A community for Cystic Fibrosis by people with Cystic Fibrosis. Join our server: https://xitter.cf/t.co/mexqvRdQyI
Joined March 2017
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Make sure you join our forum using @discordapp ! Get the chance to talk directly with other people with Cystic Fibrosis! Click this link: join.cfdiscord.com/ to get started! #cysticfibrosis #cf
#CF #CysticFibrosis #CFNews eRF3a Protein May Be Target in Treating CF Nonsense Mutations ift.tt/VtcUfgA
Targeting a protein called eRF3a may offer a way of treating cystic fibrosis (CF) caused by nonsense mutations, potentially opening a treatment avenue to people w…
#CF #CysticFibrosis #CFNews Frailty Index for Lung Transplant CF Patients Helps to Predict Outcomes ift.tt/lbMejU9
Measures of frailty, based on an established index of physical activity, fatigue, weight loss, and the like for older adults, helps in predicting likely…
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#CF #CysticFibrosis #CFNews Having Cystic Fibrosis Taught Me How to Communicate Boundaries ift.tt/8nTSzJQ
It’s 2012 and I’m in my second year of community college. My hair is down to my shoulders and I carry a bottle of hand sanitizer attached to my backpack, which g…
#CF #CysticFibrosis #CFNews Most Adults in CF Study Have Low Bone Mineral Density ift.tt/qApfmPO
More than half of adults with cystic fibrosis (CF) who underwent assessments of bone mineral density at a U.S. center had lower-than-expected bone density, a new study re…
#CF #CysticFibrosis #CFNews US Study Finds Delays in CF Care for Babies From Minority Groups ift.tt/4b2wyeJ
Among babies with cystic fibrosis (CF) identified via newborn screening, there are marked delays in the start of care for children from racial and ethnic backg…
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#CF #CysticFibrosis #CFNews Kaftrio Boosts Exercise Capacity in Teens With CF, Case Analysis Shows ift.tt/gn9640x
A six-week treatment with Kaftrio led to marked improvement in exercise capacity in adolescents with cystic fibrosis (CF), according to an analysis of th…
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#CF #CysticFibrosis #CFNews Phase 1 Trial of KB407, Gene Therapy for All With CF, to Open in US ift.tt/hIP56kO
A Phase 1 clinical trial of an experimental inhalation gene therapy for cystic fibrosis (CF) — KB407 by Krystal Biotech — was given clearance to start by th…
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#CF #CysticFibrosis #CFNews Reducing Treatment Burden Key to CF Patients, Survey Suggests ift.tt/DgCt6Gh
Adults with cystic fibrosis (CF) are willing to accept reductions in lung function and life expectancy as a trade-off for a reduced treatment burden, a survey of …
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#CF #CysticFibrosis #CFNews The Benefits of Having a Coach During the Transplant Process ift.tt/rlFinuQ
When I started evaluation for my double-lung transplant in spring 2015, I didn’t have any friends in the cystic fibrosis community. As I took the brave step to joi…
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#CF #CysticFibrosis #CFNews Allergies to Beta-lactam Antibiotics Most Common Type in CF Children ift.tt/raiRNef
Allergies to beta-lactam antibiotics were the most commonly confirmed antibiotic allergy in children with cystic fibrosis, according to a small study in Tu…
#CF #CysticFibrosis #CFNews ‘Astonishing’ Acts of Feminism Throughout My Journey With CF ift.tt/uJ9Eahl
In the musical “Little Women,” each of the four March sisters has an artistic talent. Jo March’s song “Astonishing,” a feminist lament about her ever-changing path…
#CF #CysticFibrosis #CFNews Mothers of CF Children Need Support for Caregiver Burnout: Study ift.tt/xJ7tTsn
Mothers who care for children with cystic fibrosis (CF) often experience depression, burnout, caregiver burden, and negative attitudes toward their children, a…
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#CF #CysticFibrosis #CFNews ASO Cocktail May Help in Treating CF Due to W1282X Mutation ift.tt/adP4b8X
A potential gene-specific therapy for cystic fibrosis (CF) may lie in antisense oligonucleotides, or ASOs, that enhance the production and activity of the truncated…
#CF #CysticFibrosis #CFNews CF Foundation’s First ‘Golden Ticket’ Contest Announces Winners ift.tt/s1qelfx
Avecris and Nosis Biological Sciences have won the Cystic Fibrosis (CF) Foundation’s inaugural “Golden Ticket” Competition. The companies will each receive one …
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#CF #CysticFibrosis #CFNews GLP-1 Hormone Infusions May Boost Insulin Production in CF Patients ift.tt/i3hsYvQ
Infusions with a hormone called GLP-1 boosted insulin production in cystic fibrosis (CF) patients with impaired glucose tolerance, according to data from a …
#CF #CysticFibrosis #CFNews I Want to Feel Comfortable Going to the Clinic Again ift.tt/oTfPKOY
Because of the COVID-19 pandemic, I’ve never met my current pulmonary care provider in person, and I keep putting off my face-to-face appointment.
I moved from Alabama to…
#CF #CysticFibrosis #CFNews Inhaled Antibiotics Tied to Greater Risk of Aspergillus Infection ift.tt/ENrj9qM
People with cystic fibrosis (CF) who use inhaled antibiotics are at more than three times higher risk of becoming infected with the fungus Aspergillus fumigat…
#CF #CysticFibrosis #CFNews ‘You Two’: The Therapeutic Power of Pets for CF Patients ift.tt/hp4b0cz
The song “You Two” from “Chitty Chitty Bang Bang” inspired my dream of adopting twins from a young age. To this day, I’m not sure if the kids in the musical were writt…
#CF #CysticFibrosis #CFNews Lumacaftor Leads to ‘Healthy Cell’ Protein Reorganization in Organelles ift.tt/6ECSXpa
Lumacaftor (VX-809) — one of the medications in the CFTR modulator Orkambi — led to a significant protein reorganization in two cellular compartments i…
#CF #CysticFibrosis #CFNews Cincinnati Children’s Gains AI Platform to Speed CF Research ift.tt/IczT4h6
Cincinnati Children’s Hospital Medical Center will use Epistemic AI’s platform, a state-of-the-art artificial intelligence (AI) research tool for the life sciences…
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