Our aims are to raise issues affecting people with Down syndrome, promote equality, campaign for equal access & highlight the innate worth of people with DS.
Joined January 2021
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APPG for Down Syndrome retweeted
A packed @APPGDS AGM! Fair Shot CIC shared how they’re supporting people with #DownSyndrome into work, while the @NDSPolicyGroup Advisory Group raised concerns over delays to the #DownSyndromeAct2022 Guidance. Great discussions & importantly, hearing directly from people with DS.
APPG for Down Syndrome retweeted
Tomorrow we go to Downing Street.
Our Open Letter will be delivered to @andyburnham.
It is a collective call for progress & for the voices of people with Down
syndrome & their families to be actioned.
Tonight, we are asking everyone to help us create one final wave of support.
APPG for Down Syndrome retweeted
🏃♀️ 6 WEEKS TO GO! 🏃♂️Join the #PortsmouthDSA @Great_Run team! FREE places for Mini, Junior, 5K & 10-mile runs in return for sponsorship. Our 5K walking team is open to supporters too! Get involved, take on a challenge & raise money for a great cause! Email: [email protected]
APPG for Down Syndrome retweeted
Final social communication groups wrapped up today 🎉
Great to see our young people grow in confidence, find their voices, & share plenty of humour along the way. Thanks to Amy, Hannah & @C_CrookPDsa for all their hard work over the year!
APPG for Down Syndrome retweeted
🤩We love seeing our young supporters champion inclusion Huge congratulations to Bodhi at Craneswater School, recognised by the Lord Mayor of #Portsmouth for raising awareness of #DownSyndrome after our DS Awareness Week celebrations. Well done Bodhi! 👏👏
APPG for Down Syndrome retweeted
🎬 Tonight’s the night! We’ll be tuning in to @BBCCasualty at 8.10pm to watch Tommy Rhys-Powell make his guest debut! 🌟📽️A proud moment for Tom & his mum, our Education Practitioner Allison. Great to see authentic representation & inclusion on screen. 👏📺
#RepresentationMatters
APPG for Down Syndrome retweeted
Wonderful seeing Portsmouth DSA’s Lizzie on @itvnews! 🌟A successful apprenticeship proving that people with Down syndrome & LD can thrive in the workplace benefiting the whole community. Well done, Lizzie!
APPG for Down Syndrome retweeted
It's been FOUR years since parliament passed the Down Syndrome Act, backed by the government and all mainstream parties.
But it has STILL not been implemented
The law is so vital for the 50,000 people in the UK with Down Syndrome:
thetimes.com/uk/politics/art…
@LiamFox @kenross2011
We are looking forward to meeting with @zubirahmed to discuss the #DownSyndromeAct Guidance
Four years after Down’s syndrome law, nothing has changed thetimes.com/uk/politics/art…
APPG for Down Syndrome retweeted
📣GREAT NEWS!📣
The deadline for responding to the Down Syndrome Act draft guidance consultation has been extended to 30th March 2026!! 🙌🏼
#DownSyndromeAct
#InclusionMatters
#DownSyndrome
APPG for Down Syndrome retweeted
We’re thrilled to announce that the draft Guidance for the Down Syndrome Act has officially been published!
This is an important step forward for our community. The consultation runs until 28th January 2026, and we’ll soon share how you can take part and make a difference.
APPG for Down Syndrome retweeted
“The Bill presumes the best instead of legislating for the worst.” When we already know that disabled people face serious healthcare inequalities, overlooking these real risks would leave vulnerable people even more exposed under an #AssistedDyingBill.”
APPG for Down Syndrome retweeted
Powerful words from @TommyJessop, who joined the @APPGDS to speak out on the urgent need for stronger safeguards in the #AssistedDyingBill. Reading his letter to the @UKHouseofLords, he made it clear: we are #NotCollateralDamage Read Tommy’s letter here: shorturl.at/fh5sr
APPG for Down Syndrome retweeted
Full agenda at today’s @APPGDS AGM. Discussions incl. safeguarding concerns in #AssistedDyingBill, Post-16 transport loophole & updates on DS Act Guidance. Great to welcome NDSPG Advisory Group members from across UK to share their reports & insights. @LeeBarronMP @S_A_Russell
APPG for Down Syndrome retweeted
Ahead of the 2nd Reading in @UKHouseOfLords, #NDSPG Patron & Actor @TommyJessop has launched our #AssistedDyingBill campaign with a powerful letter raising concerns about the bill’s lack of robust safeguards. Read his letter here shorturl.at/oUPNK @DavidAltonHL @zatzi
Thank you Minister @SKinnock @DHSCgovuk for working with the @APPGDS & @NDSPolicyGroup to ensure the #DownSyndromeActGuidance is meaningful, robust & will improve outcomes for all. Reassuring timelines are confirmed for public consultation.
@DamianHinds @garrettflo
#andrewcooper
Thank you to contributors, guests and members for participating in today’s APPG for Down Syndrome. Details of topics below ⬇️
@garrettflo
@DamianHinds @grahamstuart @CIDDRG @LiamFox @LeeBarronMP @jackabbott90 @jackmrankin @JimShannonMP
@MoncktonR @LeeAndersonMP_
A packed agenda incl. delays & ongoing issues with the #DownSyndromeAct guidance, the #AssistedDyingBill, & reported changes to EHCP eligibility. Thanks to Cambridge Uni @CIDDRG for their Alzheimer’s presentation & @garrettflo for sharing the Advisory Group ICB challenge results.
APPG for Down Syndrome retweeted
Minister @SKinnock explains why the consultation on the Down Syndrome Act 2022 - pioneered in @UKParliament by @LiamFox & @BaronessHollins has been delayed. @APPGDS @DamianHinds @DownSyndrome @DownSyndromeLPL @HumanRightsCtte @LordSpeaker @CommonsSpeaker @HouseofCommons
