A community for Cystic Fibrosis by people with Cystic Fibrosis. Join our server: https://xitter.cf/t.co/mexqvRdQyI
Joined March 2017
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- Following33
- Followers192
- Likes821
CF Discord retweeted
Love or hate the hot weather 🥵 for some it can lead to more hypos ⚠️ keep a close eye on your glucose levels, adjust insulin doses if needed, keep hypo treatment with you and act on hypo symptoms quickly. Oh and don't forget suncream 👍 @CUH_dietitians @CambsDiabetes @CUH_NHS
CF Discord retweeted
On 13 July we're running an #AmongUs #GamesNight for young people with #cysticfibrosis ages 12-18 & siblings! Email cfyouth@cysticfibrosis.org.uk to find out more or to sign up!
Big ups @NormalLife7 for your continued support!
*LIMITED SPACES - FIRST COME FIRST SERVE!!*
CF Discord retweeted
New rapid test can identify dangerous infections in cystic fibrosis patients in minutes £paywall telegraph.co.uk/news/2022/06…
CF Discord retweeted
UK Based CFers wanted for a survey on Medication adherence and mental wellbeing! Fill the survey in now:
blss.eu.qualtrics.com/jfe/fo…
CF Discord retweeted
An excellent review from the University of Torino on
"CFTR Modulator Therapy for Rare CFTR Mutants"
📜mdpi.com/2673-527X/2/2/5
#cysticfibrosisnewstoday #cysticfibrosis #CFnews #CF #treatingCF #CFTRModulator
@CFNewsToday @CFAware @CFAwareness @CFawarenesss @KnowCF @unito
CF Discord retweeted
YOOO YOUNG PEEPS! Check out our Spring calendar of events for children and young people with #cysticfibrosis ages 6-16! Email cfyouth@cysticfibrosis.org.uk for more info or to sign up. Siblings welcome!
CF Discord retweeted
Developing genetic therapies will take a long time and a lot of collaboration. Following plenary two of #NACFC, Art Brace, a scientist and adult with CF, shares the key moments that resonated with him from each of the presentations. on.cff.org/3mHG2M6
CF Discord retweeted
Ready for #NACFC 2021? Follow our Twitter list to virtually connect with others in the cystic fibrosis community who are attending the conference. on.cff.org/3bvN2p3
CF Discord retweeted
**DEADLINE TO APPLY SUNDAY 26TH SEPTEMBER!!!!**
Applications are open for this year’s Helen Barrett Bright Ideas Awards, which support people with #cysticfibrosis ages 18+ to develop their business ideas and make self-employment a reality. cysticfibrosis.org.uk/the-wo…
CF Discord retweeted
CREW MATES, LISTEN UP!
On 23rd September from 6pm we're running #AmongUs #GamesNight for children with #cysticfibrosis ages 8-16 and their siblings! Email cfyouth@cysticfibrosis.org.uk to find out more or to sign up!
***LIMITED SPACES - FIRST COME FIRST SERVE!!***
CF Discord retweeted
If you're a young person who lives with #cysticfibrosis, we would love to hear from you, whatever your idea! Get in touch at cfyouth@cysticfibrosis.org.uk, or just send a message to our Instagram! instagram.com/cftrustyouth/
Looking forward to seeing what you come up with 🤩😃💛💫
CF Discord retweeted
Wishing everyone in the #cysticfibrosis community a great week ahead!
CF Discord retweeted
Make sure you join our forum using @discordapp ! Get the chance to talk directly with other people with Cystic Fibrosis! Click this link: join.cfdiscord.com/ to get started! #cysticfibrosis #cf
CF Discord retweeted
Are you an online shopper?
For any of your online shopping, make sure you use Amazon Smile. You can help support us with your Amazon purchases and make a real difference to people with #cysticfibrosis. Just shop through smile.amazon.co.uk and choose Cystic Fibrosis Trust.
CF Discord retweeted
"COVID-19 has brought so many changes for all of us, and physiotherapists are no exception to this".
Tracey Daniels a York based CF physiotherapist spoke to us about how they have adapted to help people with #cysticfibrosis, like Oliver, from home: bit.ly/397z36L
CF Discord retweeted
**THURSDAY 23rd JULY, 6PM** #MovieNight for young people with #cysticfibrosis is back! If you're ages 8-14, have #CF or are a #CF sibling, you can sign up to our #NetflixParty, by emailing cfyouth@cysticfibrosis.org.uk
We're watching Hotel Transylvania youtube.com/watch?v=q4RK3jY7…
CF Discord retweeted
We are incredibly proud to have worked alongside the #cysticfibrosis community in the long campaign for life-saving medicines.
The four-year battle to secure access to Orkambi was a critical step and remains the only medicine suitable for many children. (1/2)
CF Discord retweeted
Who's ready for @Charles_MDuke 24-hour stream on Sunday? Hear him chat about #cysticfibrosis, how #lockdown has been and what he's going to be up to this weekend!
If you want to learn more about how you can get involved with #CFNextLevel click here: ow.ly/dMDG50AoM3q
CF Discord retweeted
NHS patients with cystic fibrosis will be among the first in Europe to benefit from the new triple therapy for the condition following a landmark deal, NHS Chief Executive Simon Stevens has announced today.
CF Discord retweeted
Meagan Tenyer, an adult with #cysticfibrosis, shares why she refuses to let her lung function stop her from having a completely full, happy life. on.cff.org/3dpl10X