Novice Rapper, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him

Northumberland, UK
Joined October 2011
Dax Ponder (Dan Moore) retweeted
When the BPS cabal continue their attacks on #pwME & #LongCovid & our allies & on the scientific evidence, it's worth remembering this, "The best resistance to misinformation disinformation bullying & trolling is *the truth* " - Fergal Keane
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Dax Ponder (Dan Moore) retweeted
Published in time for #MEAwarenessWeek There are too few books that we are able to share with people to explain how it is for #pwME Here is one. Available from all good bookshops and Amazon.
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Dax Ponder (Dan Moore) retweeted
There is absolutely zero chance Sunderland beat us tomorrow mind. ZERO. It simply won’t happen.
Readers added context they thought people might want to know
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Dax Ponder (Dan Moore) retweeted
ME is sharing 3 posts a day for 5 years on social media about ME and your friend going “What’s ME?” when they meet you.
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Dax Ponder (Dan Moore) retweeted
About a month ago, I made a FOIA request to the NHS England Learning Hub about their new learning modules on ME/CFS... 🧵 1/n
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Dax Ponder (Dan Moore) retweeted
Hundreds of thousands of #pwME & #LC have been forced to live at the very edge of their suffering, their pain & their courage because a few powerful people chose to abandon their professional responsibilities, their morals & their humanity. #ME #BPSCabal #MedEd #MEAwareness
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Dax Ponder (Dan Moore) retweeted
Queen Elizabeth Hospital is still starving severe ME patient Savannah. A psychiatrist came on Thursday and asked her why she hadn't got out of bed. A BPS clinician is likely why. Savannah is calling on the community for help once again 👇#MEcfs #pwME thecanary.co/uk/analysis/202…
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Dax Ponder (Dan Moore) retweeted
Every #pwME is at risk of the same thing happening to them until there's a drastic change in @NHSuk #ME policy & until the governments are willing to implement this it will keep on happening @AshleyDalton_MP If Savannah isn't safe no #pwME is safe while under @NHSuk 'care'
🚨 An NHS hospital is starving a severe ME patient and has now stopped giving her fluids Savannah has lived with severe ME for several years - but the Queen Elizabeth Hospital in South London is putting her life at risk. @h_sharland has her story #MEcfs thecanary.co/uk/analysis/202…
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Dax Ponder (Dan Moore) retweeted
I just saw this on Facebook. I'm fucking gutted right now. Gutted Megs please tell me this isn't true
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Dax Ponder (Dan Moore) retweeted
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Dax Ponder (Dan Moore) retweeted
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Dax Ponder (Dan Moore) retweeted
We have been asked to share this fundraiser for Rich, a #pwME and three other rare and serious conditions who is in need of help funding treatment. Please see details below! Fundraiser sharing policy: docs.google.com/document/d/1… #MyalgicEncephalomyelitis #MECFS
Another day of trying to exist with extreme neurological symptoms and the relentless stress of having to fight for proper care while seriously ill—something that should be a basic human right. I’m also contacting journalists to expose a devastating medical scandal unfolding in silence. I am fighting ferociously for the right not to be abandoned to deteriorate at home, without access to healthcare, simply because I live in a country that cannot diagnose my complex neurological condition. Beyond the lack of knowledge about complex conditions lies something far worse—the shocking indifference of doctors toward the fate of their own patient, the very person whose health they are entrusted to protect. It is incomprehensible. Another evening spent in the dark, with unbearable pressure and stabbing pain in my head, trying to force down enough food to protect my liver from the rat poison that is the blood thinner warfarin—the drug keeping me alive by preventing lethal clots, while simultaneously worsening the brain bleeds driving my diagnosis of Infratentorial Superficial Siderosis. The iron from the bleeding is damaging my cranial nerves, causing permanent brain damage, relentless loud tinnitus, severe sensitivity to light and sound and neuroinflammation that affects my entire body. I'm isolated from all forms of distraction and quality of life. There is TREATMENT. I could be on my feet and have my life back—if I didn’t live in #Sweden. Please, help me reach it. gofund.me/506bd49f7
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Dax Ponder (Dan Moore) retweeted
In between stimulus and response, there is space. Maturity involves learning to better navigate that space.
