@CureMND

Six people a day die with Motor Neurone Disease (#MND) / UK. @MHRAgovuk & @NICEcomms should conduct an Accelerated Review for existing treatments.

 Oxford
petition.parliament.uk/petitions/301033
Joined November 2019
  • Tweets1.9K
  • Following2.5K
  • Followers1K
62Media
MND-SMART launches in Southampton mnd-smart.org/news/mnd-smart…
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theguardian.com/science/2021…

Scientists link intense exercise with MND risk in some people

Those with a certain genetic makeup more likely to develop motor neurone disease, study confirms

theguardian.com
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JustGiving.com/Matt-jones88 Can you all please read this story, share and donate, thank you. @mndassoc @MNDManchester @mndeducation @JustGiving @mndresearch @MNDPatients @MNDA_WestYorks @mndcampaigns @ALSMNDAlliance @mndVIPteam @MNDScotland @CureMND @mndaeastsurrey

Matt and Neil are Rambling for Roger

Help Matt Jones raise money to support Motor Neurone Disease Association

justgiving.com
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Remembering my friend Elsie today. Elsie died while fighting so hard for a chance to access #Nurown to see if she would also respond. The broken system failed her despite a 100% fatal #ALS diagnosis. They left her to die. #BloodOnYourHands #PeterMarks @FDACBER @DrWoodcockFDA
elsie johnson@elsiejo2295594019 May 2020
pALS on NUROWN-WHEELCHAIR TO STANDING pALS DENIED ACCESS TO NUROWN-STANDING TO WHEELCHAIR SAME WINDOW OF TIME
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It supports a rapidly growing expanded access program. Its leaders are committed to URGENTLY finding treatments & cures. ALL DONATIONS go to research/treatments, NOT salaries. PLEASE encourage fundraisers, friends & family to donate.🙏🙏 #HealeyHope giving.massgeneral.org/donat…
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I still hear other orgs brought up. This can't be stressed enough!!! The CLEAR LEADER for #ALS treatment access/research is the @MGHNeurology Healey Center.  NO OTHER ORG COMES CLOSE. Uniting behind them advances ALS at all trial sites across the country. #PlatformTrial
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#GivingTuesday since it’s giving tuesday, if you could spare anything, during the current climate to help us raise funds to allow David to return to mexico for stem cell therapy 🤞🏼🙏🏼 #balmerbattlesmnd gofundme.com/f/bc469k-davids… @CalvinHarris @LewisCapaldi @kevinbridges86
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Approaching ✨50,000✨ If everyone who's signed our petition with @mndassoc and @MNDoddie5 got one other person to sign, we'd be a step closer to securing a vital debate in the UK Parliament. #United2EndMND Let's make it happen! 👇

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100,000 signatures 👏👊 Thank you to everyone who has signed our petition with @mndassoc and @MNDScotland - this means the petition will now be considered for a debate in parliament. It's not too late to add your name, every signature is important: petition.parliament.uk/petit…
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Bronstein, Gewirtz & Grossman, LLC Notifies Investors of Brainstorm Cell Therapeutics Inc. (BCLI) Investigation uk.finance.yahoo.com/news/br… via @Yahoo
Replying to @AlsChange @EuansCentre @UHSFT @MNDoddie5 @MNDScotland
Thank you for your message. There are no changes to the investigational medicinal compounds being tested in @mndsmart (trazodone & memantine). Best wishes.
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Cure MND retweeted
Cure MND@CureMND16 Jan 2020
Replying to @suvankarpal
@suvankarpal @EuansCentre @MeritCudkowicz Dear Dr Pal Thank you for the initiative. Is the first drug indicated below Namenda / Namzaric (Memantine & Donepezil)? What is the second drug on the platform trial? The first drug is already used to improve the (1/3)
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I cannot wait for the day that enough people are invested in the fight against ALS that a tweet saying “end ALS” can go viral alongside tweets about politics. On that day, this guy with ALS will get out of his wheelchair and dance like no one is watching.
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Context! Let's make sure we listen to Medical Doctors @BrainstormCell @AlsOklahoma @alsassociation @ALSMNDAlliance @CureMND #als #endals @alstexas @ALSTDI @ALSA_EC @alssac @alssac @ALSA_RockyMtn @alsnewstoday @ALSANorthernOH @ALSAlabama @ALSAIOWA @ALSAMA @ALSAUNY @ALSA_Nevada
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Cure MND retweeted
Vino@v1nnybhoy21 Dec 2020
#newpetition petition.parliament.uk/petit… Have a look, sign, share and retweet please folks. @Rob7Burrow @siferry8 @aconnolly91 @siobhancon1 @MNDoddie5 @DoddieWeir5 @DarbyRimmerMND @CureMND @jucojames @MarcFairbairn90 @MartinJ_MND @balmerbattlesm1 @StephenMoran7

Petition: The Government should explore options to make NurOwn available for MND

The Government should explore options to make NurOwn available on the NHS as a treatment for Motor Neuron Disease (MND). The provision of stem cell treatment should also be explored.

petition.parliament.uk
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#alstreatmentsnow Light a candle for #ALS #MND, Amyotrophic Lateral Sclerosis, an agonizing and deadly disease. We need treatments now !!! #NUROWN #AMX0035 @US_FDA @EMA_News Join this challenge and nominate other people @Emma_MacLennan @lynseymerritt @CureMND @emmccormick2005
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Still wrapping my head around the fact that Kev Sinfield is a couple of quid away from raising £2.5 million for his friend @Rob7Burrow. There are plenty of examples of poor leadership around but Kev is strong, loyal and selfless. Once a captain, always a captain. What a fella👏🏻
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I am trying to fundraise for my brother who has ALS and needs money to return for potential lifesaving treatment, struggling on the fundraising front due to COVID. This would help massively! @JeffreeStar 🤞🏼
Jeffree Star
@JeffreeStar5 Nov 2020
Who needs help today?? I’m going to pick 3 random people who retweet this and send them $3,000 ♥️ Love you guys
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