John MacArtney retweeted
📣New #NESBereavementPodcast out now.
@katewoodybath and @johnmacartney discuss the sociological perspectives of death, dying & bereavement and consider the phrase ‘loved ones’ - is it an appropriate catch-all or a problematic phrase?
Listen: spoti.fi/4b2qTwm
John MacArtney retweeted
How can social science and humanities help us “to know dying”?
This week, Marie Curie, the @LindAlliance and partners, including cofunders the @ESRC and @MND Association launched a refreshed list of priorities for palliative and end of life care research.
Researchers at the @OpenUniversity @openthanatology, @uniofwarwick and @UCLPsychiatry /Marie Curie took on the task of bringing together researchers from diverse disciplines to identify five research areas for social sciences and humanities, based on the questions generated through the priority setting process.
These research areas were:
Experience, practice and education
Awareness, communication and planning
Power, ethics and transitions
Time, space and care
Diversity, equity and society
Each of these areas is explored and expanded upon in the To Know Dying report. The report outlines how a range of disciplinary approaches, including social sciences and humanities, are required to address the complex, multifaceted issues in palliative and end of life care.
John MacArtney retweeted
I am giving a talk on three key moments in the UK disability rights movement for #DisabilityHistoryMonth at @unibirmingham
Wed 11th Dec, 12-1pm, hybrid (with online captions), free, and open to all!
birmingham.ac.uk/events/disa…
#DisabilityTwitter @CoSS_Birmingham @artsatbham
John MacArtney retweeted
We are looking for a 0.5FTE permanent Senior Research Governance Manager to manage and oversee research governance for research carried out in @MarieCurieEOLC services and linking in with others in the sector. Please disseminate to your networks. bit.ly/3MZRPBE
John MacArtney retweeted
We only went and won it!!!!!!!!!! 💛🥳💛
#NTAwards #ReserachNurses @NursingTimes @NIHRresearch
@MarieCurieEOLC @mariecurieuk @KPatynowska @hilarynailon @rachelperry72 @DrEmmaCarduff @katemaitland
John MacArtney retweeted
CVFs "wishlist"
None of this is happening currently, although patients sometimes ask for staff to mask
*See a mask, wear a mask*
would be much simpler than self-advocacy.
16/
John MacArtney retweeted
There is no testing in healthcare.
This is a problem for Clinically Vulnerable people who are "high users of healthcare".
CVF advocates for #MasksInHealthcare.
15/
John MacArtney retweeted
Current guidance for immune suppressed people is to:
↔️Ask visitors to keep their distance.
📥Take a lateral flow test
😷Ask them to wear a face covering
😷You may want to wear a face covering yourself
Cathy flags the juxtaposition of this advice with risks in healthcare.
14/
John MacArtney retweeted
Yet not all of CVFs members have the ability to delay or cancel appointments due to their serious health conditions.
Or they can delay some things to avoid Covid peaks, but not others.
13/

ALT (Q47) Quote from CVF Member "I feel healthcare is no longer safe, now that masking has been removed, I find every visit stressful. I spend a week before and after feeling very anxious and worried. I can't cancel appointments, I need my treatments, I still need facial surgery for my skin cancer, but I have delayed having a minor surgery to have my port removed. It seemed safer in 2020 because everyone as masked, there were more virtual appointments available, and the hospitals were much quieter." Juliet, aged 59
John MacArtney retweeted
Removing mitigations from healthcare settings has a disproportionate impact on those who carry the greatest risk, although all within healthcare will have higher risks as they are generally a more vulnerable population.
12/
John MacArtney retweeted
The removal of masks in healthcare has has a direct impact on the health of Clinically Vulnerable people who have increasingly had to delay or cancel their appointments due to high Covid risks.
11/
John MacArtney retweeted
#MasksInHealthcare
CVF members who wore good quality (FFP2/ FFP3) masks were told to remove them by staff who may have been poorly informed.
10/
John MacArtney retweeted
Listen to Karen Wyatt from the End of Life University podcast interview @MTKrawczyk_42 about our online End of Life Studies education programme @UofGSocSci @UofGDumfries @spiritualmd
eolupodcast.com/2024/10/07/e…
John MacArtney retweeted
Q - Why did you have a mask on before the show?
A - I have a duty of care not to spread disease to the vulnerable people I care for. I also want to protect myself, being in the highest risk group for #LongCovid. Dawn Bowdish Immunologist
John MacArtney retweeted
🚨New paper!🚨
tl;dr Hospice staff are uncertain how a “living with covid” approach helps promote quality of life left, but find it difficult to address as covid mitigations are strongly associated with negative emotions of the emergency period.
journals.sagepub.com/doi/10.…
1/🧵
John MacArtney retweeted
Men's Shed toolkit | Marie Curie mariecurie.org.uk/research/m… via @mariecurieuk A report on the vital role of Men’s Sheds in hospices. An essential part of hospice care! 🛠️❤️ #REACH #MensSheds #HospiceCare @johnmacartney
John MacArtney retweeted
Discount code now available for our new book Crtical Approaches to Death, Dying and Bereavement. Get 20% off via publisher's website routledge.com/Critical-Appro…
(code SWS39 or AFLY03)
John MacArtney retweeted
Delighted that our commentary piece has just been published in Midwifery journal
sciencedirect.com/science/ar…



















