@EndoEdition

🔅 Reliable endometriosis facts, research, and awareness 🔅 Advocating the largest women's health crisis of our time, also affecting trans & non-binary.

 West Midlands, England
instagram.com/endoedition
Joined April 2018
  • Tweets539
  • Following502
  • Followers790
44Media
BLOG #5 QUESTION: IF ‘COMPLETE EXCISION’ IS THE GOLD STANDARD FOR ENDOMETRIOSIS TREATMENT, WHY IS IT SO UNCOMMONLY OFFERED? topendodoc.com/2017/08/22/bl…

BLOG #5 QUESTION: IF ‘COMPLETE EXCISION’ IS THE GOLD STANDARD FOR ENDOMETRIOSIS TREATMENT, WHY IS...

Following is a list of factors that negatively impact the use of ‘complete excision’ to treat endometriosis. Most Gynecology (gyn) training programs continue to teach that ‘endo’ is a chronically r…

topendodoc.com
4
5
1
17
31,000 more signatures needed before Jan 29th. We need #MentrualLeave debated in parliament. Introduce Statutory Menstrual Leave for People with Endometriosis & Adenomyosis petition.parliament.uk/petit…

Petition: Introduce Statutory Menstrual Leave for People with Endometriosis & Adenomyosis

We call on the UK Government to introduce statutory paid menstrual leave of up to 3 days per month for people with conditions such as endometriosis and adenomyosis, following the model introduced in...

petition.parliament.uk
Sky News
@SkyNews4 Sep 2025
Menstrual leave campaigner: 'At 23 I was hospitalised three months in a row' Campaigner Michelle Dewar tells @skysarahjane that women who have a medical diagnosis related to severe period pain should be entitled to paid menstrual leave. 📺 Sky 501 trib.al/Ldqpoo4 #SJUK
72
We call on the UK Government to introduce statutory paid menstrual leave of up to 3 days per month for people with conditions such as endometriosis and adenomyosis, following the model introduced in Portugal in 2025. Help us get to 100,000 signatures 📝 petition.parliament.uk/petit…

Petition: Introduce Statutory Menstrual Leave for People with Endometriosis & Adenomyosis

We call on the UK Government to introduce statutory paid menstrual leave of up to 3 days per month for people with conditions such as endometriosis and adenomyosis, following the model introduced in...

petition.parliament.uk
3
68
This is our pain. Powerful speech, thank you @PearseDoherty. Post via @Kathleen_M_King. #endometriosis #adenomyosis
Pearse Doherty
@PearseDoherty15 Jul 2025
We’ve listened to thousands of women suffering with endometriosis across Ireland who shared their stories and experiences - struggling in silence and denied proper healthcare at home. The Minister let these women down tonight. We won’t stop until proper healthcare is delivered.
1
2
62
Working women are too often left to deal with endometriosis alone. But big changes could be coming... Via @Kathleen_M_King theconversation.com/working-…

Working women are too often left to deal with endometriosis alone. But big changes could be coming

Left unsupported, endometriosis can bring misery for the women who suffer it – and it can damage their careers and workplace wellbeing.

theconversation.com
3
72
I spoke with the amazing @AnitaNnekaJones about her long journey with endometriosis as says she was ‘gaslit by doctors for 14 years’ independent.co.uk/life-style…

Sports presenter Anita Jones says she was ‘gaslit by doctors for 14 years’

