@ABrokenBattery
Account based inUnited Kingdom
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- Account based in
- United Kingdom
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Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Joined September 2017
- Tweets7K
- Following1.3K
- Followers8.3K
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German TV report. Clip Subtitles by Fiona Hart.
Full video (21 mins): Living with ME/CFS: When suddenly nothing works anymore
BASIS:KIRCHE, 13 September 2026.
youtu.be/vHN-8RDTrXY?is=5Tpp…
The full #MECFS Scandal explainer:
medium.com/@abrokenbattery/m…
I wrote a follow-up blog in January:
medium.com/@abrokenbattery/m…
And George Monbiot wrote a follow-up last month:
theguardian.com/commentisfre…
On 15 October, Alison Bennett MP will lead a debate in Parliament on support for unpaid carers.
To inform the debate, she would like to hear about carers' experiences and insights...
petition.parliament.uk/petit…
“ME/CFS patients are deeply inconvenient.”
George Monbiot on how people with #MECFS need long term support, but governments and insurers have an incentive to “brush it away” and dismiss patients leaving them “massively mistreated, maligned” and “blamed for their illness”.
Watch the full video (24 mins)
David Tuller interview with George Monbiot:
youtu.be/MaaeQ7crLz4?is=30_Q…
George Monbiot’s recent article:
theguardian.com/commentisfre…
Adam retweeted
Me 3 weeks ago, vs today. Now I can’t even sit up, let alone walk into a TV studio.
After getting sick 4 years ago, I was so lucky to regain enough functionality to be able to work. This crash is a reminder of just how violently even “moderate” Long Covid & ME can fluctuate.
Adam retweeted
Great talk between @davidtuller1 & George Monbiot - George mentions an interaction with Oxford Professor M Sharpe of PACE trial, this same Prof phoned up my Head of Centre to complain about me writing about ME/CFS and critiquing his model - This was bullying and I also asked for the evidence, because my papers were factual and reviewed the science. youtube.com/watch?v=MaaeQ7cr…
Watch the full video (24 mins)
David Tuller interview with George Monbiot:
youtu.be/MaaeQ7crLz4?is=30_Q…
George Monbiot’s recent article:
theguardian.com/commentisfre…
Adam retweeted
The Guardian has published our letter responding to George Monbiot's article about how people with ME are abandoned, dismissed and gaslighted.
We point out the inadequate political attention, and call for action from the Health & Social Care Select Committee.
Link in next post.
“I was just horrified… The most heartbreaking stories… Treatment is absolutely appalling for patients.”
George Monbiot speaking to @davidtuller1 about the hundreds of messages he received from people around the world with #MECFS about their experiences of treatment.
Watch the full video (24 mins)
David Tuller interview with George Monbiot:
youtu.be/MaaeQ7crLz4?is=30_Q…
George Monbiot’s recent article:
theguardian.com/commentisfre…
Sad to hear of the death of Dame Esther Rantzen yesterday. After writing about her daughter’s ME in the 90s, she received 4,000 letters from distressed patients and their families. She described treatment resembling methods “used in mediaeval days to punish witches”.
Munchausen syndrome by proxy is now known as fabricated or induced illness (FII) when a parent or carer is exaggerating, fabricating or causing a child’s illness. Families of children with #MECFS still face these accusations today.
Highlights from The Rantzen Report (1996).
“Physically, Long COVID has absolutely just ruined my life.”
“Doctors just don’t know what to do with you.”
“There’s no help coming your way.”
People living with #LongCovid describe how the illness has changed their lives. Highlights from a PBS NewsHour report aired in 2023.
Watch the full video:
#LongCovid | PBS NewsHour, Feb 2023 (11 mins)
youtu.be/ype9O4rD3Gk?is=z8qs…
Full interview (9 mins):
youtu.be/H2rRf_f2hJs
George’s recent article
theguardian.com/commentisfre…
