Providing physiotherapy information and advice for adults with Cystic Fibrosis. Our tweets do not replace the specific advice from your own physiotherapist.
West Midlands Adult Cystic Fibrosis Cent…
Joined August 2017
- Tweets570
- Following227
- Followers467
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UHB CF Physios retweeted
We have updated our website today to provide the latest information about Creon availability, and what to do if you are experiencing difficulties in accessing the medications. (1/3)
➡️ ow.ly/saKP50RI1zi
UHB CF Physios retweeted
Hot off the press! We have just released the agenda for our meeting to launch the new Standards of Care for people living with #NTM disease.
To take a look and to register to attend this free meeting, please visit: ntmnetworkuk.com/standards-o…
@UCLTB @NHSEngland @BTSrespiratory
UHB CF Physios retweeted
Publication Alert!📢🚨😀This commentary discusses a RCT that we failed to recruit to.bit.ly/3xb4NrQ
"Why publish something that didn't work?!" some may ask.
"Why hide it?", I say.
We learn many lessons along the way, and these papers help the whole academic community.
UHB CF Physios retweeted
Have you checked out our online resources on physiotherapy recently?
🫁 This leaflet talks about physiotherapy and airway clearance with diagrams explaining how CF affects the lungs and information on the different types of airway clearance.
➡️ ow.ly/1bxz50R3mAl
UHB CF Physios retweeted
Lung MRI has the potential to help in cystic fibrosis care but we need your help in understanding how this might work. Please complete our survey and share your views: forms.office.com/e/zvqaUWT4Z… #MRI #CysticFibrosis
ALT Do you have cystic fibrosis or care for someone who does? Are you a CF healthcare professional? Are you interested in helping develop new technologies for the benefit of people with CF? If so, we need your help! The MAGNIFY Strategic Research Centre is funded by the CF Trust to explore the use of lung magnetic resonance imaging (MRI) in CF care. Lung MRI can help in the monitoring and management of CF, as well as in testing new inhaled treatments. Please click the link in this post to complete our survey and provide your opinions and experience of lung MRI. Your contribution will help to support the use of the technology in CF. Please contact Dan Beever, PhD student, for further information: [email protected].
UHB CF Physios retweeted
👋 Hi everyone, I'm Catherine Brown, the new ACPCF Public Relations Officer.
I wanted to take the opportunity to introduce myself, ask about you, and ask if there is anything you'd like to see on here :)
Please comment below👀⬇️
#ACPCF #CFPHYSIO #CFTRUST #CYSTICFIBROSIS
UHB CF Physios retweeted
Please participate in this online focus group
✅work in UK Adult CF Centre
✅dietitian, physio, CNS or Dr
✅ opportunity to share your views on weight management and CF
@bda_cf @CF_Exercise @CF_physios @cftrust
Sign up to take part here heartlandscf.org/research
UHB CF Physios retweeted
Beam #cysticfibrosis youth, developed in collaboration with Johns Hopkins CF center and @YogaForCF is FREE all summer long! Please spread the word and help CF families from around the world benefit from this awesome resource. Read more here beamfeelgood.com/blogs/beam-…
UHB CF Physios retweeted
Today we are thrilled to announce a multi-year co-funding grant with @CFCanada looking into the bacteria Mycobacterium abscessus that causes serious lung infections in people with CF.
You can find out more about this exciting research on our website!
➡️ ow.ly/fX0V50OSATj
UHB CF Physios retweeted
Great to see everyone back in Birmingham for the ACPCF study days! We didn’t let the snow put us off ❄️☃️@acpcf
UHB CF Physios retweeted
🎆Happy New Year!
💛We hope you all had a lovely one! We wanted to highlight a great #CFliveevent that our Dietitian Katie is involved in!
💵Eating on a budget might be on your mind this new year so register below on come and see what tips/advice you can get!
Hear from professional chef Luke & others at our next #CFLive event, #Eatingonabudget on 10th Jan.
⭐"I’m looking forward to this CF Live and teaching people how to be thrifty when shopping, what to buy + when, & sharing some cooking tips and advice".⭐
ow.ly/SYg650M8kjZ
UHB CF Physios retweeted
@acpcf @AcpcfR @TheACPRC @ECFSPhySIG @CF_physios @AliGates8 @GemStanf @JanetMPhysio @hldouglas can you support & highlight this work. @milliephysio is continuing the fantastic work presented by @orla_physio @ECFSConference last year.
UHB CF Physios retweeted
🎄 #CFElfOnTheShelf want's his height checked today
🤦Somethings not right!
🧦 When we check your's remember to take your shoes and hats off - why not take us giggle with silly socks this December!
@bda_cf @cftrust @CFTrustYouth @CFAware @CF_physios #CF #CysticFirbrosis
UHB CF Physios retweeted
🎄It is almost December and we have a special guest joining us to take over our twitter for the month!
👀Keep your eye peeled this week to see who it is!
@CFAware @bda_cf @CF_physios @CFLeeds @cfadultsni @cf_newcastle @adult_cf @yorkhullcf @AdultCystic @TeessideCF @ChildrensUnit
UHB CF Physios retweeted
Delighted to share the refreshed James Lind top 10 research priorities for cystic fibrosis (CF). Thanks to the >1400 people who made this happen. Let’s go to work! @questionCF @ebChildHealth @CFAware @ThoraxBMJ @cftrust
UHB CF Physios retweeted
First meeting as chair NMP ACPCF and a treat being back f2f. Great opportunity to discuss, share and collaborate all things prescribing with a room full of amazing clinicians @acpcf @CF_physios @CysticAdult @thecfphysio #cysticfibrosis #respisbest
UHB CF Physios retweeted
Since starting my #FridayThoughts posts, I've covered various topics but keen to make them relevant so please vote🗳️below for the one you're most interested in!😎
#CysticFibrosisOT
@acpcf @bda_cf @CF_physios @cftrust @hollyrosanna @PearceWardMFT
10%Parenting
40%Work (paid and voluntary)
10%Religion and spirituality
40%Bathing/ showering
10 votes • Final results UHB CF Physios retweeted
One for the #cysticfibrosis community in the UK today - 6 tips for exercising in the heat! (or not!) 🥵🚰 #heatwave @CFAware
UHB CF Physios retweeted
Great work highlighting how CF Dietetics is changing and how dietitans have the skills to support PwCF on their CFTR modulator journey.
Here's our poster at ECFS which highlights the effect #Kaftrio is having on the BMI of PwCF
#dietitiansweek2022 @CFAware @UHBTherapy
