John Strouse retweeted
Our latest rdcu.be/ciK5r, led by fantastic Divya Vinjamur, is out in Nature Genetics: We found a new HbF regulator (ZNF410) with wide therapeutic index and unique molecular mechanism. Bauerlab is recruiting new members bit.ly/3uXIpeP! 1/7
John Strouse retweeted
Sickle Cell Matters - Hope T-Shirt naz.art/products/sickle-cell…
John Strouse retweeted
The family that gets the #CovidVaccine together, stays together! @HopkinsMedicine #sicklecell primary care expert Dr. Stewart is "feeling great" after getting vaccinated alongside her husband, Dr. Stewart. #ThisIsOurShot #sickledocswalkthewalk @SCDAAorg @mscdaorg @hopkins_ent
John Strouse retweeted
The SECURE-SCD registry has been updated w/new cases of COVID-19 in patients w/sickle cell disease. Covidsicklecell.org
Providers all over the world can register their patients&help us understand the impact of COVID-19 on patients w/SCD. @CDCgov @ASH_hematology @SCDAAorg
John Strouse retweeted
Does Hydroxycarbamide (aka Hydroxyurea or HU) Exposure Decrease Cognitive Impairment Risk in Patients with Sickle Cell Disease? A study observed an association between HU and improved neurocognitive outcomes in adolescents with #SickleCell docwirenews.com/abstracts/hy…
John Strouse retweeted
We need more federal and foundation $$$ for sickle cell disease #SCD #equity jamanetwork.com/journals/jam…
I just bought some custom stickers from @stickermule. Check them out: stickermule.com/artworks/460…
John Strouse retweeted
🚨 @molinahealth
Denied my #SickleCell patient “combination therapy”. She’s spent 20 days out of the last 60 in the hospital with pain.
I’m thrilled to do a peer to peer. My other patients can wait, I guess.
Maybe this time I’ll invoice you for teaching your employee.
We need to assure access to high quality care and new medications
"In the past five years, there has been very encouraging news on the #sicklecell disease drug development front. Now, there are a number of promising new therapies on the market, including hydroxyurea." #ConquerSCD buff.ly/3c3tCXE
Excited to hear this and hope Dr. Rana is still leading the peds sickle cell program at Howard
Howard University receives grant to help support D.C. area children with sickle cell thegrio.com/2020/02/18/howar… via @theGrio @HowardUniv
Planning to close this account and tweet about SCD @dukesickle please folllow that account #scd #SickleCell
Great to see!
Anyone else hooked on @Nazaire73 gear? #SickleCell awareness all day everyday...
John Strouse retweeted
#PainNotAgain
Have you shared your story yet? With the February 20 deadline looming, we’ve outlined important parts of your story that ICER is missing. #ShareYourSickleCellStory at sickcells.org/shareyourstory
#ICERSickleCell #SCD
@icer_review @SCWarriorTweets
@ConquerSCD @WHO
John Strouse retweeted
Thank you Admiral Giroir for you commitment to advance #SickleCell programs! Together we can #ConquerSCD globally and reduced underage 5 mortality from SCD.
John Strouse retweeted
Today, @ASH_hematology released new clinical practice guidelines on #SickleCell Disease-Related Transfusion Support in @BloodAdvances. This is the second of a series of five guidelines ASH is developing on #SCD buff.ly/2U2tVeO #ASHGuidelines #ConquerSCD
Leprosy still impacts many people in areas with sickle cell disease-especially in Brazil, India, and part of Africa
Les maladies tropicales négligées défigurent les personnes et les rendent moins productives. Cela signifie souvent faire face à la stigmatisation, la discrimination et l'exclusion sociale, qui pèsent lourdement sur la santé mentale. #BeatNTDs #WorldLeprosyDay2020 @mwelentuli
