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Dax Ponder (Dan Moore) retweeted
Dear friends at @LiegendDemo Entschuldigen, kann ich nicht alles auf Deutsch schreiben. Bitte, would you consider sharing @windscattered's story & Go Fund Me? I remember that some football supporters/clubs in Germany have shown great support for #pwME 🫶 Vielen dank! 💙
Win a brand new Swedish football shirt and help save a life! Share this tweet, donate any amount to the go fund me for @windscattered to go to Germany for life saving treatment and tag me to say you've done it and we'll draw a name from a hat. @MichaelBowers15 #safc @HalmstadsBK
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Dax Ponder (Dan Moore) retweeted
Another day of trying to exist with extreme neurological symptoms and the relentless stress of having to fight for proper care while seriously ill—something that should be a basic human right. I’m also contacting journalists to expose a devastating medical scandal unfolding in silence. I am fighting ferociously for the right not to be abandoned to deteriorate at home, without access to healthcare, simply because I live in a country that cannot diagnose my complex neurological condition. Beyond the lack of knowledge about complex conditions lies something far worse—the shocking indifference of doctors toward the fate of their own patient, the very person whose health they are entrusted to protect. It is incomprehensible. Another evening spent in the dark, with unbearable pressure and stabbing pain in my head, trying to force down enough food to protect my liver from the rat poison that is the blood thinner warfarin—the drug keeping me alive by preventing lethal clots, while simultaneously worsening the brain bleeds driving my diagnosis of Infratentorial Superficial Siderosis. The iron from the bleeding is damaging my cranial nerves, causing permanent brain damage, relentless loud tinnitus, severe sensitivity to light and sound and neuroinflammation that affects my entire body. I'm isolated from all forms of distraction and quality of life. There is TREATMENT. I could be on my feet and have my life back—if I didn’t live in #Sweden. Please, help me reach it. gofund.me/506bd49f7
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Dax Ponder (Dan Moore) retweeted
Dear friends, Rich @windscattered desperately needs our help. If you're able, please support him by retweeting the article by @MrTopple @TheCanaryUK and donating to or sharing his fundraiser (gofundme.com/f/Help-Me-Get-L…). We're with @Talmandaniel in spirit, alongside you Rich 💙🫂
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Dax Ponder (Dan Moore) retweeted
Daniel shouldn’t have to do this. Living with #MECFS, he’s travelled from the UK to Sweden to help his friend Rich get life saving treatment driving him to Germany — spending what little energy he has and risking his own health because Rich can’t get the care he needs. 1/3
I don't think I need to say anything about this photo other than say please share, prese also give to the go fund me if you're able. gofundme.com/f/Help-Me-Get-L…
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Dax Ponder (Dan Moore) retweeted
We made it @Talmandaniel brought us safely home Head exploding with pressure and pain Feline support system engaged
My friend and brother @Talmandaniel is coming soon to drive me home across Sweden. He, too, has ME, so he has health issues of his own. His compassion—and how he wields it—is what can be so beautiful about us humans. Being transported lying down in a car, with surreal amounts of pressure and pain in my head and an extreme sensitivity to light and sound, isn’t exactly the kind of road trip I'd like it to be. But one day—when I’ve finally healed and this chapter is behind me—we’ll take a real road trip, Dan. Windows down, music up, and nothing but open skies ahead. I hold on to that.
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Dax Ponder (Dan Moore) retweeted
Replying to @Talmandaniel
@Talmandaniel sets off today to be the best friend and most excellent companion to Rich. Please donate or share if you can.
I desperately need exposure for life-saving treatment in Germany Please share - not a scam - all medical documentation avaliable - please 💔 Three rare conditions converging destroying my brain: • CSF leak →bleeding into CSF→ Infratentorial Superficial Siderosis (iSS) • Triple-Positive APS → requires warfarin blood thinner → increases bleeding and fuels iSS • Together=vicious cycle of bleeding, neuroinflammation, iron toxicity & permanent nerve death #GoFundMe #livingwithss #csfleak @csfleakuk @spinalCSFleak @csfleakinfo @LivingwithSS @APSFA #APSAwareness gofund.me/872b025e3
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