We’re proud to share ASH RC’s first-ever Community Voices Shaping Sickle Cell Disease Research report, created with the community and for the community. Read the report: ow.ly/Sky950ZSOXv #SickleCell

The 2026 Data Hub Living with Sickle Cell Disease Report is here! Drawing on 2025 data from 12,164 individuals living with SCD at 20 hospitals across 12 states, the report explores SCD complications, preventive care, hospital use, mental health, and more. ow.ly/YvJz50ZO1US

Officer updates from ASH RC: Dr. Schiller serves as Chair; Dr. Silverstein as Secretary-Treasurer; Dr. Evens continues as Vice Chair. Dr. Crowther transitions from Chair to Director, continuing to support ASH RC’s mission. ow.ly/u9w350YQMMP #Hematology

New in Blood Advances: the ASH Research Collaborative SCD Research Network is accelerating sickle cell disease research through real-world data and community partnerships. Read now: ow.ly/4b1Q50YJ2Py #SCD #Research @Bloodjournal

Exciting leadership update from the ASH Research Collaborative (ASH RC)! The ASH RC Board of Directors welcomes three new directors: Margaret Anderson, MA; Adama Ibrahim, EMBA; and DB Kartik, MBA, CFA. Learn more: ow.ly/pZRf50YCV9J

From idea to results: what exactly happens during a clinical study? Our new ASH RC video, shaped by NCAB member input, describes each stage of the clinical trial lifecycle in clear, accessible language. ow.ly/1ZHf50XwT1O #SickleCell #ClinicalResearch #ConquerSCD

Every clinical trial has rigorous checks and balances to keep participants safe, but what does that look like? Learn safeguards and processes that protect individuals throughout SCD research: ow.ly/kNSE50XwRZC #SickleCell #ClinicalTrials #ResearchSafety #ConquerSCD

From EHR-based #SickleCell phenotyping to real world voxelotor outcomes, today’s #ASH25 abstracts from the ASH Research Collaborative offer fresh insights into improving care of patients. Explore the studies: ow.ly/w8SH50XBVIn #Hematology

This evening at #ASH25, the ASH Research Collaborative highlights tech driven research and community engagement, from AI kidney disease prediction to clinical trial literacy. Check them out from 6 PM to 8 PM! ow.ly/KAJb50XBToH #AI #Hematology #MMsm #ClinicalTrials

Don’t miss the ASH Research Collaborative’s special interest session at #ASH25, spotlighting how real-world data is being applied in multiple myeloma to support regulatory work. ow.ly/5M7M50XBVpn #MMsm #Hematology

ASH RC is improving research to build a brighter future for people with hematologic conditions. Don't miss more #ASH25 abstract presentations today! #ConquerSCD #SickleCell #MMsm #Hematology

Join the ASH RC for a special interest session on real-world data in sickle cell disease. Learn how targeted cohort studies reveal new trends, inform care strategies, and drive innovative research approaches. ow.ly/y8OE50XExvb #ConquerSCD #SickleCell #Hematology #ASH25

Which #ASH25 abstract presentations are you most excited to see today? The ASH RC is sharing new real-world data on myeloma, kidney health, & sickle cell disease. Discover what's shaping the field! ow.ly/AoJN50XExuS #ConquerSCD #SickleCell #MMsm #Hematology #Thrombosis

#ASH25 is here and 10 accepted abstracts from the ASH RC will be presented! The research highlights kidney health in #SickleCell disease, treatment outcomes and high-risk disease in multiple myeloma, and more. ow.ly/S0US50XBuUO #ConquerSCD #MMsm

How does #SickleCell disease (SCD) research help to reduce bias in care and treatment? This new ASH RC video, developed in partnership with NCAB members, highlights how inclusive, community-driven research can build trust and improve outcomes. 🎥 ow.ly/YHgv50XAVcN

New videos just dropped on the ASH RC Clinical Trials E-Library! Our NCAB working group helped bring these resources to life, from scripting to character development, to make SCD research easier to understand and more accessible to all. Watch now: ashresearchcollaborative.org…

Joining a clinical trial is your decision. You can choose to participate or not, and you can change your mind at any time — your rights and privacy are always protected. Learn more from the clinical trials resource: ow.ly/rqSe50X3Lts #Research #Hematology #HemeOnc

How can #RealWorldEvidence drive innovation in #SickleCell Disease? A new @BloodPortfolio manuscript details the evolving role of the ASH RC Data Hub as a strategic registry network—backed by curation & QC processes. 🔍 Explore the data: ow.ly/b6Yp50Xb9gA #RWE

Curious about how your data is protected in clinical trials? Learn what safeguards are in place, from de-identifying information to ethical oversight, so you can participate in research with confidence. Visit the clinical trials resource library today: ow.ly/a6sH50X3KrP

Clinical trials help researchers test new ways to diagnose and treat SCD, and your participation may give you access to innovative therapies not yet available to the public. Learn more: ow.ly/ewmj50X3JQT #ClinicalTrials #Hematology #NationalSickleCellAwareness Month