The Endometriosis Coalition works to raise awareness, promote reliable education and increase research funding for endometriosis • 501(c)(3)
Philadelphia, PA
Joined May 2017
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Happy Endometriosis Awareness month! Our goal this year is to spread accurate information about #endometriosis and stop the misinformation that causes harm to endo patients.
Our hearts are shattered by the loss of @JahmbyKoikai, an extraordinary endometriosis advocate for all. She was a warrior in every sense of the word. Her passion, strength, & relentless dedication inspired us all and touched the lives of so many in our community and beyond.
The entire community mourns her passing, and our prayers are with her loved ones. Jahmby's legacy will live on in the fight against endometriosis. #EndoWarrior
The Endometriosis Coalition retweeted
I will proudly wear this bracelet in solidarity with my #endometriosis patients. END ENDO! Perfect sentiment. Thanks to the special patient and mother who were buying for themselves, and got me one too ❤️ #endendo #gynsurgeon @theendoco @littlewordsproj
The Endometriosis Coalition retweeted
#Repost @megconnolly_ 🖤
“#1in10 women have Endometriosis. I am 1 in 10.
Approximately 9 years ago, I first heard the word “#Endometriosis” and quite literally fainted (twice) in the doctor’s office. The word encapsulating the chronic illness that explained my 10+ years..."
The Endometriosis Coalition retweeted
From the patient perspective, what does @JayRishe of @theendoco want to see investigated in regards to #endometriosis?
Here more in this #SWHRtalksEndometriosis webinar clip! Watch the full conversation online this month: ow.ly/2Qhx50QE3na #EndometriosisAwarenessMonth
Join us on 3/1 in NYC as we launch our official partnership with Little Words Project! Free to attend, but RSVP required here:
littlewordsproject.com/pages…
Our Associate Director Meghan Maloof Berdellans @megconnolly_ spoke with @Verywell Health sharing her 10-year-long journey from symptoms to diagnosis via laparoscopic excision surgery.
The sooner we start treating this as a full body disease, the better off we will be.
Our Associate Director Meghan Maloof Berdellans @megconnolly_ spoke with @Verywell sharing her 10-year-long journey from symptoms to diagnosis via laparoscopic excision surgery.
The sooner we start treating this as a full body disease, the better off we will be.
The Endometriosis Coalition retweeted
A great opportunity to see Below the Belt for free alongside NYU medical students & faculty. You'll also have the opportunity to ask questions in a post-screening panel discussion with NYU's Division Director of Minimally Invasive Gynecological Surgery Dr. Ted Lee & Shannon Cohn.
The Endometriosis Coalition retweeted
Jenneh Rishe, BSN, RN @JayRishe and founder of The Endometriosis Coalition Inc. @theendoco shares her #endometriosis story with us:
Jenneh's symptoms first appeared at age 27. What started first as cyclical pain around her period soon became persistence and severe.
The Endometriosis Coalition retweeted
After years of countless doctor appointments, tests, and procedures, Jenneh received an #endometriosis diagnosis. @JayRishe @theendoco
It takes a full health care team of experts to diagnosis and treat endometriosis, Jenneh adds. #SWHRtalksEndometriosis
The Endometriosis Coalition retweeted
Be your own best advocate, says Jenneh. @JayRishe @theendoco
"We're told that our symptoms are normal, and they’re not. Excruciating pain is never normal. Excruciating pain that keeps you from functioning is never normal."
The Endometriosis Coalition retweeted
Jenneh @JayRishe founded The Endometriosis Coalition Inc. @theendoco to create an advocacy and support space for individuals with #endometriosis.
#SWHRtalksEndometriosis
Learn more and get involved: theendo.co/
The Endometriosis Coalition retweeted
Because there is no cure for #endometriosis, it is critical that individuals are empowered throughout their journey with this chronic disease. Tune in to SWHR's #SWHRtalksEndometriosis webinar: ow.ly/7TS950Qolau
@zilahdi @JayRishe @PonceHealthSU @HopkinsMedicine @theendoco
The Endometriosis Coalition retweeted
Happening next week! Join SWHR and @zilahdi @JayRishe @PonceHealthSU @HopkinsMedicine @theendoco for an #Endometriosis webinar about the persistent gaps in disease diagnosis and treatment: ow.ly/OwYk50Qol9q #SWHRtalksEndometriosis
The Endometriosis Coalition retweeted
#Endometriosis has an average diagnostic delay of up to 6.7 years in individuals. #SWHRtalksEndometriosis
During the "Elevating Endometriosis" webinar learn more about closing these care gaps: ow.ly/7rNK50Qolkm @zilahdi @JayRishe @PonceHealthSU @HopkinsMedicine @theendoco
As an organization, it's part of our yearly rhythm to take some time off during the holidays. We like to use this time to be present with our loved ones and reflect on the work we've done in the past year.
As an organization, it's part of our yearly rhythm to take some time off during the holidays. We like to use this time to be present with our loved ones and reflect on the work we've done in the past year.