@cftrust

We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.

 United Kingdom
cysticfibrosis.org.uk
Joined February 2009
  • Tweets32.9K
  • Following4.2K
  • Followers26K
5.3KMedia
It's #HelplinesAwarenessDay, a great opportunity to remind you that for anyone looking for information or support with any aspect of #cysticfibrosis, our friendly Helpline team are here for you. ☎️ Plus, you can now reach us via WhatsApp!
Chat with our Helpline. Call 0300 373 1000, Monday–Friday 10am–4pm. Email: helpline@cysticfibrosis.org.uk. Chat with us on Facebook, Twitter or Instagram. Message us on WhatsApp on 07361 582053.

ALT Chat with our Helpline. Call 0300 373 1000, Monday–Friday 10am–4pm. Email: [email protected]. Chat with us on Facebook, Twitter or Instagram. Message us on WhatsApp on 07361 582053.

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Cystic Fibrosis Trust retweeted
UCB News@UCBNewsTeam
Jul 27
A charity is urging the government to take action to ensure clean air policies are high up on the agenda. UCB News reporter Lucy Baxter spoke to Kieran Earlam, from @cftrust about how poor air quality can impact those living with respiratory conditions 👇 timbre-player.sharp-stream.c…
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Cystic Fibrosis Trust retweeted
NIHR BioResource@NIHRBioResource
Jun 9
It’s #CFWeek with @cftrust. 1 in 25 carry the CF gene & 11,000+ people in the UK live with cystic fibrosis. #DCYPHR is advancing research, but we need you. Join with your child (0–15) via the link in our bio & give a quick spit sample: bit.ly/463GCdX #CysticFibrosis
Over 11,000 people in the UK live with Cystic Fibrosis, highlighted during CF Week from June 8th to 14th.

ALT Over 11,000 people in the UK live with Cystic Fibrosis, highlighted during CF Week from June 8th to 14th.

Cystic fibrosis affects both adults and children, impacting lungs and digestion as a lifelong, life-limiting condition.

ALT Cystic fibrosis affects both adults and children, impacting lungs and digestion as a lifelong, life-limiting condition.

NIHR and NHS invite adults and children with cystic fibrosis to join CF BioResource for research via hospitals or D-CYPHR online.

ALT NIHR and NHS invite adults and children with cystic fibrosis to join CF BioResource for research via hospitals or D-CYPHR online.

Invitation to join D-CYPHR study for children aged 0-15, emphasizing all health conditions welcome and contribution importance.

ALT Invitation to join D-CYPHR study for children aged 0-15, emphasizing all health conditions welcome and contribution importance.

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Cystic Fibrosis Trust retweeted
Charlie Merriman (Chazingdra)@Chazingdra
Jun 8
🔴 LIVE NOW kicking off #CFweek on stream! Huge thanks to @cftrust for sending me some materials! 💛 youtube.com/live/LftnP0Ky9I0…
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Cystic Fibrosis Trust retweeted
Charlie Merriman (Chazingdra)@Chazingdra
Jun 2
*YELLOW* Pokémon activity ideas for the FIRST EVER Pokémon Cystic Fibrosis Awareness Week, 8-21 June! 🤩 Pokémon Champions, Shiny hunting, playthroughs, nuzlockes, Pokopia - whatever you do, do it in yellow! 💛 And share it with #CFweek 🔁 @cftrust @CannedWolfMeat
Charlie Merriman (Chazingdra)@Chazingdra
May 8
🚨 ANNOUNCING THE FIRST EVER POKÉMON CYSTIC FIBROSIS AWARENESS WEEK! 🚨 8-21 June • YELLOW Pokémon • Hosts: me & @CannedWolfMeat Whether you’re creating content, streaming or just taking part for fun, it would mean the world to make noise about CF 💛 🔁 Please RT! #CFweek
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Cystic Fibrosis Trust retweeted
David Turner@GreatStrides65
Jan 22
A bid shout out for a mate taking on the @marathonDsables in aid of @cftrust @DSAInfo & @mariecurieuk. All a bit bonkers, really. Please support if you can givewheel.com/fundraising/12…
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Cystic Fibrosis Trust retweeted
LifeArc@lifearc1
13 Nov 2025
Patient voices have been involved at every stage of establishing a UK-wide network of research hubs improving how lung infections are managed. Read more about how we work with patients: lifearc.org/work-with-us/pat… @cftrust
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Cystic Fibrosis Trust retweeted
James D Chalmers
@ProfJDChalmers
5 Oct 2025
I had a fabulous time at the UK Cystic Fibrosis conference this week Talking about “one bronchiectasis” and the potential for treatments we are developing in bronchiectasis to help people with CF Also great to catch up with amazing work by @lifearc1 and @cftrust
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Cystic Fibrosis Trust retweeted
ArcturusRx@ArcturusRx
12 Sep 2025
We are proud to support and attend the @cftrust's UK Cystic Fibrosis Conference, taking place on October 1-2, 2025. Conference information can be accessed here: cysticfibrosis.org.uk/about-… #RareDiseases #CysticFibrosis #CF #CFTR #mRNA #mRNATherapies #mRNATherapeutics #Arcturus
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Cystic Fibrosis Trust retweeted
Pryor Marking@PryorMarking
18 Aug 2025
👟 Team Pryor are on the move! ➡️ 5k or 10k for @cftrust ➡️ 1 million steps for @DiabetesUK Every step helps change lives 💜💙 Support their challenges & read more 👉 pryormarking.com/stepping-up… #TeamPryor #CharityChallenge #LifeUnlimited #DiabetesUK #CysticFibrosisTrust

