of narcolepsy in Stumble

change.org
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