That's a wrap on ALS TDI's 2026 Leadership Weekend. 💜 Thank you to everyone who came to Boston for an incredible week of collaboration, connection, and ALS research. We're leaving more determined than ever.

The 2026 ALS TDI Summit has begun — a full day of ALS science from our researchers and collaborators. We look forward to hosting you in Boston or virtually for a full day!

Here's what the 2026 ALS TDI Summit looks like: a full day of ALS science, from TDP-43 modeling to AI-guided data science to a panel on hereditary vs. sporadic ALS. Virtual attendance is free. Join us: fundraise.als.net/alssummit/

Meet Pevindi, one of the newest members of our growing research team. At nine, she asked why some diseases have no cure. Today she's building stem cell models of C9orf72, one of the most common known genetic causes of ALS. Follow us to learn more about our researchers.

October is a big month: Leadership Weekend in Boston, two community golf fundraisers, and a virtual Town Hall on our expansion. The ALS TDI Summit on Oct 9 is free and streams online — a full day of updates on ALS research. Full lineup: als.net/als-events/upcoming/

Applications are open to run Grandma's Marathon with Team ALS TDI — full, half, or 5K, June 18–19, 2027 in Duluth. Grandma's sells out fast. A Team ALS TDI spot is your way in, and every mile funds ALS research. Apply today: fundraise.als.net/marathon/g…

We are deeply saddened by the loss of our friend Brooke Eby. Brooke talked about ALS with an honesty and humor that made people listen, and brought so many into the fight to end it. Her 2023 stand-up set at our White Coat Affair: youtube.com/watch?v=o2VE6RvH…

Michele is here to help — and so is our whole team. Whatever a person living with ALS needs at Leadership Weekend, we've got it covered. Comfort and care are our #1 priority. TODAY IS THE LAST DAY TO REGISTER. This is your sign: als.net/news/vip-concierge-l…

TOMORROW is the last day to register in person for ALS TDI's Leadership Weekend: Open House at our Watertown lab, the Research Summit, and the White Coat Affair gala. This is the moment → fundraise.als.net/leadership…

What happens when ALS research gets mapped? Where clinics are, who lives hours from one, and where ARC participants have lived across their whole lives. If you've filled out an ARC survey, this is where your data goes. Thank you. Watch the Town Hall: youtube.com/watch?v=0PvMZ6Ak…

Meet the people behind the research. Our scientists explaining their projects at last year's Summit poster session. They're back October 9 with new work. One week left to register in person. Summit: als.net/alssummit/ WCA: als.net/wca/

Our 2025 Annual Report is here — and for the first time, it's fully digital. See how your support advanced potential treatments, built better research tools, and laid the groundwork for our expansion. als.net/about-als-tdi/annual…

We are encouraged by the positive Phase 3 results for ulefnersen in FUS-ALS, and grateful to every trial participant who made them possible. Congratulations to the teams at Ionis and Otsuka — more evidence for treatments targeted to specific subsets of people with ALS.

At the ALS TDI Summit, hear from ALS TDI scientists and guest experts about promising new approaches across the field—and learn how ALS TDI's expansion will increase our capacity to pursue more of these opportunities. Read our blog to learn more: lnkd.in/eDpg8hYB

⏰ Last call — the Sheraton Boston room block for the White Coat Affair closes tomorrow, September 18. If you're joining us in Boston on October 10, now's the time to book. Registration stays open through October 1. fundraise.als.net/wca

Boston is back for Team ALS TDI. 🦄 The course runs straight through Newton, where ALS TDI was founded. Run all 26.2 with one mission: to end ALS. $20,000 fundraising minimum. Apply by 9/28: charityteams.com/apply/als-t…

Thank you to the 150+ people who joined us at the 2026 ALS Walk for Research and raised over $105,000 for research in our lab. 💜 We're already looking forward to next year.

Meet the 2026 ALS TDI Leadership Award winners! Nine stories of advocacy, invention, and love, from an 8-year-old teaching his classmates about ALS to a golf challenge that's raised $2M+ for research. als.net/news/2026-als-tdi-le…

Team ALS TDI is heading back to Big Sur! Applications are open for the 2027 Marathon and 11-Miler. Run one of the country's most beautiful courses while raising funds for ALS research. Apply by 9/25: fundraise.als.net/marathon/b…

Win dinner for two anywhere in the world 🌍 Flights, a 2-night hotel stay & a $5,000 dining experience — tickets just $25. Drawn Oct 10 at the White Coat Affair After Party. Need not be present to win. All proceeds fund ALS research: fundraise.als.net/worldraffl…