Incredibly blessed wife, mother, ALS warrior, and necessary troublemaker.
Truckee, CA
Joined May 2018
- Tweets9.4K
- Following2.4K
- Followers5.4K
- Likes40.2K
To the incredible ALS community, many of which have become my closest friends - and even family❤️
The ALS Anaconda has to win. Someday (soon) this will not be the case💪
Please take my baton & run faster & farther.
Get us to the winner's circle.
It's entirely possible.
I just had the best time last year! 🌻
All my favorites within my sight. ❤️
#SandyFest #BestFuneralEver
One year ago today Sandyfest… what a beautiful was to celebrate my dear friend! I am so bless to have you as my friend and family! @sandymorris333 @KylanMorris1 I love you both so much! Xoxoxx #fuckals
Sandy Morris retweeted
We all think we understand urgency.
Until you have lived under that relentless ALS clock, you don't really grasp urgency.
Trust me.
How much I love this!
Thank you - I'm taking all of his badass puppy love. 💪❤️
Dear @sandymorris333 @sandrawmarlowe and @HerALSStory (and untold others),
Before he left us for The Rainbow Bridge Poodle sent you his badass puppy love.
#Friday #dogs #badassery #poodlestyle
It just got a little sweeter.
We were listening to some songs from The Big Chill soundtrack and my 84 year old dad just danced in -beautifully I might add.
I so wish I could video them to show you from behind my tobii-it is precious.
youtube.com/watch?v=3s0TkufX…
My family makes me laugh
If music is on my tobii, they will dance/shimmy in to entertain me
They each have their own style
1 exaggerates her shoulders w/a big grin, 1 puts his elbows up really high & 1 puts his finger in the air & says 'wait for it'
#Lucky
youtube.com/watch?v=SebH8En9…
When your beloved cousin in Canada sends you this "you are simply the most beautiful sky ever, and we love you".
High probability of big smiles for the rest of the month.
❤️
Sandy Morris retweeted
The science is good. Now approve.
“We will do everything we can to move these therapies along and be very flexible, however we need good science because we need treatments that are going to work.” - Former FDA Comm. Janet Woodcock
@FDA_US, science has shown #AMX0035 is safe & effective. bit.ly/3cadpog
Sandy Morris retweeted
On Day 2 (Tues) at 1015am EDT there will be a session where ALS advocates present some problems and direct, deliverable solutions. This is important and we thank @DanielleVsALS for her help to make this happen. The agenda cdc.gov/als/files/2022-Natio…
Register below...
Each year ATSDR brings together ALS patients, advocates, and experts at the National ALS Registry Annual Meeting. The meeting will be held virtually on August 29th and 30th. Register at: bit.ly/3zrpRYA.
ALT Clipart of DNA with text that says, “National ALS Registry: Learning more is critical.”
❤️💔❤️
ALS families are simply amazing.
***Proud Dad Moment***
Alas, my prayers have been answered. I finally found a PRN caregiver. How many 4 year olds can cough assist and suction their #ALS Hero. #myboy #nottodayals @erika_poling
Sandy Morris retweeted
Thank you @iamalsorg, @AnswerALS, @TeamGleason & @LesTurnerALS 4 amplifying the priorities of the ALS world for the FDA to approve the safe & effective #AMX0035. @sandymorris333 @thompsontweach @nicolecimbura @becky_mourey @JackSil24 @LisaLegacy4ALS @HopOnACure @stevens_nation
I AM ALS joins @LesTurnerALS, @AnswerALS, and @TeamGleason in submitting a written comment to the FDA. We state that #AMX0035 is safe and effective, and strongly encourage the FDA to move toward approval. Read our full statement here.
bit.ly/3CjWavs
My family makes me laugh
If music is on my tobii, they will dance/shimmy in to entertain me
They each have their own style
1 exaggerates her shoulders w/a big grin, 1 puts his elbows up really high & 1 puts his finger in the air & says 'wait for it'
#Lucky
youtube.com/watch?v=SebH8En9…
I hope that @MeritCudkowicz wakes up every morning and hears how brilliant she is.
Because she is.
Admittedly I had to read this through more than a few times but wow!
Come on ALS science!
academic.oup.com/braincomms/…
After @GlennonDoyle 's podcast w/ @MarisaReneeLee I bought her book, Grief is Love for my family.
My daughter was sobbing next to me yesterday reading her passages out loud & saying "I've never felt so understood."
Well alrighty then-I see more book purchases in my future.
❤️💔
There is a lot to grieve–individually & communally, personally & politically.
Today’s #WCDHT with @MarisaReneeLee helped me understand how grief is inextricably linked to love, forgiveness, anger & joy.
As usual: Everything’s about everything.
Listen at apple.co/3Ij6AfC
Sandy Morris retweeted
Can this be leveraged for neurology, too, please?
This Post is from an account that no longer exists. Learn more
Sandy Morris retweeted
Sending a little duckling energy to each of you & specially to @leanne_yacyshyn @EvanCampa @bsw5020 @JenSue2000 @sairysays @SarahNauser @sandymorris333 @SethPoling10 @SteveGleason – at Colorado, USA
Even if you don't have a terminal disease, don't make the mistake of taking this precious life for granted ❤️
#GratefulHeart
Fun Fact: my mama gets everyone in her life a gift each month that she makes it to as a thank you for keeping her alive/purposeful.
It’s as if she doesn’t know that SHE is the gift ??💫 @sandymorris333