Please -everyone! Since #Refsum is essentially a genetically linked metabolic disorder with some telltale anatomical anomalies, early diagnosis and reduction of phytanic acid in one's diet can slow the course of neurological decline. The first step is awareness and diagnosis.
Support Refsum Awareness Week @ DARE Fest 2023
Research = Knowledge = Better Living
Online activities June 10-18.
Patient Stories, Refsum Diet Challenge and educational videos from medical experts.
Learn More & Register: givebutter.com/DARE-Fest-202…
#CureRefsum #RareDisease
Donald Samulack retweeted
givebutter.com/DARE-Fest-202…
Register for #DAREFest 2023 and make a difference for people like Sharon who is legally blind because of not receiving an accurate diagnosis for 40 years! She discusses how Global DARE Foundation is making a difference.
#refsum youtu.be/S_F0RkgLv4k
Donald Samulack retweeted
An early diagnosis can make a huge difference for folks with this rare disease. The Global DARE Foundation is funding research to
make lives better for those with Refsum.
Register for DARE Fest 2023 today and help us reach our goal of $35,000!
givebutter.com/DARE-Fest-202…
#DareFest
Donald Samulack retweeted
Start the summer with impact: DARE Fest 2023 – June 10-18!
givebutter.com/DARE-Fest-202…
Refsum is a rare disease that impacts people of all ages and genders changing vision, mobility & many aspects of life.
Early diagnosis and diet improve lives!
#DareFest2023 #refsum #RareDisease
Donald Samulack retweeted
Refsum is one of 7000 rare diseases. Global DARE Foundation is here to Defeat Adult Refsum Everywhere. Learn about how we are making a difference in improving the quality of life of people with Refsum by enabling earlier diagnosis & more: youtu.be/zxpGPeSEs9o
#RareDiseaseDay
Donald Samulack retweeted
#RDiscovery has added three leading titles from The New England Journal of Medicine (@NEJM) Group to its content repository. NEJM abstracts dating back ten years are now available to users of the R Discovery app: ow.ly/gq6q50M3mlE
#medtwitter #AcademicTwitter
Donald Samulack retweeted
Excited to be back at the Frankfurt Book Fair, the first in-person event among many, after long. Meet our team @NikeshGo and @TMRLAURSEN and discuss project ideas with which we @Cactusglobal & @Editage
can support you.
See you soon @Book_Fair #FrankfurterBuchmesse
Well, I just got home from a wonderful Sunday morning biking and kayaking with Brian and his wife -- Delaware River Pedal & Paddle (lnkd.in/epuPSvhS).
See bit.ly/3yRyw4L for an extended commentary on my outing!
#Cycling #Kayaking #GetActive #DelawareRiver
Thanks for the outpouring of curiosity... my LinkedIn post has been viewed over 3,300 times.
Brian has now offered a 10% discount code (DRPP10) to those who have viewed my post and wish a similar tour. Mention the code while booking through delawareriverpedalpaddle.com.
In addition to the #SSP2021 China session, be sure to download the @ImpactSci whitepaper on China:
"Navigating China's Academic and Research Landscape -- A Guide for Academic Publishers and Societies"
Download here: bit.ly/3yKXgwa
#Publishing #China
@Cactusglobal
A statement from Lauren Kane (@lauren_publish), President of SSP (@ScholarlyPub) regarding today's #SSP2021 China session:
"We are honored to have Dr. LYU of CAST contribute to the SSP meeting - thanks to you @samulack and all who helped put this stellar session together."
The "big unveil" is approaching... now I'm starting to get nervous!
Join our #SSP2021 session on China, with very special guest Dr. Zhaoping LYU, Executive Secretary of CAST.
Registration: ow.ly/KssL50EPfP0
#China #Publishing #Future #OpenAccess #SSP2021
@Cactusglobal
BREAKING NEWS: It is confirmed... The China Association for Science and Technology (CAST) will have very special presence during our upcoming session at the @ScholarlyPub 43rd Annual Meeting!
Registration: ow.ly/KssL50EPfP0
#China #Publishing #Future #OpenAccess #SSP2021
"The Changing Nature of Research Impact in a Digital World"
...the newest of whitepapers released by Impact Science (a CACTUS Solution).
Download it here: bit.ly/3xgoDgB
#DigitizeYourResearch and get the recognition it deserves!
#AcademicChatter #PhDlife #Publishing
Persistent identifiers are the key to the "plumbing" of scholarly publishing! They are key to discoverability.
#NISOPlus21 Session: Identifiers, Metadata, and Connections
#Publishing @ImpactSci
We're excited to be speaking today in the Identifiers, metadata, and connections session at NISO Plus 2021 -- please join us!
sched.co/fMnD
@dwyatt_deborah @calamur @samulack
@NISOInfo #NISOPlus21 @sched #Publishing
Announcing the next R Upskill masterclass with award-winning scientist, Brian Uzzi - January 28, 2021 (12 pm GMT / 7 am US-ET).
STRATEGIES TO ENHANCE TEAM SCIENCE FOR INTERDISCIPLINARY RESEARCH SUCCESS
Don't miss out! Reserve today: bit.ly/R_Upskill
#phdchat #researcher
Mary Ann Liebert author services has just gone live!
Website: bit.ly/3nfdhE5
#Publishers #Authors #Researchers #Publication #Editing #Infographics #Video #PhDchat #AcademicTwitter
@LiebertPub, @Editage, @ImpactSci, @Cactusglobal
Donald Samulack retweeted
How do you deliver #peerReview-ready manuscripts? (How do you do a pre-peer review?) Note the points below 👇 & check out our #ScientificEditing service here 👉 ow.ly/wWRZ50BBihr
#PeerRevWeek20 #TrustInPeerReview #researchPublishing #manuscriptEditing #sciTwitter #phdChat
Donald Samulack retweeted
As the #ThinkCheckSubmit checklist is being discussed in the ongoing #webinar on Building Trust in and Through the #PeerReview Process...
👉 ow.ly/jpdh50BBgPz
#PeerRevWeek20 #TrustInPeerReview #sciTwitter #phdChat #ecrChat #academicTwitter #ScientificEditing


















