Owner of a body broken by ME. Campaigning for change. Love cakes I shouldn't eat! Longs to garden and to walk a coast path again https://xitter.cf/t.co/OAKP8jeiWW
Walsall, England
Joined January 2017
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- Followers143
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Sue Worrall retweeted
📣 Long Covid Support responds to Government's Get Britain Working White Paper!
Read the full statement here:
longcovid.org/impact/news/lo…
(Link to Government’s pages in comments)
#LongCovid
ALT Image with a dark background. At the top is the header Long Covid Support statement on the Get Britain Working White Paper. In the upper right hand corner is the news headline saying Biggest employment reforms in a generation unveiled to Get Britain Working again. There is a quote in the centre which says The issue of employment, welfare and health cannot be addressed without urgently addressing ongoing Covid-19 infections, public health and Long Covid, as a matter of national policy. Below the quote is says Read our full statement at: www.longcovid.org/impact/news Our Long Covid Support logo is shown and below that it reads Long Covid Support is a registered charity in England and Wales 1198938.
Sue Worrall retweeted
This story is one of the most disturbing I've ever covered. It's about how the views of a deeply weird ideological sect affected science, medicine and the media, with devastating impacts on patients. Please read and pass on. This horror has to stop. theguardian.com/commentisfre…
Sue Worrall retweeted
There will, without doubt, be future deaths from #ME unless @NHSEngland are very, very careful about the training module they are preparing to put out on ME. The responsibility is on them to put out the very highest quality of information.
#pwME #PreventFutureDeaths
Sue Worrall retweeted
@DHSCgovuk @DWPgovuk @NIHRresearch
We use the 2002 estimate?
HOW is this even possible?
@ONS @NHSEngland What other LTC’s have no current prevalence figure?
WHY does the #MEcfs community even have to ask Govt/NHS to calculate the numbers of #pwME in 2024?
#DontForgetME
"The honest answer is that we just don’t know how many people have ME/CFS in the UK. We can only make a very rough estimate based on limited epidemiological research, along with the opinion of clinicians, researchers and people who have the condition"
meassociation.org.uk/80w3
Sue Worrall retweeted
Just watched Scoop. Struck by this quote at the end
"This is what Newsnight is...Stories that need to be told, that people care about, hold the powerful to account and give victims a voice"
Well, @BBCNewsnight here's a story for you, and it needs to be told
#BringMillieHome
Millie McAinsh - Drs ignore NICE guidelines, psychologise her ME-deny PEJ, threaten to section/detain her. This isn’t the first time NHS has failed severe ME patients. Action needed #BringMillieHome #DontLetMEDie @gmcuk @RCPhysicians @rcpsych @VictoriaAtkins
Sue Worrall retweeted
Medical leaders have a responsibility to, well, lead. Step up and stop a severely ill young woman from coming to further harm. @VictoriaAtkins @wesstreeting @NHSuk @NHSE_WTE #BringMillieHome #DontLetMEDie @gmcuk @rcpsych @RCPhysicians
Well well @RCPhysicians here we are again. Another day, another growing scandal involving medical professions likely YOUR members. We're old enough to remember when in 2021 your people secretly lobbied NICE over ME guidelines #BringMillieHome #DontLetMEDie thecanary.co/uk/analysis/202…
Sue Worrall retweeted
#BringMillieHome #DontLetMEDie
@gmcuk
@rcphysicians
@rcpsych
@VictoriaAtkins
@wesstreeting
Why do we keep having to do this? When will the #NHS treat #MyalgicEncephalomyelitis patients with respect and implement a protocol for very severe patients? bbc.co.uk/news/uk-england-de…
Sue Worrall retweeted
Please look out for update for Millie as there could be repercussions as Millie's sister stated and I will be sharing as much as I can #BringMillieHome #DontLetMEDie #TakeDownPACEtrial lady in West Sussex in the same position @TheChronicColab
Sue Worrall retweeted
#DontletMEdie #BringMillieHome
@CareQualityComm
@gmcuk @rcpsych @RCPhysicians
Please help now!
