Jess Spoor retweeted
To mark the UK CF Trust's 60th Anniversary, Leeds Adult CF team at St James’s University Hospital collectively ran and cycled 4714 miles.
They have raised an amazing £1,676 to date!
Thank you to everyone involved, in particular Dr Daniel Peckham and Jason Swarbrooke.
My number has arrived for the GNR 2023 😬
I will be running/walking with Frank the tank (my oxygen), Carl, Jack, Daniella , Simon, & Jenny💪
justgiving.com/page/jess-spo…
Running for @cf_care 💙💚
Jess Spoor retweeted
RAF couple launch campaign for adults with cystic fibrosis to get free prescriptions
Anyone who has a child with CF in England now, will be affected by this issue when their child turns 18, so please share & sign the petition
⬇️
petition.parliament.uk/petit…
shropshirestar.com/news/heal…
Jess Spoor retweeted
Share your CF meds photos and this petition link so that adults with CF don't have to pay for their prescriptions anymore - in line with other chronic diseases
PETITION LINK
⬇️
petition.parliament.uk/petit…
@ZanzibarSmith @SKIHUNTERR @JohnsonMNicola @OliDillon @thevftos @CFcarer
This is just 1 -2 months worth supply of meds for my 4 year old with Cystic Fibrosis.
Pescriptions for adults with CF should be free. Make changes now for adults living with CF and for our children and future generations 🙌 ✨️ 👌 😀
#cysticfibrosis
petition.parliament.uk/petit…
@facebook please help me!! How can my mum regain access to her account when someone has hacked in and changed her email and telephone number?? With out the new email and telephone number it won’t allow her to get back in. This is rubbish and there is no way to contact you to help
@facebook can you offer any help? Doesn’t seem right that people can loose access to there accounts and then get no support other than the links to follow.
Jess Spoor retweeted
Super exciting new job opportunity @CFLeeds. This is for a Band 7 Cystic Fibrosis Diabetic Nurse Specialist (what a mouthful). This role will be vital in supporting the existing team to manage our diabetic patients. beta.jobs.nhs.uk/candidate/j…
Jess Spoor retweeted
We have places available for the Great North Run 2023 🏃🏃♀️
Email us today to reserve your spot and run for Cystic Fibrosis Care 💙💚
US company @VertexPharma is charging up to $310k a year for lifesaving #cysticfibrosis medicine - leaving thousands to suffer & die without treatment. I've just signed this petition demanding global access to CF drugs now - join me & add your name! justtreatment.org/cf-drugs-f…
Jess Spoor completed the Great North Run Half! Time 03:09:51 (UNOFFICIAL) track.rtrt.me/e/GR-NORTH-202… gnr2022 – at Newcastle, England
Jess Spoor crossed 13 Mile. Time 03:08:40, pace 14:52 min/mile, est. finish 3:07 pm track.rtrt.me/e/GR-NORTH-202… gnr2022 – at Newcastle, England
Jess Spoor crossed 11 Mile. Time 02:38:57, pace 15:02 min/mile, est. finish 3:06 pm track.rtrt.me/e/GR-NORTH-202… gnr2022 – at Newcastle, England
Jess Spoor crossed 10 Mile. Time 02:23:56, pace 14:36 min/mile, est. finish 3:06 pm track.rtrt.me/e/GR-NORTH-202… gnr2022 – at Newcastle, England
Jess Spoor crossed 15K. Time 02:14:01, pace 08:11 min/km, est. finish 3:05 pm track.rtrt.me/e/GR-NORTH-202… gnr2022 – at Newcastle, England
Jess Spoor crossed 9 Mile. Time 02:09:48, pace 15:23 min/mile, est. finish 3:06 pm track.rtrt.me/e/GR-NORTH-202… gnr2022 – at Newcastle, England
Jess Spoor crossed 8 Mile. Time 01:54:25, pace 15:15 min/mile, est. finish 3:04 pm track.rtrt.me/e/GR-NORTH-202… gnr2022 – at Newcastle, England
Jess Spoor crossed 7 Mile. Time 01:39:11, pace 14:07 min/mile, est. finish 3:03 pm track.rtrt.me/e/GR-NORTH-202… gnr2022 – at Newcastle, England
Jess Spoor crossed 10K. Time 01:28:05, pace 09:30 min/km, est. finish 3:03 pm track.rtrt.me/e/GR-NORTH-202… gnr2022 – at Newcastle, England
Jess Spoor crossed 6 Mile. Time 01:24:49, pace 14:38 min/mile, est. finish 3:02 pm track.rtrt.me/e/GR-NORTH-202… gnr2022 – at Newcastle, England
Jess Spoor crossed 4 Mile. Time 00:55:33, pace 16:11 min/mile, est. finish 2:59 pm track.rtrt.me/e/GR-NORTH-202… gnr2022 – at Newcastle, England
Jess Spoor crossed 5K. Time 00:41:06, pace 09:07 min/km, est. finish 2:50 pm track.rtrt.me/e/GR-NORTH-202… gnr2022 – at Newcastle, England