Juliet Taylor (@Julietworks) header
Juliet Taylor (@Julietworks) profile picture

Passionate about ending ALS. Wife to an angel. Marketer, dog mom, equestrian, outdoor aficionado.

Eastern Shore of Maryland
Joined June 2017
Photo by Juliet Taylor (@Julietworks)Photo by Juliet Taylor (@Julietworks)Photo by Juliet Taylor (@Julietworks)Photo by Juliet Taylor (@Julietworks)
Grandma Susie and her 55th favourite golfer!!
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Juliet Taylor retweeted
Inspired by Grandma Susie @BMWChamps ❤️
A day 103 years in the making. Lifelong golf fan Grandma Susie experiences her first day at a PGA TOUR event, with a few special surprises along the way.
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I just want to make a few things clear: The Holocaust happened. Hitler was a demonic figure. And instead of giving it a platform, our political leaders should be calling out and rejecting antisemitism wherever it hides. Silence is complicity.
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Juliet Taylor retweeted
The I AM ALS Community Outreach Team is taking over Brian Wallach’s Twitter account today. The Team’s mission is to engage, educate & empower everyone for better care, treatments & cures for ALS. Follow this link to learn more about the Team: iamals.org/action/community-…
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Community Outreach Team member Lorri Carey who's had ALS for 18 years, has a podcast called I’m Dying to Tell You. Featuring guests who share how strength, love and resilience come from adversity. @LorrisPodcast Listen in to this inspiring podcast here: podcasts.apple.com/us/podcas…
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The Community Outreach Team raised awareness of #ALS through social media campaigns using #ALSisEverywhere. Because 1 in 300 people will be diagnosed with ALS during their lifetime, ALS is indeed everywhere.
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Dear @US_FDA, By now you have made your decision on AMX0035 and are finalizing the report. I hope your first sentence is: “We are approving this drug as it safe, has demonstrated sufficient efficacy and helps address a huge unmet need for those with ALS.” Sincerely, Brian
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Breaking news: the AMX0035 AdCom has voted 7-2 to recommend approval.
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I am honored to write this new column for ALS News Today. alsnewstoday.com/columns/how…
We are sad to announce the loss of a committee member to ALS, and the 8th in less than 3 years. Mike Tamburino was a massive @Yankees fan and an energetic part of our group. Please read a tribute that was written by his daughter. bethelgrapevine.com/articles…
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sltrib.com/news/health/2022/… I believe w/all of my being that we should be allowed to die with dignity when we truly cannot do another day of this brutal disease that will 100% kill us after its destructive work. Kylie & her mom had to leave her state for her wishes. We can do better.
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Happy New Year. May we all approach 2022 with the enthusiasm of Mabel when experiencing life and the tolerance of Olive when experiencing the attention of Dexter from next door.
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I want to end 2021 with 1 word: inspire. Inspire hope. Inspire change. Inspire tolerance. Inspire kindness. Inspire dreams. Inspire good. Just, inspire. Good night moon.
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Juliet Taylor retweeted
Never question if you are making a difference. After tens of thousands of you relentlessly took action to change history, #ACTforALS was signed into law. Thank you, @POTUS for giving tangible hope to every person impacted by ALS today.
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Did a pretty cool thing with some pretty cool people. Wreaths Across America at Arlington National Cemetery with some incredible friends from @iamalsorg
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Juliet Taylor retweeted
Because of @iamalsorg this family met today. And this family laid wreaths @ArlingtonNatl Cemetery. And this family has hope for the future and gratitude for the past. A humbling experience is an understatement 🤍
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My youngest just came in & laid his cheek against mine so I could feel the snowflakes from our storm. I want you to share this article w/everybody that cares about you to support so that my friends & I can feel more snowflakes on our cheeks. onlinelibrary.wiley.com/doi/… #LivingProof
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Just a reminder that #ACTforALS passed out of the House yesterday. But this was not a Congressional achievement—this is thanks to the work of advocates around the country who are fighting for their own lives and for the lives of those they hold dear. They did this.
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Not today ALS indeed. And to quote one of my heroes who also happens to be your wife - 'let me be super clear' we need to get this critical bill through the Senate at the speed of light. So we will.
It’s official: #ACTforALS has passed the House by a vote of 422-3. Not today ALS. Not today.
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Juliet Taylor retweeted
It’s official: #ACTforALS has passed the House by a vote of 422-3. Not today ALS. Not today.
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