Sickle Cell Expert | RN | CEO @olanas_world | Exec Director @Ausickle | @scd_talks | Mum | Friend #MusicLover ❤️

Perth Sydney Melbourne Lusaka
Joined December 2011
🎙️ I’m excited to share my recent appearance on the Genocare Podcast! I had the opportunity to discuss sickle cell, raising awareness about the challenges faced by families, the importance of early diagnosis, newborn screening, & improving access to treatment & care in Australia.
1
1
85
Honoured to be nominated for the Outstanding Patient Advocate Award. While I never want to take the spotlight away from SCD, your vote would amplify our advocacy work ahead. If you're able, please vote here: judginghub.com/en/events/PAA…
2
126
Listen to Agnes Nsofwa on the Awareness Podcast 🎙 with Kayla as she discusses sickle cell disease, the importance of awareness, and her advocacy work supporting the sickle cell community. Don’t miss this insightful conversation. open.spotify.com/episode/1wy… #SickleCellAwareness
1
30
It's been such an honour to represent people impacted by sickle cell disease through @AuSickle. Thank you @JacintaAllanMP and all policymakers who made this possible
Victorian newborns will be the first in Australia to get free screening for a rare but serious health condition - sickle-cell disease. This means babies will get the lifesaving treatment and support they need sooner, giving parents one less thing to worry about.
1
1
43
Back in October, on my birthday, I introduced the AgnesMN K2000 each Small Business Initiative🎉 This initiative was created to support small business owners affected by Sickle Cell Disease in Zambia. When something is impossible, there is always a way. #StrengtheningLives #SCD
1
1
33
Each of these recipients represents resilience, creativity, and the drive to grow. I’m excited to support their journeys and can’t wait to see the impact they’ll continue to make for the next group they will support. #StrenghteningLives #OneDayatATime #Support #ProudlyZambian
14
Agnes Nsofwa retweeted
In Australia, every newborn gets a simple, free ‘heel prick’ bloodspot test - because catching things early can change a child’s whole future. Now we’re expanding that screening to include sickle cell disease - making Victorian babies the first in the country to be tested. Winnie and Andrew know why this matters. Their little boy Kiki wasn’t diagnosed until he was one. Hospital visits. Endless tests. Fear and uncertainty no parent should have to carry. An earlier diagnosis would have saved their family a lot of shock and trauma. It’s why we’re expanding the program to 35 conditions. Because early intervention saves critical time in diagnosis. It means families can get the healthcare they need faster - and our littlest Victorians can get treated sooner.
13
14
88
4,708
❤️❤️
What are your thoughts on this
15
Agnes Nsofwa retweeted
Replying to @elonmusk
Money helps with life, but Jesus gives life meaning, peace, and hope.
134
419
16
7,184
345,443
#Zambia my country 😍
Swimming In the Devils Pool 🌊👹
17
𝗦𝗼 𝗜 𝗛𝗮𝘃𝗲 𝗦𝗶𝗰𝗸𝗹𝗲 𝗖𝗲𝗹𝗹 𝗗𝗶𝘀𝗲𝗮𝘀𝗲 Sickle Cell Disease awareness in children, written in English and Arabic. theindiebook.store/product/s… @AggieMN
1
1
1
167
CICA, a christian performing art group, will be participating in this year's Telethon on @7newsperth Supporting @AuSickle and everyone enduring ill health. Support Telethon by donating: telethon7.grassrootz.com/tel… #sicklecellawareness #Telethon #SevenNetwork #Australiansicklecell
1
2
134
𝗦𝗼 𝗜 𝗛𝗮𝘃𝗲 𝗦𝗶𝗰𝗸𝗹𝗲 𝗖𝗲𝗹𝗹 𝗗𝗶𝘀𝗲𝗮𝘀𝗲 Sickle Cell Disease awareness in children, written in English and Arabic. theindiebook.store/product/s… @AggieMN
1
1
114
‼️Today is World Sickle Cell Day, a day when the global community enhances awareness programs to remind our peers that this condition is among us. #WorldSickleCellDay – at Wangaratta, Victoria
1
1
37
‼️Contact us on 1300 148 824 or email us at [email protected]. ‼️To all warriors around the world, you are beautiful, you matter, you are awesome 💗 #sicklecelldisease #sicklecellawareness #Australiansicklecell
1
24
This World Sickle Cell Day we urge policy-makers @Mark_Butler_MP @healthgovau to make it easy for Sickle Cell Warriors to access therapies that are not available in Australia. Help us highlight this condition on a day like this ‼️‼️
24