@JCIS
 Leeds, England
Joined August 2010
  • Tweets220
  • Following134
  • Followers98
34Media
To mark the UK CF Trust's 60th Anniversary, Leeds Adult CF team at St James’s University Hospital collectively ran and cycled 4714 miles. They have raised an amazing £1,676 to date! Thank you to everyone involved, in particular Dr Daniel Peckham and Jason Swarbrooke.
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RAF couple launch campaign for adults with cystic fibrosis to get free prescriptions Anyone who has a child with CF in England now, will be affected by this issue when their child turns 18, so please share & sign the petition ⬇️ petition.parliament.uk/petit… shropshirestar.com/news/heal…
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Share your CF meds photos and this petition link so that adults with CF don't have to pay for their prescriptions anymore - in line with other chronic diseases PETITION LINK ⬇️ petition.parliament.uk/petit… @ZanzibarSmith @SKIHUNTERR @JohnsonMNicola @OliDillon @thevftos @CFcarer

Petition: Free prescriptions for all cystic fibrosis (CF) patients

CF patients should not have to pay for drugs that keep them alive. The Government must make all CF patients eligible for a medical exemption certificate. The exemption list was created in 1968, and...

petition.parliament.uk
Zoey@_ZoeyJones_10 Mar 2023
This is just 1 -2 months worth supply of meds for my 4 year old with Cystic Fibrosis. Pescriptions for adults with CF should be free. Make changes now for adults living with CF and for our children and future generations 🙌 ✨️ 👌 😀 #cysticfibrosis petition.parliament.uk/petit…
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Super exciting new job opportunity @CFLeeds. This is for a Band 7 Cystic Fibrosis Diabetic Nurse Specialist (what a mouthful). This role will be vital in supporting the existing team to manage our diabetic patients. beta.jobs.nhs.uk/candidate/j…
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We have places available for the Great North Run 2023 🏃🏃‍♀️ Email us today to reserve your spot and run for Cystic Fibrosis Care 💙💚
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Jess Spoor retweeted
Andrew@Andyassert20 May 2022
On behalf of her family, it fills me with great sorrow to announce that last week we lost our dear friend, our CF sister Nubi (@_nxjx_). Nubi passed after losing her battle with Liver disease. She had lots of friends on twitter so wanted to let the community know. @CFAware
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We know treatments may feel like a burden. We like to make sure we have tried and tested how these things feel. Today Rachael tried the sinus nebuliser with hypertonic saline. Let us know if we can help you with any sinus related issues. #cysticfibrosis #sinuscare #physiotherapy
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leedshospitalscharity.enthus… On June 4th 2022 @CFLeeds have decided to punish themselves to raise money for the Ward!! We will be walking the 3 yorkshire peaks, 26 Miles in under 12 hours. Click the link to help make a difference to CF treatment and care provided in Leeds 🏃‍♂️⛰️
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Today, the European Commission approved the label extension of our fourth #cysticfibrosis medicine. This marks an important step towards our goal of treating all people with CF. Read more: global.vrtx.com
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Please tag anyone else whose account we don't know.... Thank you thank you thank you @CFLeeds @yorkhullcf @LTHTPaedPhysio @gallowayadam @WardL30LCH @JCIS
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A HUGE thank you to our incredible fundraisers who have challenged themselves for CF: Kate T, @yorkhullcf @CFLeeds @LTHTPaedPhysio Dan F, Harrison G, Sonja & Gerrit, Walter & Christina, Dr Pippa, @JCIS, Botticelli Bikers & Pat 🚴‍♀️ We couldn’t have done it without you! #Cycle4CF
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Jess Spoor retweeted
Carrie@CarrieRoot8928 Sep 2013
Replying to @JCIS
@JCIS @amyh18x #bestfriends #cuc
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1 week to go till Challenge Day,🎉 28th June, join @yorkhullcf @CFLeeds @WardL30LCH @JCIS and many more who have been cycling hard for #CysticFibrosis this month Donate to take part (link in bio) and join in the fun using #Cycle4CF RT, like and tag to help spread awareness!
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If you can please retweet and tag your friends to help us raise awareness 🙂@kimandsimonp @CFLeeds @drsaledyer @nhsCFwarriormum @JCIS @Beam_CF @CF_Exercise @CFAware @Joanneosmond @CfAdventurers @MotherhoodvsCF #cysticfibrosis
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Check out our amazing supporter Jess Spoor @JCIS talking about life with CF during lockdown and the incredible fundraising she's doing for our Virtual Run!🌞 bit.ly/2VPibva
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Thanks to Jess Spoor for encouraging others to join our Virtual Run🏆 Jess achieves so much in spite of her CF, she is a true inspiration to us all! 🥳 Donate and join Jess on 25th April to run and help us raise money for our CF Care Covid 19 Grants 🏃‍♀️ justgiving.com/cystic-fibros…
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A big thank you to our CF home team...With masks 😷, gloves 🧤 and aprons they might look different! Our CF nurses are working hard to make sure patients are seen at home in the safest way possible, with the addition, starting last week, of a brand new car boot hand wash kit!
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Replying to @VertexPharma
@VertexPharma Ayden is having to expose his vulnerable side after fighting so hard and being a warrior with #cf to help get drugs to save his life It's my turn.... #saveayden #trikafta #selfie #aydensmum it's your turn...
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Jess Spoor retweeted
Joe Root
@root663 Sep 2019
Donations of £5 between now and 8th September will count as 1 entry into a draw to win 2 hospitality tickets to Day 3 of the Oval Ashes Test. Multiples of £5 means more chances to win! Please ensure contact details are attached! justgiving.com/Jess-Spoor

Jess's C2C Cycle - while addicted to oxygen

Help Jess Spoor raise money to support Cystic Fibrosis Care

justgiving.com
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Jess Spoor retweeted
Carrie@CarrieRoot893 Sep 2019
Donations of £5 between now and 8th September will count as 1 entry into a draw to win 2 hospitality tickets to Day 3 of the Oval Ashes Test. Multiples of £5 means more chances to win! Please ensure contact details are attached! justgiving.com/fundraising/j…

Jess's C2C Cycle - while addicted to oxygen

Help Jess Spoor raise money to support Cystic Fibrosis Care

justgiving.com
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