Improving the lives of people with Cystic Fibrosis.
Joined February 2016
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- Following1.1K
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CyFi Life retweeted
If you’re going through PIP, then this is where you should start! Get advice from a professional, and I highly recommend the lovely Sangeeta from the @cftrust
I wouldn’t have been successful if it wasn’t for her advice! ☺️
CyFi Life retweeted
In honor of #CFAwarenessMonth and #GiveBIG, on May 8th CF Yogi is holding an OPEN HOUSE in our online yoga studio! Join us for a FREE livestreamed yoga class open to the public, and learn about how yoga can help those with CF!
Sign up at zoom.us/meeting/register/915…
CyFi Life retweeted
And here it is, the moment you’ve all been waiting for! The final survey of #questioncf phase II surveymonkey.co.uk/r/Motivat… please complete and then retweet. Thank you!
CyFi Life retweeted
RTE's Dancing with the Stars judge Julian Benson won't give up role despite cystic fibrosis battle - Irish Mirror Online irishmirror.ie/showbiz/irish…
CyFi Life retweeted
Good luck to everyone at the protest today who are fighting for #LifeSavingDrugsNow for us lot with Cystic Fibrosis! Let’s hope @VertexPharma & @NHSEngland can finally agree on a decent price for ALL those super duper drugs that are in the pipeline🙏
@cftrust @CFAware @strawfie
CyFi Life retweeted
#Pilates...it's not yoga and it definitely isn't just for women gq-magazine.co.uk/article/cl…
CyFi Life retweeted
It's disappointing that many of us with chronic illnesses are generally advised to hide our conditions from potential employers or even high education applications.
What if we could turn that around and market our illnesses in a positive way?
1/
CyFi Life retweeted
❤️ This man.
📺 Jurgen Klopp visits Alder Hey Children's Hospital, to learn about the LFC Foundation’s MOVE project and meet one of the patients.
CyFi Life retweeted
This is so worth 5 minutes of your time. Such a mix of emotions when reading this thread.
Thanks @thefourthcraw for sharing it with us.
Staff like yourself are what make frequent hospital admissions so barrable ❤️
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CyFi Life retweeted
Honestly being the first student @Harvard to have #cysticfibrosis makes me so proud! And I'm glad that my admission has paved the way for others. All the activism and changes I push for will make it easier for future disabled students and I hope Harvard will admit more! 💖
CyFi Life retweeted
I have just found out that 7 people with CF ran the 2018 London Marathon and I think it is an awesome statistic #beatCF
CyFi Life retweeted
It has been 23 years or 8,500 days since I’ve missed a treatment. That’s about 20,000 treatments or 800,000 minutes of aerosol therapy & vest treatments. During that time, I’ve taken 350,000 pills without missing a dose. You never want to say “What if?” #beatcf #CysticFibrosis
CyFi Life retweeted
DEAR TWITTER: I BLEW UP A BALLOON FOR THE FIRST IN MY LIFE (28 yrs). #thxorkambi @CFAware #cysticfibrosis #cf
CyFi Life retweeted
"There's a reason why people are the way they are & why they do the things they do" Thanks for inspiring us @TheBlondeEthos #cysticfibrosis – at City of London, London
CyFi Life retweeted
FREE WEBINAR: Sex, Intimacy & #cysticfibrosis. Register today tinyurl.com/sex-intimacy-CF #CF #cureCF #CFawareness
CyFi Life retweeted
aaronabyfightingtobreathe.wo…
Healthy Children Breakfast recipes! New link that work! @CFAware @cftrust @rymerster @CyFi_Life
CyFi Life retweeted
@CFAware @cftrust @rymerster @CyFi_Life
aaronabyfightingtobreathe.wo…
New blog on living an alkaline lifestyle #fightingtobreathe.
CyFi Life retweeted
Mental health services for people living with long-term physical health conditions launched : mentalhealthtoday.co.uk/ment…