@tmopain

Expert on living with (my) persistent pain. Learning what science has to say about it. Intrigued by education/communication strategies that bridge the two.

Joined October 2019
  • Tweets2.6K
  • Following1.1K
  • Followers1.9K
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I carry my pain in a private box, tucked into my pocket, or balanced precariously across my shoulders as it swells and demands even more room to grow. The weight of it is always with me, but - astonishingly, bewilderingly - invisible to you.
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Read this🧵from @gldivittorio. This week I had a prior authorization denied in part because it “wasn’t requested by the patient.” Their response to my request for (continued) treatment was to tell me, THE PATIENT, I hadn’t asked. In response to me asking. The system is broken.
GL
@gldivittorio18 Jul 2023
Replying to @gldivittorio
In January I was diagnosed with a weird form of lacrimal cancer & while the US healthcare system being bad isn’t exactly a revelation, I want to give a glimpse at how that system actually functions from a patient & policy standpoint, along with legislative origins & options
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This is the most personal piece I've ever written. It's about my last three years living with chronic pain - the mystery, the loneliness, and the failures of the system. (Warning: discusses self harm and suicidal thoughts.) theguardian.com/society/2023…

I couldn’t do chores or hold the baby – even the doctors were fed up with me: my life with chronic...

What started as an ache in my arms got so bad I had to stop driving and could barely work. Three years on, I am one of 3 million people in the UK living with pain that never goes away

theguardian.com
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Do you know or have been involved in a #PatientEngagement initiative or project that inspired you? Nominate it now for the first global “Made with Patients’ award! Submit now: eu1.hubs.ly/H03B65s0 #MadewithPatients #PatientEngagement
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Physio and #ketamine have made the biggest difference treating my #CRPS, so I’m especially excited about this upcoming session from LePub!
LePubScientifique@LePubScientifiq17 Apr 2023
Get ready to explore the fascinating world of psychedelic-assisted pain therapy and its potential to revolutionise pain care worldwide with James Close, who is part of the Psychedelic Research Team at Imperial College, London. Tickets at lepubscientifique.com
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TheMeaningofPain retweeted
IASP
@IASPpain4 Apr 2023
The latest #PAINReports article discusses higher self-perceived stress reactivity is associated with increased #chronicpain risk. bit.ly/3ziqPXd
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Replying to @Painstorm_APDP
@Painstorm_APDP Dundee is now recruiting participants dundee.ac.uk/stories/dundee-… @UoDMedicine @TASC_TCTU @nrs_pain @LesleyColvin1 @Blairhsmith1H @HLHebert16 @ThakkarBhushan @fionatalkington
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Come and join us. Plug into our free community facebook.com/groups/37052415… Listen to our free podcast lepubscientifique.podbean.co… Make 2023 the year you get confident treating pain and join Le Pub PREMIUM Membership, just £15/month (cancel any time)⁠ lepubscientifique.com
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I am over the moon with how the new children's book series (Zoe and Zak’s Pain Hacks) turned out! I want to say a big thank you to the many people who contributed to the project over the past 5ish years!   A virtual 'book launch'? 👇 (1/3)
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TheMeaningofPain retweeted
Tim McVicar@TimMcVicarPT4 Feb 2023
"The person with pain is the expert in what matters in their life" @adiemusfree on self-management at #SSC2023. Thought provoking talk for all clinicians watching on 👀
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New podcast episode! Consultant Neurologist Prof. John Stone (@jonstoneneuro) talks about links between CRPS and functional neurological disorder (FND) and the impact this has on pain care and treatment. Listen here: lepubscientifique.podbean.co…
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Replying to @PhilsClinsChat
@philsclinschat is back for 2023 and with a twist! Now recorded with a live audience of clinicians & u are invited! NEXT WEEK u can join Prof Havi Carel and I as we explore illness, health and wellbeing using phenomenology. 🖇️ us02web.zoom.us/webinar/regi… + join The Hive
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NEW Series! Tim shares the new ideas he has learned from the Le Pub guests this month, what he has used in the clinic, how it has impacted his patients & what has helped him to be a more effective, successful & confident clinician. Live and on replay us02web.zoom.us/webinar/regi…
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🎶 Listening to preferred music when receiving painful stimuli leads to higher pain thresholds and lower perceived pain scores in comparison with disliked music. Preferred music could be beneficial for patients with pain or undergoing painful procedures journals.plos.org/plosone/ar…
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TheMeaningofPain retweeted
Derick Luu@derick_luu16 Jan 2023
Attention 🇨🇦 #chiropractors! Our research team at @McMasterU is interested in the role chiropractors play assessing & managing Complex Regional Pain Syndrome. #CRPS Please complete our short online survey to help us learn more surveys.mcmaster.ca/limesurv… @TaraLPackham @SRSMcMasterU
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The Effectiveness of Rehabilitation Interventions on Pain and Disability for Complex Regional Pain Syndrome; A Systematic Review @TaraLPackham @joymacdermid journals.lww.com/clinicalpai…
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This 🧵 is a fantastic response to a common question. While I rather like metaphors, validating/reassuring in this way would help me feel comfortable moving forward through pain/uncertainty.
Laura Rathbone🌈 she/her@laurarathbone13 Jan 2023
Replying to @jamesbclose @adamdobson123 @DerekGriffin86 @timbeames @JackAChew
Such a great question, and hard to answer in limited text. However, my rule of thumb is to stay away from metaphors as much as possible and speak plainly. The people I work with are adults and deserve grown up communication If they find their own metaphors, great I'll use them
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Richmond has developed a unique clinical approach to pain over the last 20 years. Find out what has worked (& what hasn't) and take away practical skills that you can implement immediately Clinical Confidence is exclusive for Le Pub PREMIUM members⁠ ⁠ lepubscientifique.com
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TheMeaningofPain retweeted
Pain Canada@pain_canada5 Jan 2023
If you live with pain, does it change throughout the day? The CircaPain research team is studying how location and time of day impact pain and want to hear about your experience. Learn more here: circapain.ca
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Led by Terry Walters, our review: Persistent nociceptor hyperactivity as a painful evolutionary adaptation with Robyn Crook, @Neely_Lab & @UTDPainLab is out in @TrendsNeuro! sciencedirect.com/science/ar… – at Cambridge, England
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