@GlobalDAREFound

Defeat Adult Refsum Everywhere Global DARE Foundation's mission is to promote world-wide awareness & better quality of life for everyone diagnosed with #Refsum

 Global
defeatadultrefsumeverywhere.org/
Joined February 2023
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5Media
Listen now by visiting AMI.ca/liveaudio! #Refsum
kellyandco@kellyandcoami18 Jul 2023
US Ambassador Alan Gunzburg with the Global DARE Foundation chats with us about their work advocating for patients with Refsum disease.
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This #DeafblindAwarenessWeek, we honor Helen Keller, who overcame tremendous obstacles to become an influential advocate for the deafblind community. Helen Keller's indomitable spirit and unwavering determination continue to inspire the Foundation's work. #HelenKellerDay
The words “Foundation Fighting Blindness” above an image of Helen Keller smelling a rose. Below, the words “June 27 Helen Keller Day.”

ALT The words “Foundation Fighting Blindness” above an image of Helen Keller smelling a rose. Below, the words “June 27 Helen Keller Day.”

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An early diagnosis can make a huge difference for folks with this rare disease. The Global DARE Foundation is funding research to make lives better for those with Refsum. Register for DARE Fest 2023 today and help us reach our goal of $35,000! givebutter.com/DARE-Fest-202… #DareFest
The faces of Refsum. Five images of people, some with service dogs, beside the text: Help us help them! Register for DARE Fest 2023 June 10 - 18. Every donation counts!

ALT The faces of Refsum. Five images of people, some with service dogs, beside the text: Help us help them! Register for DARE Fest 2023 June 10 - 18. Every donation counts!

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givebutter.com/DARE-Fest-202… Register for #DAREFest 2023 and make a difference for people like Sharon who is legally blind because of not receiving an accurate diagnosis for 40 years! She discusses how Global DARE Foundation is making a difference. #refsum youtu.be/S_F0RkgLv4k

DARE Fest 2023

Refsum Awareness Week from June 10th-18th

givebutter.com
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Support Refsum Awareness Week @ DARE Fest 2023 Research = Knowledge = Better Living Online activities June 10-18. Patient Stories, Refsum Diet Challenge and educational videos from medical experts. Learn More & Register: givebutter.com/DARE-Fest-202… #CureRefsum #RareDisease
Save the Date: DARE Fest 2023 June 10-18. Learn, play, participate in a 5K event. Help support research to cure Refsum Disease!

ALT Save the Date: DARE Fest 2023 June 10-18. Learn, play, participate in a 5K event. Help support research to cure Refsum Disease!

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Global DARE Foundation retweeted
Donald Samulack@samulack2 May 2023
Replying to @GlobalDAREFound @CNIB @guidedogs @RNIB @rarediseaseday @RareDayUS @CNIB_DBCS @fight_blindness @FB_Canada @PBA_savingsight
On behalf of the Board of Directors of the @GlobalDAREFound, I'm looking forward to #Darefest2023 activities. Get involved, participate, educate, and if you can, donate a few dollars. Everyone associated with Global DARE is committed to making a difference for #Refsum patients.
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Start the summer with impact: DARE Fest 2023 – June 10-18! givebutter.com/DARE-Fest-202… Refsum is a rare disease that impacts people of all ages and genders changing vision, mobility & many aspects of life. Early diagnosis and diet improve lives! #DareFest2023 #refsum #RareDisease
Register now for DARE Fest 2023 June 10 - 18. A week of fun and education. Help us find a cure for Refsum Disease.

ALT Register now for DARE Fest 2023 June 10 - 18. A week of fun and education. Help us find a cure for Refsum Disease.

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Refsum is one of 7000 rare diseases. Global DARE Foundation is here to Defeat Adult Refsum Everywhere. Learn about how we are making a difference in improving the quality of life of people with Refsum by enabling earlier diagnosis & more: youtu.be/zxpGPeSEs9o #RareDiseaseDay
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