The sports broadcaster said doctors dismissed her excruciating pain for years

independent.co.uk
2
2
2,119
waited 18+ months for a referral, diagnosed with a serious mental illness, had to move in with my parents because I wasn’t able to work enough to pay rent, move meant I was dropped from local services & am back at square one & can work less than ever. what a worm this man is
Saul Staniforth@SaulStaniforth16 Mar 2025
Wes Streeting says there is overdiagnosis of mental health conditions. #bbclaurak
102
413
5
4,692
217,374
EndoEdition retweeted
hate zine@hatezine17 Mar 2025
Any journalist or commentator talking about PIP being easy to get should see for themselves how hard it is. Far too many people talking about things they know nothing (and don’t care) about.
Snowleopardess 💚@snowleopardess16 Mar 2025
If you think PIP is "too easy" to get, I suggest you take a look at a PIP claim form. Then look up how hard it is to get enough "points" to qualify. Finally, take a look at any welfare rights forum to see how many people with serious illness and disability have been turned down.
1
5
174
So excited to be starting the next stage of my PhD which will involve interviewing those with a lived experience of #endometriosis about their interactions with primary health care physicians. If you are interested please drop a message to email on poster or scan the QR code 🎗️
7
19
1,231
"The delay in my care has cost me some of my major organs." Waiting lists for gynaecology appointments across the UK have more than doubled since February 2020, BBC research has revealed. @BBCNews bbc.co.uk/news/articles/clyv…
1
1
2
116
Records show around three-quarters of a million (755,046) women's health appointments are waiting to happen - up from 360,400 just before the pandemic. This would suggest around 630,000 people - at the very least - are on the list to be seen for problems.
1
39
Annalise Weckesser "UK folks - if know a young person (10-18 years) who experiences *period pain* - there is this amazing study being conducted by my friend and colleague @UniofOxford....." @EndoSRN @VQ_Birmingham phc.ox.ac.uk/research/groups…
2
6
321
EndoEdition retweeted
The BMJ
@bmj_latest23 Jun 2024
"Studies of how quickly doctors interrupt patients find that the median time is 11 seconds. Nobody feels listened to in 11 seconds." @Richard56 discusses the healing power of being listened to bmj.com/content/385/bmj.q135…

Listening is healing, listening is love

Richard Flanagan, a marvellous writer, describes in his recently published memoir Question 7 how he was the favourite of his grandmother Mate. Her smell repelled him, and he didn’t like the way she...

bmj.com
9
137
16
249
47,428
A life well lived. Rest Jahmby🕊️
EndoEdition@EndoEdition4 Jun 2024
Deeply saddened to hear Fyah Mummah Jahmby Koikai @JahmbyKoikai has passed away. An incredible person whose advocacy and dedication will continue to inspire us all. 🕊 For more advocacy regards endometriosis beyond the pelvis follow @XtraNotRare. This is a whole body disease.
3
6
51
9,360
Deeply saddened to hear Fyah Mummah Jahmby Koikai @JahmbyKoikai has passed away. An incredible person whose advocacy and dedication will continue to inspire us all. 🕊 For more advocacy regards endometriosis beyond the pelvis follow @XtraNotRare. This is a whole body disease.
2
1
1
12
9,991
Fyah Mummah Jahmby Koikai @JahmbyKoikai interview with Alan @kasujja @bbcworldservice June 20th 2018 bbc.co.uk/programmes/p06blj5…

BBC World Service - Newsday, Breaking the silence

The taboo disease causing suffering for millions of women and schoolgirls.

bbc.co.uk
1
153
☝🏻Reposting this clip from 2018: Kenyan DJ @JahmbyKoikai suffers from a form of thoracic endometriosis and is an advocate to many suffering with this disease. "This needs to be heard by everyone and we shall overcome this." Discussion by Victoria's Lounge with @VickyRubadiri.
3
184
Our hearts are shattered by the loss of @JahmbyKoikai, an extraordinary endometriosis advocate for all. She was a warrior in every sense of the word. Her passion, strength, & relentless dedication inspired us all and touched the lives of so many in our community and beyond.
1
13
2
37
1,819
BREAKING NEWS Njambi (Jahmby) Koikai alias Faya Mama has passed away😢💔 Mary Jahmby Koikai passed away following a long fight with endometriosis. Her friends and family have confirmed that she died in hospital on Tuesday morning. Rest In Peace🕊️
131
131
14
1,182
280,742
Research Opportunity👇👇 This study asks questions on your expectations and experiences of treatments for endometriosis and adenomyosis. Those living with either or both conditions are invited to take part at: forms.office.com/pages/respo… #UniversityOfLiverpool #TEPEAstudy

Microsoft Forms

forms.cloud.microsoft
Hapangama Research Group@Hapangama_Lab1 Apr 2024
Do you have #endometriosis or #adenomyosis? You are invited to take part in research on treatments for endometriosis and adenomyosis, conducted by the #UniversityofLiverpool. This is an online questionnaire that will take 15 minutes to complete: forms.office.com/e/1QY213rJP… #TEPEA

Microsoft Forms

forms.cloud.microsoft
7
15
2,867
We're tackling healthcare disparities for people of color % the delayed diagnosis of endometriosis Despite widely cited statistics, they don't accurately represent communities of color. Rejected for funding, we're pursuing this research voluntarily, committed to inclusion 👇🏾
1
13
1
14
3,479
Load more