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Thank you so much to Jackie Stubbs, landlady of the White Lion for her continued support of Jons Foundation. She has been the king pin in its build. Now donating £1 to Jon Shaw Foundation per Sunday meal sold. 😘 Fabulous.
jonshawfoundation.org
Fab, thank you so much.
Great news, schools in the Alexandra Academy Trust are raising funds for JSF. Jon was a pupil at @monkscop so we have a close connection. Thank you to all for choosing us to benefit from your sports days. Have lots of fun. #independenceinepilepsy #epilepsyawareness
Big bird retweeted
#independenceinepilepsy #epilepsy #sudep #seizures
JSF helping young people gain the confidence to achieve on their own terms with the reassurance that help will arrive when they need it.
Big bird retweeted
This year our theme is inspiring independence in epilepsy to reflect the bedrock of our charity objectives. Keep watching our socials leading up to the 26th for news about what we’re doing, & how you can help. @BBCRadioStoke @CreweNub @CheshireLive @RagNBoneMan @TommyFreemo15
Big bird retweeted
Walk For Epilepsy: From Llangollen to Crewe, only a few days to go before the team head off go Llangollen. Please support them in anyway you can. Donate, share or give them a wave if you see en route.
@BBCNWT @CheshireLiveCrw @BrainAblaze @acornmotorgroup
crewe.nub.news/whats-on/comm…
So proud of this team and the commitment to raising awareness of epilepsy and bereaved siblings and friends. Forever grateful of the funds they are raising to help young people who need us. #epilepsy #sudep #bereavementsupport #siblings #seizuremonitors
Walk For Epilepsy: From Llangollen to Crewe, only a few days to go before the team head off go Llangollen. Please support them in anyway you can. Donate, share or give them a wave if you see en route.
@BBCNWT @CheshireLiveCrw @BrainAblaze @acornmotorgroup
crewe.nub.news/whats-on/comm…
Brilliant, you’re all working so hard. @CheshireLive @CreweNub @BBCNWT @crewealexfc @BBCRadioStoke @881signalfm @thecat1079
Big bird retweeted
Fingers crossed we get some good news on 09 August. Any marathon runners out there fancy it? Keep an eye on our socials.
@LondonMarathon @SandbachSport @GuyWithEpilepsy @EpilepsyAlarms @Sandbachtownfc @CreweNub @crewealexfc @MedicAlertUK
I am really looking forward to this fantastic night. Book a table and enjoy the night with your colleagues, families and friends. You will have a great time and support a great charity too. @Sandbachtownfc @CheshireLiveCrw @KieranMullanUK @CreweNub @thecat1079 @Nakatcha
🪩 Black Tie & Sparkle Ball 2024 🪩
Don’t forget to book your places at our fabulous festive evening of celebrations. To book, simply send us a message or email [email protected] 10% off ticket price if you pay in full before 31 May. @CranageHall
Big bird retweeted
We very much appreciate funding IT Alert Pulse Companion. We believe it improves care of our daughter and make impact on quality of our family life. Thank you!! This is what your fundraising does. @EpilepsyAlarms @MedicAlertUK @Acornmotors @Nakatcha #epilepsy #sudep #seizures
So proud to be a part of this amazing charity. All for Jon. Thank you Trustees past and present for all your hard work getting us to this point. Thank you to all our supporters who do so much in the background. Thank you to all the businesses who continue to help us
@MARSLAND27
These are just a few of the 100s of young people and families we have supported so far. @EpilepsyAlarms @SAMi @GuyWithEpilepsy @easyuk @TheNotoriousEEG @EpilepsyInst @BehaviourDave @acornmotorgroup @CreweNub @CheshireLiveCrw @BBCNWT @GranadaReports @SUDEPaware @KieranMullanUK
Big bird retweeted
Krazy Races, Soapbox racing are coming to Crewe on 14 July and we could be the headline charity. All we need is your votes. Details on Facebook. Thank you. X
facebook.com/100069443601628…?
@SandbachSport @acornmotorgroup @AromaSensesOils @TheNotoriousEEG @ActiveTravelCre @Nakatcha
Please vote for Jon Shaw Foundation, they have the opportunity to be the headline charity at this event.
@acornmotorgroup @SandbachSport @HungerfordAcad @monkscop m.facebook.com/events/861244…
Big bird retweeted
We have been successful in our bid for a signed shirt to auction. We will open bidding next month, keep watching.
@ManUtdStuff
@EpilepsyAlarms
@samialert
@MedicAlertUK
@EpilepsyInst
@SUDEPaware
Well done everyone, can’t wait to see the final total raised. #epilepsy #sudep #bereavement #siblings
@CreweNub
@KieranMullanUK
@acornmotorgroup
@EpilepsyAlarms
@Cheerbrook
@SandbachSport
@crewealexfc
@epilepsysociety
@epilepsyaction
8 October a team from The White Lion set off from Chester and walked 27 miles back to Crewe, it took 8 hours and despite the blisters you can see the smiles are still there. All to raise funds and awareness of Jon Shaw Foundation. Latest count just over £2770
@CheshireLiveCrw
You can WIN £250 for Jon Shaw Foundation and a £250 John Lewis & Partners gift card for yourself! Just enter the @easyuk Back to School giveaway for FREE by visiting their giveaway page and clicking any brand. Enter today: easyfundraising.org.uk/offer…
Big bird retweeted
Looking forward to working with the team. Promoting awareness pitch-side.
@EpilepsyRUK
@EpilepsyAlarms
@Sandbachtownfc
@SUDEP
@siblingbereavement
Big bird retweeted
Charlie said “ I love it and it makes me feel better that people will know if I have a seizure”
Mum said “… It also means that I can let Charlie have more independence knowing that I will be alerted”
#epilepsy #seizures #SUDEP
@EpilepsyRUK
@easyuk
@youngepilepsy
@CreweNub
Big bird retweeted
“Jon shaw foundation helped my daughter massively by funding an Embrace watch, she has epilepsy which isn’t controlled with medication. Now I know I can get Cora the help,she needs straight away.”
@AromaSensesOils
@acornmotorgroup
@CreweNub
@CheshireLiveCrw
@KieranMullanUK
Big bird retweeted
Wow what a busy July, 20 monitors and 9 pillows donated to young people around the UK. Thank you to all our supporters for raising vital funds for our work.
@ActiveTravelCre
@CreweNub
@RagNBoneMan
@CreweAlexITC
@CheshireLiveCrw
@KieranMullanUK
@Nakatcha
@AromaSensesOils
The man behind the Foundation and the reason we help young people with #epilepsy & #bereavement
Jon Shaw 22/3/00 - 16/6/2019
@acornmotorgroup
@ActiveTravelCre
@BrainAblaze
@CreweNub
@EpilepsyAlarms
@GranadaReports
@MedicAlertUK
@SUDEPaware
@BBCNWT
@BBCRadioStoke
