My Wife's Cancer Story and a plea for help! PXL 20251117 200653055 TS youtu.be/Ll-EJ9ZJ10I?si=nX5s… via @YouTube @realDonaldTrump @RobertKennedyJr @US_FDA @drpatrick @LoriMills4CA42

52 weeks ago tonight, I went to bed not knowing what was going to happen that Monday afternoon. I went to the ER with my wife because she was having headaches. Within 48 hours, she was having surgery to remove a brain tumor. I will never look at the world in the same way I looked at it that Sunday night. Is give just about anything to be back at that moment in time. What I've learned is the most important thing in the world is spending time with the people you love and to love them like there is no tomorrow.

UPDATE: 9/9/2026 Hi all, Thank you for the continued prayers and support for Leanne. It really does make a difference. I have great news to share as the MRI has come back with no regrowth and continued healing in the area of the resection. This awful journey started on October 6th last year and it really is hard to catch your breath. I'm sure I would have gone bat shit crazy without the support and prayers of the amazing people I have met here. I will never understand the reason why we all had to meet in these circumstances but I am thankful for all of you! Below is a series of MRI's. The one on the far left is from today, then July 2, April 27, November 6 (the day after her second surgery at Mayo).

I don't know how I am going to be able to sleep tonight. Can't turn off my mind.

Hi all, Another MRI coming up on Wednesday for Leanne and the anxiety is rising high. This one is a bit different as we will be seeing the doctor on the same day as the MRI. Any prayers you can send would be so much appreciated .

Hi all, Big MRI tomorrow for Leanne. The scanxiety is very high. If you could send some prayers my family's way I'd be grateful. 🙏

I just saw this, wondering if anyone has any thoughts? Anyone, Bueller??? cancer.gov/news-events/cance…

Another interesting find. Thoughts? uclahealth.org/news/release/…

An interesting conversation about how glucose can affect cancer. Again, my friends, please let me know what you think. youtube.com/watch?v=RXbOCnOw…

Do any of my incredibly smart friends want to see if this is true, partially true, or just B.S.

Dr. Jay with some very interesting information. I wonder if this also holds true for more than chemo and immunotherapy (thinking dendritic cell therapy?). Something to consider: youtu.be/6lgsN3vIuHs?si=y8Go…

Dr. Jay is working on some very interesting next generation immunotherapies with a multi targeted approach. Definitely worth a watch: youtu.be/CGzGUsXnvtI?si=jmb7…

UPDATE 4/29/26 HI all, Thank you for all the prayers! After a very anxious 48 hours after Leanne's MRI on Monday morning, we received great news that her MRI is looking clear. The most important points: “Decreasing size of the surgical cavity” “Significantly improved edema” (swelling) “Substantially improved enhancement” with only minimal residual “No new or suspicious enhancement” “No restricted diffusion” “No hydrocephalus, hemorrhage, or fluid collection” This is great news but Leanne's blood work is still not in the normal range and her ALC is at .3. Since she is unable to get back on any chemotherapy at this point, I still believe she could have great benefit from Anktiva with NK cell therapy. The best time to do treatments is before reoccurrence. I know these results may not have been possible if we hadn't gone to @MayoClinic for a second opinion. The amazing team of Dr. Bryan Neth (oncology), Dr. Eric Lehrer (radiation oncology), and the amazing surgery by Dr. Ian Parney (neurosurgery). Although there were some bumps in the road, there is no way to thank this amazing team enough. We are also very happy with our oncologist at Northwestern, Dr. Robin Buerki and team. @DrPatSoonShiong @DrMakaryFDA @US_FDA @realDonaldTrump @RobertKennedyJr @LoriMills4CA42 @ChiayuChenMD @bullishbruk @ImmunityBio @richadcock @pdsandiego @CFSCentral

Hi all, Sorry I haven't been on X a whole lot lately. So much going on and time is now flying by. A big week coming up as Leanne has her second MRI tomorrow morning. We probably won't get the results until Wednesday so that is going to be awful waiting around. If all of you amazing people could pray for a great result I'd really appreciate it. Scanxiety is in full effect.

UPDATE: 3/13/26 Hi all, Well, it has been a rough day for me today. After almost 3 months of digging, I have been told by Northwestern that they do NOT have a frozen sample of the tumor without preservatives. It really has hit me hard because, as of right now, I really don't have much of a road forward unless the tumor comes back. I was hoping to try a dendritic cell therapy but that is just not possible at this time. I'm not sure Leanne will ever be able to take Temozolomide again because of the extreme reaction she has had to it. I cut off most of her hair tonight and I am spiraling. In all honesty, the best road forward now is Anktiva. I appreciate all of the support and prayers from all of you! I need them now more than ever. @DrPatSoonShiong @DrMakaryFDA @US_FDA @realDonaldTrump @RobertKennedyJr @LoriMills4CA42 @ChiayuChenMD @bullishbruk @ImmunityBio @richadcock @pdsandiego @CFSCentral @DrHarveyRisch

