Providing education and life-enhancing programs to individuals with sickle cell disease.
California, USA
Joined November 2011
- Tweets1.8K
- Following561
- Followers2K
- Likes990
Sickle Cell Disease Foundation retweeted
It brings us joy to celebrate our physicians this March 30, National Doctors' Day. Watch as our team reads heartfelt messages from patients. 💌
Watch now on Youtube: bit.ly/4hIJsY3
#NationalDoctorsDay
Sickle Cell Disease Foundation retweeted
Women living with SCD have historically faced higher pregnancy risks with limited support. It’s time to address this gap & ensure they receive care they need & deserve.
Learn more in @EricBoodman's investigative series, Coercive Care.
bit.ly/4kQkKrv
#WomensHistoryMonth
Sickle Cell Disease Foundation retweeted
Thank you, @asmakilahweber, for meeting with us & the @UCSanDiego Health Sickle Cell Clinic team!
On behalf of those we serve, we appreciate your ongoing support in ensuring that adults living with sickle cell disease in California are #NeglectedNoMore.❤️
Sickle Cell Disease Foundation retweeted
Forgot your meds during an evacuation? Contact your pharmacy ASAP, or seek help from local health departments or shelters. @latimes provides a step-by-step guide to protect your health in emergencies. Read more: tinyurl.com/4pvbewbn
Sickle Cell Disease Foundation retweeted
Pacific Surfliner is offering $10 fares for travel anywhere on the LOSSAN Rail Corridor (San Diego to San Luis Obispo) to assist those impacted by the Southern California wildfires.
pacificsurfliner.com/offers/…
Sickle Cell Disease Foundation retweeted
#Wildfires don’t just leave physical scars—they take a toll on mental health. Research links them to higher anxiety, depression & PTSD. Read insights from experts like @neatneuro, PhD, @UCSanDiego, on why mental health care is critical during recovery.
edition.cnn.com/2025/01/10/h…
Sickle Cell Disease Foundation retweeted
The CDC’s Sickle Cell Data Collection program helps states understand and improve care for people with SCD. In CA, SCDC data supports NCSCC clinics in cutting hospital visits and reshaping adult care by collecting data.
Learn the full impact here.
tinyurl.com/bdh8y4v6
Sickle Cell Disease Foundation retweeted
Both drug manufacturers with FDA-approved gene therapies for sickle cell disease will participate in the Cell and Gene Therapy Access Model, offering outcome-based agreements to state Medicaid agencies. More: go.cms.gov/cgt
Sickle Cell Disease Foundation retweeted
On #TransgenderDayofRemembrance, we honor those lost to violence and stand with the transgender community. Let’s work for a world where everyone is respected.
ALT Text reads, Transgender Day of Remembrance. The illustrated images is of seven light blue and pink candles.
Sickle Cell Disease Foundation retweeted
Join @UCSF for their Sickle Cell Boot Camp on Thurs., Nov. 14, 9am-1pm! Essential staff are invited to dive into key topics including mental health, SCD guidelines, health disparities & transitional care. Email [email protected] & [email protected] to join the waitlist!
Sickle Cell Disease Foundation retweeted
If you’re living with sickle cell in the Riverside-San Bernardino Area, compassionate, comprehensive care is here!
@LLUMedCenter’s top-ranked sickle cell clinic offers hematology, pain management, behavioral health, social work, & more.
Learn more here.
tinyurl.com/4fdantn8
Sickle Cell Disease Foundation retweeted
Pfizer has voluntarily withdrawn OXBRYTA (voxelotor), a sickle cell treatment, from all markets, representing a setback for the SCD community. Our co-founder, Diane Nugent, MD, has issued a statement in response.
Sickle Cell Disease Foundation retweeted
#ICYMI: Check out the new @SCDF toolkit for #SickleCellDiseaseAwarenessMonth, featuring resources on advocacy, treatment, and more!
Read the newsletter here: tinyurl.com/whdj8ucf
Sickle Cell Disease Foundation retweeted
Thank you Mary Brown @SCDFoundation for sharing your point words about being actionable so that Warriors can live high quality lives and achieve their goals #hhssicklecelldiseasesummit
Sickle Cell Disease Foundation retweeted
Great panel on community, health department, and private organization approaches to improve sickle cell care. Everyone should have access to a sickle cell expert! #HHSsicklecelldiseaseSummit
Sickle Cell Disease Foundation retweeted
💡 September is Sickle Cell Awareness Month 🩸🩺
SCD causes pain, fatigue, and serious complications. With awareness and support, advocates can push for better treatments and care.
#SickleCellAwareness #BloodDisorder #GlobalHealth #SickleCellDiseaseFoundation
@SCDFoundation
Sickle Cell Disease Foundation retweeted
Last week, #TeamPCG had an amazing time at #CampCresentMoon!🌙Shoutout to @SCDFoundation for creating an unforgettable summer camp experience packed with education and fun activities for kids battling #sicklecelldisease. It was such a joy to meet these incredible young campers!💙
Sickle Cell Disease Foundation retweeted
Thank you, @CAgovernor and the California Legislature, for the $5 million funding for NCSCC! This support ensures the continued comprehensive care for Californian adults living with sickle cell disease.🩷
Read our statement on this incredible news here.
bit.ly/3Y0990b
Sickle Cell Disease Foundation retweeted
ICYMI, Saturday’s @SacObserver Black men’s mental health and wellness resources fair was an amazing day of Black love and support! Thank you @USCAnnenberg @SacCountyCA and all of those who participated in this powerful event!
#MentalHealthMatters
