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Australia
Joined May 2020
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One of my favourite days. 💗
Cannot tell you how inspired I am by this phenomenal rising star 🌟 Agnes Nsofwa RN (@AggieMN) is Co-founder & Exec. Director, Australian #SickleCell Advocacy (@AuSickle). Her family lives with SCD. Thanks to her passion and leadership, ASCA officially launched today #ASCAlaunch
Sickle Cell Talks With Agnes retweeted
#PRESS #RELEASE
@AuSickle is proud to officially announce that The Medical Advisory Committee ( MSAC) has approved our application for the inclusion of Newborn Screening for Sickle Cell Disease in Australia.
For more information on this link:
lnkd.in/gKeQJqMn
#SickleCell – at Perth, Perth (WA)
Sickle Cell Talks With Agnes retweeted
#ASCA #PRESS #RELEASE
02/11/2023
📢We are saddened and disappointed that the Newborn BloodSpot Screening (NBS) application has been deferred.
📢Please see the press release from ASCA and the way forward.
#pressrelease
#news
#newbornscreening
#babies
#sicklecelldisease – at Melbourne, Victoria
Sickle Cell Talks With Agnes retweeted
✨ Exciting News! ✨
Save the Date! 📅
4th November for the 3RD Sickle Cell Scientific Conference in Melbourne, Australia, hosted by Australian Sickle Cell Advocacy Inc.!
Don't miss this opportunity! 👶
@healthgovau
#SickleCellDisease
#Australiansicklecell
#TeamASCA
Sickle Cell Talks With Agnes retweeted
🎊Excited to announce that our book two of SCD stories has finally been published.
🎊The Real Life Stories Of Sickle Cell - A Global Collaboration is now on Amazon.
🎊Get yourself an ebook now. More details...
a.co/d/h3VX4s9
#Gratitude
#Author
#Published
#SickleCell – at Healesville, Victoria
Sickle Cell Talks With Agnes retweeted
Join @AuSickle for the 3rd Sickle Cell Conference on 4th November. Tickets here: eventbrite.com.au/e/asca-3rd…
This is a hybrid event. Warriors and Caregivers free.
#SickleCellAwareness
#SickleCellDisease
#Australia
#Conference
#Event
Sickle Cell Talks With Agnes retweeted
@AuSickle is pleased to announce that we have rescheduled the previously postponed Sickle Cell Forum to 2nd September 2023.
Join us at St Lucia Community Hall on Saturday from 1pm. See topics of discussion 👇🏾
Call 1300 148 824 for more.
#HealthPromotion
#SickleCellAwareness
Sickle Cell Talks With Agnes retweeted
#Genetherapy for #sicklecelldisease journey advances to the next step in the USA!
Likelihood of having one therapy in this space may be able to us by the end of this year
investors.vrtx.com/news-rele…
@ASH_hematology
@SCCConsortium @IndiaNasco @scd_talks @TackleSickle @SickleCellMN
Sickle Cell Talks With Agnes retweeted
Tomorrow Saturday 22nd @znsava will be in Ndola participating in the Ndola Primary School Family Fun Day & Reunion Fundraiser Braai supporting our partners The Zambia I Want
This will be at Poteco club from 10am until 21 hours, a day full of different activities and fun.
Sickle Cell Talks With Agnes retweeted
Fuel your #hustlehard mentality with SwiftNLift's latest edition! Discover the top women #leaders of 2023 and an in-depth feature on entrepreneur Ms. Agnes Nsofwa. Reach for the 🌟 and your #2023goals!
Digital Link: swiftnlift.com/profile-peopl……
#businessmagazine #womenempowerment
Sickle Cell Talks With Agnes retweeted
We are premiering our #sicklecelldisease films at the Medicinema @GSTTnhs. Thanks to all the hard work of all involved, including patient. #EDI at the heart of everything @KHPHaematology @KingsCollegeNHS @SickleCellUK
#TeamASVI #Weareback
📢Session three for our Amplify Sickle Cell Voices International Inc - ASVI Webinar Series is back this Saturday.
📢Join us on 29th April 2023 at 7 am. EST
📢Our theme for the year is celebrating Sickle Cell Warriors globally.
Sickle Cell Talks With Agnes retweeted
This Anzac Day, like many that have passed, we remember all Australians killed in military operations.
#lestweforget2023
#australiansicklecell
#togetherwerise
Sickle Cell Talks With Agnes retweeted
#TeamASVI #Weareback
📢We are excited to announce that our regular webinars to advance Sickle Cell Awareness are back this year.
📢Join us for the launch on 1st April 2023 at 7am EST
📢Our theme for the year is celebrating Sickle Cell Warriors globally.
#SickleCellDisease – at Victoria, Australia
Wow
Have a #SickleCell patient who receives Adakveo who is hospitalized. I was going to give his scheduled dose while inpatient to save an outpatient visit upon discharge
But it’d be $10,000 and not paid for by insurance if given inpatient
American healthcare totally makes sense
Sickle Cell Talks With Agnes retweeted
#TeamASCA @AuSickle is back again this year to volunteer for @runforthekids
Thank you @rchmelbourne for all you awesome work caring for Sickle Cell Warriors
#runforthekids #R4kids #R4K2023 – at Melbourne, Victoria
Sickle Cell Talks With Agnes retweeted
✅️If you are someone working to better understand the human side of #SickleCell , you need to purchase this book.
✅️23 Real-life stories from people impacted by SCD from over 20 countries.
✅️Get your copy here: agnesnsofwa.com.au/product/t…
#Awareness
#Books
#Author
#Reading – at Victoria, Australia
Sickle Cell Talks With Agnes retweeted
Happy International Women's Day to all women around the world ❤️
#internationalwomensday
#IWD23
#TeamASCA – at United States
Sickle Cell Talks With Agnes retweeted
💜Buy Olana's Sickle Cell Tales - Olana, the 18 inch baby doll.
💜Find this doll on our website:
💜shop.agnesnsofwa.com.au/
💜Or this one if you have issues on the top website
💜agnesnsofwa.com.au/shop/
#OlanaWorld
#SickleCellDisease
#SickleCellAwareness
#AgnesMM
