The @US_FDA lets drugs to market faster, then requires safety studies after approval. @KFFHealthNews found nearly 600 of those studies running late. @Amgen's Tavneos, linked to dozens of liver injury cases, still hasn't finished its study.
Read more here: tinyurl.com/5n8tju39
Nearly 25,000 Californians could be moved from a biologic to a cheaper biosimilar next year under SB 1094, signed by @CAgovernor unless their doctor objects. Backers cite savings; rheumatologists and patient groups fear disrupted care.
Read more here:
tinyurl.com/mrywfxzy
California men die 5+ years before women, and half of male deaths come before 75. @Movember's new report calls for a state plan to reach men where they are. Saturday is #WorldMentalHealthDay, and mental health is men's health too.
Read more here: tinyurl.com/2ucsmnr5
We’re thrilled to see the @FDA advisory committee recognize the potential of Galleri and the importance of continued innovation in cancer detection #MCED. tinyurl.com/4semn3b8
A study of 92 million medical records found 1.1 million Americans taking GLP-1s like Ozempic with no obesity or diabetes diagnosis. Off-label use is up 15x since 2021, and experts warn there's little safety data for these patients.
Read more here: tinyurl.com/abzbxjz2
Great news for California patients! #AB2009, by @PhillipChenCA and @AsmSolache, was signed by @CAgovernor. The bill will modernize source plasma donation regulations and support a more reliable supply of plasma-derived medicines for those who depend on them.
Dr. Wayne Ho sees how GLP-1s improve his patients’ lives, but the reversal of Medi-Cal coverage adds to the hurdles faced by vulnerable patients who now risk losing the progress they have “fought incredibly hard to achieve.”
Read more @calhealthreport >> tinyurl.com/hma67c26
Going to be a great & informative webinar hosted by @Looms4Lupus! Don't forget to register today to hear from experts on the #340Bprogram and how proposed changes may affect patients.
When: TOMORROW, September 24 at 9:00am PST
Register here: us06web.zoom.us/webinar/regi…
Join @Looms4Lupus for a webinar on proposed changes to the 340B Program and what they could mean for patients, caregivers, and access to care.
📅 Thursday, September 24, 2026
🕘 9:00 AM PT | 12:00 PM ET
💻 Zoom Webinar
🔗 Register today: us06web.zoom.us/webinar/regi…
#Lupus #PatientEducation #HealthcarePolicy #340B #PatientAdvocacy #HealthEquity #Looms4Lupus
Policymakers reversed #GLP1 coverage due to budget concerns. But there is a greater cost: undoing health equity for the millions of #LGBTQ+ Californians who rely on Medi-Cal to treat and manage #obesity.
From Dr. Sera Ramadan, DO via @GlendaleNews_P >> tinyurl.com/4cud45jz
Behind #AB2009 are real patients, families, and caregivers who rely on plasma-derived medicines every day. We urge @CAgovernor to sign this bill into law and ensure California’s policies keep pace with patient need.
The menopause journey isn't one-size-fits-all. Join @PFCD and State Senator Dr. Akilah Weber Pierson for a free luncheon seminar focused on the unique experiences of Black women. Register today: tinyurl.com/yeyrjhny
Tomorrow: Join @LupusColorado for an educational webinar on the #340B program, recent federal actions, and how decisions are impacting state-level issues. Featuring expert insights from @TIICANN and @blkwomenshealth
Register here: tinyurl.com/3cmn29hz
California is one step closer to improving access to life-saving plasma-derived medicines!
We now call on the California Assembly & @CAgovernor to support #AB2009, legislation that will modernize outdated source plasma regulations.
tinyurl.com/3jx2djzp
Government price-setting policies based on #QALYs risk reducing patients to formulas rather than recognizing individual needs. People living with rare diseases, disabilities, and chronic conditions deserve equitable access to treatment.
Read more: tinyurl.com/4jrdk4s8
A new FDA-approved gene therapy is giving hope to patients with sickle cell disease. Patients are experiencing fewer pain episodes after treatment, marking an encouraging advancement in #sicklecell care.
Read more here: tinyurl.com/43f7ufxe
A federal investigation found that some of the largest Medicare Advantage insurers denied medically recommended rehabilitative care at higher rates than their peers, often approving coverage only after patients appealed.
Read more here: tinyurl.com/5t2s5uzb
Governor Newsom announced a transformation of #CA's youth behavioral and mental health system, highlighting statewide actions and long-term reforms aimed at improving care for future generations.
Read more here: tinyurl.com/mry5pkjb
Many undocumented Californians rely on Medi-Cal as both a health and financial lifeline. Maintaining coverage enables them to manage chronic conditions and seek care before health problems escalate.
Read more here: tinyurl.com/ycy72nh4











