Husband, father, son, leader, Elder and Coach(ACC) in the United Methodist Church, Director of Congregational Excellence/DCM, Great Plains UMC-Living with ALS
Salina, KS
Joined June 2008
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Those families have who sacrificed comfort andsecuritÿ shouldn’t be abandoned without the best net of support, period. #EndALS #ActforALS #StantonStrong
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nathanstanton retweeted
Imagine this.
You are dying or your beloved is dying.
You're sure when leaders hear your plight-they'll care, they'll try.
Instead you hear that's not how it works, there's rules, there's not enough data. Simply, that's not my job.
And we die, trying.
Imagine that.
#ThisIsALS
I’ve watched a lot of football in my life and that game was an offensive masterpiece. A new bar has been set for excellence. A new puzzle for defenses to figure out. #StantonStrong#kcchiefs instagram.com/p/CZGPyrnrGEV8… – at Salina, KS
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All we have is love, resilience, and persistence, to live our lives with all we have! Even though normal ways of life are gone, I’m taking on 2022 as my best year yet to live. No matter what, everyday is the best day of my life!
nathanstanton retweeted
Today, I signed the Accelerating Access to Critical Therapies for ALS Act. Thanks to a movement led by patients and caregivers and bipartisan members of Congress, we are finally closer than ever to new treatments, and hopefully a cure.
nathanstanton retweeted
Yes, this is our study!!
We are in the news.
Did you read our discovery?
An innovative study conducted by @NorthwesternMed scientists revealed the importance of targeting the brain in ALS therapy, as opposed to the longstanding focus on the spinal cord. bit.ly/30HJq1q
ALT illustration of a ball of plasma
nathanstanton retweeted
Informed optimism doesn’t mean you only look at the bright side. It means you don’t overlook the bright side.
If you won't see possibility, you can't solve problems. If you can't imagine a best case, you don't make things better.
The greatest antidote to fear is grounded hope.
nathanstanton retweeted
I am in love with these neurons
The upper motor neurons!
They work so hard and they do their job so well, that you do not even realize they exist, but when they stop working you get ALS, HSP, PLS, long term paralyses after spinal cord injury..
They are majestic!
Respect pls
Merry Christmas, from the Stanton’s 🎄🎁🙏🏻 @ Salina, Kansas instagram.com/p/CX5EmWZrgACZ… – at Salina, KS
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nathanstanton retweeted
Last week after the Senate passed #ACTforALS, I dreamt of watching my kids grow up. The bill will likely not help me on time, but #NurOwn can. NurOwn stopped progression and improved function in some #ALS patients. pALS today want a chance to live. Please help @califf001 @US_FDA!
This is history made out of the weeks of hours sacrificed by pALS and cALS refusing to live with the status quo: make yourself a living lab rat for clinics and figure out how to keep quality of life while dying of a terminal disease no one really wants to look at.
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As a pALS, I want to say thank you to those who have the persistence, acumen, and the ability to cross the finish line. #grateful #nottodayals #movethechainsonALS #Stantonstrong
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nathanstanton retweeted
#NurownWorks -Congress MUST tell @FDACBER to APPROVE SAFE/EFFECTIVE #NUROWN NOW! #EndALS
@RepAnnaEshoo @RepSchakowsky @rosadelauro @ChrisCoons @SenJohnThune @RepMullin @SenatorDurbin @SecBecerra @SenatorBraun @cathymcmorris @RepMikeQuigley @brettguthrie @RepJohnCurtis @califf001
#NurOwn stopped my husbands #ALS progression TWICE. Once in #P3 trial and then in #EAP. He needs more doses so he can watch our little girl grow up. She needs her daddy. We need #NurOwnNow. Eric is #LivingProof that #NurOwnWorks. Please approve a #Phase4! Give us a #ChristmasGift
nathanstanton retweeted
Shame on you, @RepRalphNorman (R-SC), @RepThomasMassie (R-KY) & @RepChipRoy (R-TX) for NOT supporting #ACTforALS. How does it feel to be the 3 men out? Know we will all work VERY hard to get you defeated in your next election. Clearly, 3 VERY blind mice.
This future QB1 has brought teammates out to throw routes almost every day the last 2 weeks and the group is growing! Taking full advantage of the unseasonably warm December weather #CultureBeatsScheme #leadership #OneVision
nathanstanton retweeted
This week we celebrated #ACTforALS being passed in the House. Today I ask the Senate to do the same and pass #S1813. ACT for ALS gives hope to the ALS community by increasing access & development of promising treatments. Please sponsor this bill @JohnCornyn @SenTedCruz
nathanstanton retweeted
Going to bed exhausted with pain, grief and suffering from the loss of my two boys to ALS so young Irish twins dead 1 year 10 days apart @PattyMurray Please You MUST #Schedulethevote @SenSanders Act for ALS please don’t let me lose another loved one Hasn’t a mom suffered enough
