@RestlessLegsUK

RLS-UK is a registered charity that supports people with Restless Legs Syndrome (RLS) & Periodic Limb Movement Disorder (PLMD) https://xitter.cf/t.co/DnLwuPefNj

 United Kingdom
rls-uk.org
Joined September 2014
  • Tweets791
  • Following368
  • Followers965
66Media
RLS-UK (Charity) retweeted
RLS Foundation@RLSFoundationJun 5
Excitement is brewing! The 2026 RLS Treatment Guidelines Pre -rint is now available. Get access now and share with your RLS healthcare provider! Need an RLS doctor? Email info@rls.org! #rls #restlesslegssyndrome #sleep #healthcare #neuro
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As we welcome @YvetteCooperMP, the new Secretary of State for Health and Social Care, if you're able, please make sure you've added your name to our open letter calling for a national plan for neuro. Add your name here: campaigns.mssociety.org.uk/p… Thank you
Graphic of a diverse group of people campaigning. Central banner reads: millions can't wait neuro plan now.

ALT Graphic of a diverse group of people campaigning. Central banner reads: millions can't wait neuro plan now.

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In the news today- bbc.co.uk/news/articles/cm2p…

Author lost £500k to compulsive shopping - then found an explanation

Children's author Sally Gardner finally found an explanation for her extravagant shopping sprees after hearing a podcast.

bbc.co.uk
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BBC News - Drug warnings review after some patients 'misled' over impulsive behaviour side effects - BBC News bbc.co.uk/news/articles/ckg0…

Drug warnings review after some patients 'misled' over impulsive behaviour side effects

Warnings for dopamine agonist drugs are to be reviewed after BBC identified an error in patient leaflets.

bbc.co.uk
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Visit our busy help forum at HealthUnlocked for support & advice on what helps our members. healthunlocked.com/rlsuk/pos…

Gabapentin/Sleep Walking | Restless Legs Syndrome

"Hi All, I'm 26 days into weaning myself off Pramipexole & up until last night I hadn't slept for ...". Join the conversation with people who've been there

healthunlocked.com
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Sadky there is still a long way to go to update clinicians about the latest guidance facebook.com/share/p/17DQtoR…
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RLS-UK (Charity) retweeted
Julie Gould@GrumpyoldGould29 Sep 2025
Replying to @DrSarahJarvis
@DrSarahJarvis I just listened to the programme. I attach links to @NICEComms guidance & NHS new website relegating ALL #DopamineAgonists to 'last resort'. nhs.uk/conditions/restless-l… cks.nice.org.uk/topics/restl…

Restless legs syndrome

Find out about restless legs syndrome, including symptoms, self-care, causes, treatment and when to get medical help.

nhs.uk
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Its good to see updated NHS information about RLS. More to do but a step in the right direction. nhs.uk/conditions/restless-l…

Restless legs syndrome

Find out about restless legs syndrome, including symptoms, self-care, causes, treatment and when to get medical help.

nhs.uk
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RLS-UK (Charity) retweeted
RLS Foundation@RLSFoundation29 Aug 2025
September is absolutely packed with RLS-related events, and September 23rd is RLS Awareness Day! Learn more about RLS at our Virtual Summit on the 20th, get support from one of 11 support groups hosted this month, or follow along all month for more! #rlsawareness
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The ignorance about #RLS is concerning. A poster on our HelpForum has been on Levodopa AND 4mg Ropinirole for years & his #RLS is extremely severe. His doctors don't understand why! Drug-induced worsening #Augmentation has been known about since the 70s.
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23rd September is international #RLS day. To help raise awareness, ask RLS-UK for information leaflets & leave them in your local GP surgery/hospital.
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RLS-UK (Charity) retweeted
SPI - EWE@spi_ewe7 Sep 2025
El 23 de septiembre es el DÍA MUNDIAL DEL @spi_ewe
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Your regular reminder that #Rotigitone ( #NeuproPatch) causes drug-induced worsening (augmentation) of #RLS at ANY dose. Many UK doctors erroneously believe it does not. Here's a top world expert explaining why previous studies on #Rotigotine are flawed. youtu.be/Tz7g9sxS0_I?si=ef2X…
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RLS-UK (Charity) retweeted
AESPI - Asociacion@aespi24 Sep 2025
😴 ¿Te cuesta dormir por una sensación incómoda en las piernas? Muchas personas viven con la enfermedad de Willis-Ekbom sin saberlo Esta condición neurológica provoca una necesidad urgente de mover las piernas, especialmente en reposo 📲 + Info aespi.net
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A plain language summary of The AASM guidance released earlier this year by top #RLS experts, Drs Berkowski, Koo & Buchfuhrer. tandfonline.com/doi/10.1080/…

The treatment of restless legs syndrome and periodic limb movement disorder: a plain language...

Published in Expert Review of Neurotherapeutics (Vol. 25, No. 9, 2025)

tandfonline.com
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RLS-UK (Charity) retweeted
SPI - EWE@spi_ewe30 Aug 2025
El #SPI tiene más incidencia en las mujeres.
Dra. Elena Casado Pineda@Medicilio29 Aug 2025
El síndrome premenstrual afecta al 90 % de las mujeres, pero un análisis concluyó que hay cinco veces más estudios sobre la disfunción eréctil que sobre el síndrome premenstrual. Y así, con todo.
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An excellent article on #RLS treatment by Drs Berkowski, Koo & Buchfuhrer on #RLS treatment. It refers to the latest #AASM guidance. acrobat.adobe.com/id/urn:aai…

Adobe Acrobat - The treatment of restless legs syndrome and periodic limb movement disorder a plain...

Click or tap to view this file.

acrobat.adobe.com
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RLS-UK (Charity) retweeted
Julie Gould@GrumpyoldGould27 Aug 2025
Replying to @RestlessLegsUK @DailyMail @NICEComms
I was sent that article, written by @Dr_Ellie . #DopamineAgonists are no longer recommended by the @AASMorg , @NICEComms and #AustralianGPs.The NHS has also confirmed it is updating its RLS information to remove all dopamine agonists due to VERY high rates of #Augmentation.
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A recent article by a GP in @DailyMail on #RLS gave oudated & incorrect advice. Please see @NICEComms cks guidance & our website for up to date treatment information. #DopamineAgonists are no longer recommended. rls-uk.org/ cks.nice.org.uk/topics/restl…

RLS-UK | Restless Leg Syndrome & Periodic Limb Movement Charity

Welcome to RLS-UK. We are a registered charity, providing help and support to people living with Restless Legs Syndrome (RLS) and Periodic Limb Movement Disorder (PLMD). Restless Legs Syndrome (RLS),...

rls-uk.org
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Do you have #RestlessLegSyndrome? This resource is a must-read: hubs.la/Q03D9hcq0 @RLSFoundation #RLSadvocacy @AndrewSpectorMD
The cover of the book, "Navigating Life with Restless Legs Syndrome"

ALT The cover of the book, "Navigating Life with Restless Legs Syndrome"

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