UPDATE: 3/12/2026 Hi all, It's been a minute since I have sent out an update. I would love to thank all of again for sharing Leanne's story and for all the people reaching out and sending me information. I can't thank all of you enough. So, after Leanne's good MRI last month, she continues to struggle with her blood work. She is getting weekly injections to try to bolster them. The trend is up a bit, but not a whole lot. She also continues to lose alot of her hair. She is devasted by this as it is a daily reminder of what is going on. She may shave her head this weekend. I will support her any direction she needs to go to feel better. Leanne's ALC is hovering between .3 and .4 so not great at all. As I continue to research options, ANKTIVA is still on the table as well as dendritic cell therapies. We are working with the hospital right now on trying to figure out if they preserved her tumor tissue correctly for a potential dendritic cell therapy. If you don't know, the tissue must be flash frozen with NO preservatives. It is really unbelievable to me that the medical establishment is recognizing the game changing shift toward immunotherapy but yet, continues to freeze tumor tissue with preservatives. Something needs to change rapidly on this and should be a part of a conversation with the surgeon prior to the surgery. At least give the patients choices that may be incredibly important down the road. I have to mention this past week that a former Chicago Blackhawks player and announcer, Troy Murray (@muzz19) passed away after a several year battle with pancreatic cancer. Troy was an incredibly nice guy. Many years ago, I took my son to a Blackhawks game and Troy was by the radio booth, which is all but in the last row of seats at the United Center. I said hi to him and he had my Son and I come up and chatted with us for a few minutes and signed an autograph. He was just so nice to us and it left an impression that has lasted over a decade. This is just the type of person he was. God Bless you and your family. I hate cancer. Prayers and love to you all! 🙏 @DrPatSoonShiong @DrMakaryFDA @US_FDA @realDonaldTrump @RobertKennedyJr @LoriMills4CA42 @ChiayuChenMD @bullishbruk @ImmunityBio @richadcock @pdsandiego @CFSCentral @DrHarveyRisch

UPDATE: 2/20/2026 Hi all, I'm sorry I haven't posted yet today. Leanne had an early blood draw and her MRI. We met with her oncologist in the afternoon and then made the 5 hour drive home. Some people are believers in Jesus and the power of prayer while others aren't. I do believe in both, and, after the MRI today, I am more convinced than ever. Today was a good day! I will put the findings at the bottom of the post. It's alot of doctor speak, but, I will tell you that the oncologist was very happy with the results. I can't thank all of you enough for the prayers. The support from all of you has meant a great deal to me. God Bless you all! I will also say this. With the great results, I refuse to sit on my hands and hope it doesn't come back. I am still hoping Leanne can get ANKTIVA. If not, there are still other tools in the tool box. @DrPatSoonShiong @DrMakaryFDA @US_FDA @realDonaldTrump @RobertKennedyJr @LoriMills4CA42 @ChiayuChenMD @bullishbruk @ImmunityBio @richadcock @pdsandiego @DrHarveyRisch This was the report: FINDINGS: Since 12/1/2025, decreased extent of peripheral enhancement about the operative cavity and decreased small focus of enhancement extending just anterosuperiorly to the operative cavity in the left cerebellar hemisphere and vermis. No new or progressive areas of enhancement. Decreased extent of intrinsic T1 hyperintensity/blood products associated with the operative cavity. Decreased extent of T2 hyperintensity surrounding the operative cavity including decreased T2 hyperintensity in the left cerebellar hemisphere and vermis with decreased associated mass effect and decreased effacement of the fourth ventricle. No diffusion restriction or definite abnormal elevated rCBV. Stable ventricular caliber without hydrocephalus. Old right frontal EVD tract with associated hemosiderin/gliosis, with resolved intrinsic T1 hyperintense blood products since 12/1/2025. Evolving subacute to chronic small right cerebellar hemisphere infarct with nearly resolved enhancement. The fluid collection overlying the suboccipital craniotomy has essentially resolved. Unchanged developmental venous anomalies in the left cerebral hemisphere. IMPRESSION: Decreasing enhancement and associated T2 hyperintensity and mass effect with the left cerebellar glioma, compatible with positive response to treatment. No new/progressive abnormality.

UPDATE: 2/19/2026 Hi all, Tomorrow is fast approaching and Leanne and I are in full scanxiety. If you could please pray for a great result for the MRI tomorrow my family would be incredibly grateful. Thank you!

UPDATE: 2/13/2026 Hi all, Leanne is a week out from her new baseline MRI which will take place next week (February 20th) at Mayo. We are nervous and scared. Leanne continues to have issues with her blood work but is finally getting some help from the medical teams involved (Northwestern mostly). I have had some serious issues with the way Mayo has handled this as I have been asking them for a plan since January 9th when her numbers fell off a cliff. I'm not a doctor but I can look at a chart and see trends. It has taken some time to get some traction but Leanne will be getting weekly shots of NPLATE until her platelets get back to the normal range (they have stabilized at 23) , Neulasta (Neupogen) every two weeks until her numbers come up (she had a shot on Wednesday and she went from 1.7 to 5.9 so that may be a one and done, and still waiting for approval for the Epogen for her red blood cells (she is up to 2.35 from 2.14). Hearing @DrPatrick talk about the @US_FDA just makes you wonder what is really going on and if anything will ever change. How many people have to die before someone does something about it? Hasn't anyone if your family EVER had cancer? The administration needs to step up or get out of the way. We lost another great soul this week with the passing of James Van Der Beek. Praying for his family, it's just awful. Again, I want to thank all of you for sharing Leanne's story and for caring so much! I really do appreciate all of you and I am always on the quest for more information. There are other options out there, ANKTIVA being a great one. I would also say this, please have a backup plan should ANKTIVA not be approved. @DrPatSoonShiong @DrMakaryFDA @US_FDA @realDonaldTrump @RobertKennedyJr @LoriMills4CA42 @ChiayuChenMD @bullishbruk @ImmunityBio @richadcock @pdsandiego @DrHarveyRisch