We support families & professionals, educate, campaign for change & fund research.
London, England
Joined June 2013
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UK Thalassaemia Society retweeted
18/10 was #MenopauseAwarenessDay & we marked it by launching our education series on Menopause with Thalassaemia!
@VikramSinai gave an insightful talk to kick off the 4-part series which will run every Wednesday till Nov 6th.
Catch up on the talk here:
uclh.nhs.uk/theredcellnetwor…
UK Thalassaemia Society retweeted
Come & work with us! Part-time band 7 clinical/counselling/health psychology post in #sicklecell & #thalassaemia
healthjobsuk.com/job/UK/Lond…
Creative and flexible work in a lovely team where psychology is really valued @docesr @StGeorgesTrust @SickleCellUK @teamukts @HCCWestLondon
UK Thalassaemia Society retweeted
We are excited to be running a series of Menopause Awareness Sessions with an exclusive focus on Thalassaemia.
Starting October 16th
Sign up uclh.nhs.uk/theredcellnetwor…
We are teaming up with @VikramSinai and Babita from New Chapter Nutrition for Menopause!
@teamukts
@HCCWestLondon
We are holding a patient/ carer meeting on September 16th 7-8pm & would ❤️ to hear about your experiences. What works well for you? What would you like to see improve?
You can speak honestly & openly & won’t be identified!
Please email [email protected] to register!
We are holding a patient/ carer meeting on September 16th 6-7pm & we would love to hear about your experiences. What works well for you? What would you like to see improve?
You can speak honestly & openly & won’t be identified!
Please email [email protected] to register!
Have you seen this video message from our patron Peter Polycarpou?!
If not, you’re in luck!
Thanks Peter for all of your support and advocacy of these year! We are grateful to have you on our team!
#teamukts
UK Thalassaemia Society retweeted
Islington vision for a greener, healthier area between Nag’s Head to York Way recently became a reality!
parikiaki.com/2024/08/isling… to offer ‘life-changing’ gene therapy for blood disorder thalassaemia
parikiaki.com/2024/08/nhs-to…
#Thalassaemia @teamukts
UK Thalassaemia Society retweeted
I am not sure I have ever been more excited and happy for any news in my working life. This will be truly life changing and I am so proud of colleagues and friends who kept going until NICE SAID YES!!!
We are thrilled to share some exciting news!
The NHS will soon offer gene therapy to patients over 12 with transfusion-dependent #Thalassaemia, thanks to NICE's groundbreaking recommendation under the managed access agreement! 🌟
UK Thalassaemia Society retweeted
Fantastic to hear that NICE have approved gene-editing therapy as a treatment and potential cure for thalassaemia. This will transform the lives of patients with beta-thalassaemia who have to have regular blood transfusions. Well done all at @teamukts for lobbying hard for this
First gene-editing therapy may cure blood disorder bbc.in/46GpRnO
UK Thalassaemia Society retweeted
Delighted to share this great news! Thanks to brilliant leadership @AmandaPritchard @SamRobertsNHS, support from patients & Herculean effort by colleagues across @NHSEngland, @NICEComms @MHRAgovuk @teamukts, Casgegy is now available on the NHS for people living with Thalassemia!
'Gene therapy would mean a lot to me — it would be a life-changing treatment.'
Kirthana has thalassaemia and could be one of the the first people in the world to benefit from a gene-editing treatment that could cure her blood disorder. england.nhs.uk/2024/08/gene-…
ALT Kirthana sits on a wall with a garden behind her. She is wearing a floral dress and is smiling.
Our beautiful Kirthana ❤️
Kirthana will be featured on BBC later today!
'Gene therapy would mean a lot to me — it would be a life-changing treatment.'
Kirthana has thalassaemia and could be one of the the first people in the world to benefit from a gene-editing treatment that could cure her blood disorder. england.nhs.uk/2024/08/gene-…
ALT Kirthana sits on a wall with a garden behind her. She is wearing a floral dress and is smiling.
UK Thalassaemia Society retweeted
NHS to offer ‘life-changing’ gene therapy for blood disorder thalassaemia dlvr.it/TBdxc7
First gene-editing therapy may cure blood disorder; Beta Thalassaemia Major
bbc.co.uk/news/articles/c4gz…
We are thrilled to share some exciting news!
The NHS will soon offer gene therapy to patients over 12 with transfusion-dependent #Thalassaemia, thanks to NICE's groundbreaking recommendation under the managed access agreement! 🌟
Diversity is vital to our charity & nation.
#teamukts condemns the recent rioting & stands against any prejudice advocating for inclusion & equality.
To our families affected by #thalassaemia, hcps, blood donors & neighbours remember, you are seen, heard & valued ❤️
UK Thalassaemia Society retweeted
Very proud that finally our 3 year campaign to ensure there is up-to-date VTE anticoagulation guidance for patients with sickle cell and Thalassaemia with venous access devices is here! @redcellemma @_JohnBrewin onlinelibrary.wiley.com/doi/… @ThrombosisUK @BritSocHaem @SickleCellUK
🌟 Good morning, you! 🌟
Today we are shining on work streams.
Though #teamukts is a very small charity, we are doing BIG things for patients, families and healthcare professionals affected by #thalassaemia.
Learn more at ukts.org.
#WorkingForThalassaemia
Did you know that #teamukts is committed to supporting patients, families, and healthcare professionals?
Our amazing team of volunteers, staff, trustees health care professionals and patrons are 100% dedicated to improving the lives of those affected by #thalassaemia in any way!
Families are also at the heart of what we do. We provide guidance, education, and emotional support to parents, siblings, and loved ones, building a strong network so no one has to fight alone.
#thalassaemia #teamukts
#teamukts extends vital support to healthcare professionals too. We collaborate, educate, and raise awareness to ensure they have the resources needed to provide the best care for treating our #thalassaemia community.