#MEcfs
Please #BringMillieHome 🙏🏻
@gmcuk @RCPhysicians @rcpsych You may not feel it’s your place to intervene, but if no one does, then Millie’s name could be next after Sophia, Merryn & Maeve, other young women with ME/CFS who died under almost identical circumstances.
#DontLetMEDie
Sue Worrall retweeted
#DontletMEdie #BringMillieHome
@CareQualityComm
@gmcuk @rcpsych @RCPhysicians
Sophia 2003 wrongly sectioned
Millie 2024 wrongly sectioned
#MyalgicEncephalomyelitis
#MEcfs
Sophia Mirza was wrongfully sectioned in 2003 because doctors didn't understand #MECFS. This caused a deterioration which ultimately led to her death. 20yrs later and it happened to Millie. It has been lifted but Millie continues to be mistreated.
#BringMillieHome #DontLetMEDie
Sue Worrall retweeted
No more avoidable deaths from #SevereME. It is a life threatening physical illness,not a mental health situation. It can happen to anyone and hospitals must learn how to treat it now, right now.
#BringMillieHome #DontLetMEDie
@gmcuk mirror.co.uk/news/health/sev…
Sue Worrall retweeted
My simple message is the world needs to wake up to Myalgic Encephalomyelitis.
I was hospitalised in 2006 it was horrendous. Lot of the treatment questionable. I live with the trauma now.
How is the treatment still like this 18yrs later?
#BringMillieHome #DontLetMEDie
@gmcuk
Sue Worrall retweeted
People with ME should not live in fear of going to hospital due to the lack of education of doctors. It's up to @gmcuk @rcphysicians @psych to get to grips with how they can help patients & avoid causing further harm to extremely ill patients #SevereME
#BringMillieHome
Sue Worrall retweeted
This is what Millie’s family is asking for, just this. Too many people with #SevereME have already died. Please let this be a turning point and let #ME be treated as the biophysical illness that it is for all patients. #DontLetMEDie #BringMillieHome 🙏
Sue Worrall retweeted
@VictoriaAtkins @wesstreeting #MyalgicEncephalomyelitis @NHSuk @NHSE_WTE #BringMillieHome #DontLetMEDie @gmcuk @rcpsych @RCPhysicians #BringMillieHome #DontLetMEDie
Many other people with #ME are terrified to engage with #NHS healthcare, and fear the need to be admitted because they see how #severeME patients are treated in UK hospitals.
Learn how to treat ME from those who know.
#BringMillieHome before it’s too late 😢
#pwME only have a small amount of energy available to use each day, @gmcuk @RCPhysicians @rcpsych you will only get a glimpse of the strength of feeling today because our energy will run out. Please take notice #SevereME #BringMillieHome #DontLetMEDie
Sue Worrall retweeted
Can people outside of the ME community has please retweet this? A young woman’s life is literally at stake and there *must* be public awareness and outrage to stop this or she’ll be the next young woman with ME to die in NHS care @NickyAACampbell @RolfatWarwick @MrAndrewCotter
Please #BringMillieHome 🙏🏻
@gmcuk @VictoriaAtkins You may not feel it’s your place to intervene, but if no one does then Millie’s name could be next after Sophia, Merryn & Maeve, other young women with ME/CFS who died under almost identical circumstances.
Act now #DontLetMEDie
Sue Worrall retweeted
#BringMillieHome #DontLetMEDie
M.E. lives shouldn't be at risk in hospital. We badly need NHS protocols for ME hospital admissions, and feeding guidance. People have died from ME being psychologised. Please stop it happening again.
@gmcuk @RCPhysicians @rcpsych @VictoriaAtkins
Sue Worrall retweeted
I can’t imagine the pain and distress Millie and her family have been going through all these weeks.
I am urging @gmcuk @rcphysicians @rcpsych to please #BringMillieHome
#DontLetMEDie
Please sign the petition:
change.org/p/save-millie-s-l…
