@Flutterby4CF

Cystic Fibrosis Charity raising awareness and funds to support research. 100% of donations currently go to UK CF Gene Therapy Consortium

 West Dunbartonshire, Scotland
Joined February 2015
  • Tweets1.4K
  • Following229
  • Followers212
115Media
***URGENT FUNDRAISING APPEAL*** #livehopebreath #cf #cffamily #charity #inthistogether uk.virginmoneygiving.com/cha…
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FlutterbyFUNdraisers retweeted
Ali Dillon 💙 NHS@Alidilly29 Jan 2021
If you need beds freed up @MattHancock why not follow the devolved nations lead and allow England to follow FDA licensing for Kaftrio 1,000s more wld be eligible you are failing CF patients in the pandemic its #inequality #EnglandNeedsKaftrio4All #KaftrioEqualityUK
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delighted to be one of the chosen charities for this incredible challenge.
Dr Paul Hamilton@_PaulHamilton23 Aug 2020
Some friends and I have chosen eight charities (close to our hearts)... Between now and the end of 2021 we will attempt eight separate fundraising cycles... 🚴🏻‍♂️👍🏻
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Amazing news 💜🌹
Quest For A Cure@CFQuestForCure2 Jul 2020
'Life-transforming' cystic fibrosis wonder drug coming to Scotland soon thenational.scot/news/185549…

'Life-transforming' cystic fibrosis wonder drug coming to Scotland soon

A DEAL to make a life transforming wonder drug for cystic fibrosis patients available in Scotland is “currently being finalised”, the National has learned.

thenational.scot
FlutterbyFUNdraisers retweeted
Kate Eveling@thevftos5 Jun 2020
Guys I need some help for an upcoming YouTube video for CF week! This applies to anyone who has #cysticfibrosis or has a kid with CF or a partner with CF! I am looking for a short video (5-20seconds) telling me a small fact about your life with CF... (1/3) @CFAware @cftrust
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FlutterbyFUNdraisers retweeted
Quest For A Cure@CFQuestForCure25 Apr 2020
👇👇#staysafe this is excellent advice 👇👇
This Post is from an account that no longer exists. Learn more
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Anybody else out star gazing tonight? Our sky's are clearer than I've ever seen them here
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FlutterbyFUNdraisers retweeted
Jason Leitch@jasonleitch17 Apr 2020
The NHS is open…👇🏼
Scottish Government
@scotgov17 Apr 2020
Don't ignore the early warning signs of serious conditions. If you or your child are unwell with non-coronavirus symptoms, it's important to seek medical help by contacting your GP. If your symptoms worsen out of hours, call 111. In an emergency, dial 999.
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Our very own hero taking time out for the kids #cf #eventsbytlc #batman #happyeaster facebook.com/453092018109376…

Events by TLC

Happy Easter :)

facebook.com
Just stay home...PLEASE – at Alexandria, Scotland
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The issue now appears to be fixed. – at Alexandria, Scotland
Maggieg@M44GYG9 Apr 2020
Replying to @scotgov
@scotgov @jasonleitch @jackiebmsp been informed that those in Scotland (not sure about rest of UK) who are texting their CHI number to 07860 064525(number giving in the official letter) will not be successful if you are on EE mobile network. Are you aware of this?
Get involved. raffall.com/15171/enter-raff… – at Alexandria, Scotland
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Please RT our family and friends need these urgently @piersmorgan @Lord_Sugar
FlutterbyFUNdraisers@Flutterby4CF30 Mar 2020
***URGENT FUNDRAISING APPEAL*** #livehopebreath #cf #cffamily #charity #inthistogether uk.virginmoneygiving.com/cha…
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We are desperately looking for funding. Does anyone know of any grants we can apply for? #COVID19 #cf #cffamily #cfcharity #fundraising
FlutterbyFUNdraisers@Flutterby4CF30 Mar 2020
***URGENT FUNDRAISING APPEAL*** #livehopebreath #cf #cffamily #charity #inthistogether uk.virginmoneygiving.com/cha…
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Please RT or friends and family need these urgently @GradySNP @AlexNeilSNP @neilgraysnp @DavidLinden @KennyMacAskill @StewartMcDonald @Stuart_McDonald @AnneMcLaughlin @CMonaghanSNP @DavidMundellDCT @GavNewlandsSNP @kirstenoswald @ChrisStephens @alisonthewliss
FlutterbyFUNdraisers@Flutterby4CF30 Mar 2020
***URGENT FUNDRAISING APPEAL*** #livehopebreath #cf #cffamily #charity #inthistogether uk.virginmoneygiving.com/cha…
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Please RT Our family and friends need these urgently @AmyCallaghanSNP @DrLisaCameronMP @amcarmichaelMP @wendychambLD @DougChapmanSNP @joannaccherry @ronniecowan @AngelaCrawley30 @MartynDaySNP @MartinJDocherty @DaveDooganSNP @david_duguid @marionfellows @MargaretFerrier
FlutterbyFUNdraisers@Flutterby4CF30 Mar 2020
***URGENT FUNDRAISING APPEAL*** #livehopebreath #cf #cffamily #charity #inthistogether uk.virginmoneygiving.com/cha…
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Please RT or friends and family need this @GaryBarlow @GordonRamsay @Charles_MDuke @KToogie @jennyagutter @richardm56 @dunmore_says @RogerBlack400 @MartinSLewis
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Please RT our family and friends need these urgently @VertexPharma @NicolaSturgeon @RuthDavidsonMSP @EmmaHarperMSP @ProfTomkins @HumzaYousaf @HannahB4LiviMP @MhairiBlack @IBlackfordSNP @KirstySNP @StevenBonnarSNP @AndrewBowie_MP @DeidreBrock @AlanBrownSNP
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