Stepping up for Charity

At Pryor, supporting good causes has always been part of who we are. As a charitable trust, we don’t just manufacture world-class marking and traceability solutions, we also take pride in giving back...

pryormarking.com
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BSRA & @cftrust form partnership to help people with Cystic Fibrosis to live longer, healthier lives. Read more - bsra.org.uk/cystic-fibrosis-…
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🫁 It's #CFWeek - this @cftrust campaign raises awareness of the daily realities of living with #cysticfibrosis (CF) 👩🏽‍⚕️We examine how #biofilms present a major problem for those living with CF and highlight new treatments and tools being developed 🔎tinyurl.com/53e2n938
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Cystic Fibrosis Trust retweeted
Angus Baskerville@AngusBaskervil1
9 Feb 2025
I’m thrilled to win 1st place on "Coventry's Got Talent" last night. A truly humbling experience, made even more meaningful by supporting two incredible inspirational charities—@cftrust & @MindCharity. Please consider supporting their amazing work #talentshow #charity #magic
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🔬 Did you know that since 2013 we’ve funded over 180 early career researchers, ensuring the brightest and best young scientists have the opportunity to work in CF research? ➡️🧵 #cysticfibrosis #earlycareerresearchers
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🔗 If you're an ECR and want to get involved, click on the link to sign up to the first webinar on February 18. ➡️ ow.ly/toA550UOFk0 ➡️🧵
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You can also read the advice our panel gave at our Early Careers Researcher conference last year. ➡️ ow.ly/MBOX50UOFjY #researchwednesday #earlycareerresearchers #CFresearch

Navigating a career pathway: advice from CF researchers

This month we’re launching a ‘Coffee and Careers’ Early Career Researcher webinar series. This will be a series of webinars where an early career researcher chats to a more senior researcher about...

cysticfibrosis.org.uk
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💻 This year we're launching a new webinar series for our early career researchers, giving them the opportunity to chat to more senior researchers about their careers and top tips for working in CF research. ➡️🧵
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In January's episode of #CForYourself we're talking all about staying active with cystic fibrosis. Lucy is joined by Matt, a personal trainer and running coach with CF, and physio Ruth, who is based at the Leeds Adult CF Centre. 🎧 Listen now wherever you get your podcasts.
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New for FeBrewary 2025 ☕ Go brew-free throughout FeBrewary and donate the money you would have spent on your fancy coffee. Sign up to fundraise this FeBrewary and download your own brew-free tracker – and so much more! Register today ➡ ow.ly/G1L950ULWav
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✨ Fundraiser Friday ✨ Thank you to Alix, who turned a vinyl mix-up into a fundraiser! After receiving 20 copies of @jamesblunt's Back to Bedlam vinyl by mistake, she sold them and has raised £240 so far! Huge thanks to Alix and everyone who supported her 💛
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Genetic therapies are a new type of treatment that are being developed for #cysticfibrosis. They work in a completely different way to current CFTR modulator medicines. Swipe to read three ways you can find out more about genetic therapies. ➡️ ow.ly/9iWl50UKXz7
A yellow logo with black text says 'Cystic Fibrosis Trust' sits at the top of the image. In the centre, there is dark blue text on a light blue background: Genetic therapies and cystic fibrosis. Three ways to find out more about what they are, whether they might benefit you, and the latest news on genetic therapy clinical trials. There is a white circle logo with blue text and a microscope that says 'Research Wednesdays' at the bottom.

ALT A yellow logo with black text says 'Cystic Fibrosis Trust' sits at the top of the image. In the centre, there is dark blue text on a light blue background: Genetic therapies and cystic fibrosis. Three ways to find out more about what they are, whether they might benefit you, and the latest news on genetic therapy clinical trials. There is a white circle logo with blue text and a microscope that says 'Research Wednesdays' at the bottom.

Search ‘genetic therapies resources’ on our website to view information, an FAQ, and a glossary explaining some of the jargon. Watch clips on our 'CF genetic therapies' playlist on YouTube – from expert explainers to comments from the CF community. Visit our Trials Tracker to check out the status of genetic therapy clinical trials in the UK – be sure to ‘filter’ the results for genetic therapies.

ALT Search ‘genetic therapies resources’ on our website to view information, an FAQ, and a glossary explaining some of the jargon. Watch clips on our 'CF genetic therapies' playlist on YouTube – from expert explainers to comments from the CF community. Visit our Trials Tracker to check out the status of genetic therapy clinical trials in the UK – be sure to ‘filter’ the results for genetic therapies.

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