pediatric/adult hematologist with hemophilia focus, passionate to improve care for women/girls with bleeding disorders, clinical researcher, proud cheesehead
Wauwatosa, WI
Joined March 2011
- Tweets131
- Following358
- Followers480
- Likes431
lynn malec retweeted
Joshua Muia kicking off #HTRS2025 Research Colloquium sharing how @HTRStoday help build careers in hemostasis and thrombosis.
lynn malec retweeted
Lynn Malec presents the latest from the XTEND-ed Phase 3 study! The second interim analysis reveals two-year clinical outcomes of once-weekly efanesoctocog alfa #prophylaxis in children with severe #haemophilia A. How does it impact bleed control and quality of life? #EAHAD2025
lynn malec retweeted
If experts like Dr. Lynn Malec are still learning about #jointhealth and #hemophilia, think about how much there is still to learn, and account for, for most patients.
New insights from the EXTEND study reveal improved hemophilia joint health scores! Learn more in our latest episode of Global Hemophilia Report.
bit.ly/ghr_podlink
Featured Advertiser: @SanofiUS
lynn malec retweeted
It is time for one of the most famous slides in #hemophilia to be updated. Paper in @JTHjournal describes prospectively collected bleeding rate data in 825 children with mild hemophilia. tinyurl.com/yt4vvnes
lynn malec retweeted
Check out publication by VBRI Senior investigator Qizhen Shi @QizhenShi and collaborators Anti-mCD20 in combination with α-mCXCL13 monoclonal antibody inhibits anti-FVIII antibody development in hemophilia… pubmed.ncbi.nlm.nih.gov/3906…
lynn malec retweeted
A pediatric legend and the heart and soul of @residentsofchp . Dena taught us every day by example and with sage advice that led to a generation of Pittsburgh Pediatricians. She will be missed.
We would like to remember and honor the memory of Dr. Dena Hofkosh, Emeritus Professor of Pediatrics, who passed Tuesday morning. She will be greatly missed by all. Please read Dr. Dermody's message here: pediatrics.pitt.edu/news/mes…
@ChildrensPgh @UPMCPhysicianEd @PittHealthSci
lynn malec retweeted
In an editorial in @haemophilia_jnl Hermans and Pierce discuss the recent advances in #hemophilia treatments and look forward to the time when affected individuals can lead a life with no hinderance from the disease. tinyurl.com/yc8b7bby
lynn malec retweeted
@Versiti Gala Awards Dinner - Bob Montgomery won the Greenwald award !!! Congratulations Bob! 🎈🎈🎈🎈thanks to Chris Miskel our CEO @BloodResearchWI
lynn malec retweeted
Our regular podcast episode this week features topics on AIHA during pregnancy, rapid immune tolerance induction in severe hemophilia A, and aging changes control of HSC proliferation loom.ly/Ddilz64
lynn malec retweeted
The Local Organizing Committee and Scientific Theme Leaders are receiving a tour of the #ISTH2023 Congress Venue, @Palais_Montreal — we hope to see you here in June! isth2023.org
lynn malec retweeted
📢 We are excited to announce the launch of the WFH Gene Therapy Registry (GTR)! We hope this registry will contribute to the long-term safety and efficacy of gene therapy for people with #hemophilia. Find out more: ow.ly/E3an50Mt9gq
lynn malec retweeted
Check out publication by VBRI investigators Ruchika Sharma, @VeronicaFlood18, @malecly and colleagues in @haemophilia_jnl onlinelibrary.wiley.com/doi/…
lynn malec retweeted
ASH has adopted the term "classical hematology," in place of what was formerly referred to as "benign" or "nonmalignant." Discoveries within #classicalheme have significantly advanced the field & continue to better the lives of those living with non-cancerous blood disorders.
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lynn malec retweeted
Masterful TED-style talk by @DavidLillicrap highlighting the incredible advancements made by his group & others in the genetic understanding & treatment of patients with inherited bleeding disorders. @QueensPathology @QueensUHealth @janephilpott
youtube.com/watch?v=XDT3IhCT…
lynn malec retweeted
Important day in the history of #haemophilia treatment. Today the first ever gene therapy for #hemophilia B has been approved by the FDA in the US. So now we have approved gene therapy for hemophilia A in Europe and hemophilia B in the US. tinyurl.com/2s3bujyb
lynn malec retweeted
VBRI researchers Brian Branchford and Lynn Malec @malecly published in Journal of Pediatric Hematology/Oncology: Safety and Efficacy of Direct Oral Anticoagulants for Treatment of Venous Thromboembolism in Pediatric Oncology Patients journals.lww.com/jpho-online…
lynn malec retweeted
.#AAV-directed gene therapy is a promising therapy for those living w/ #hemophilia B but anti-AAV antibodies may interfere w/ treatment. Researchers estimate prevalence of these antibodies in untreated patients: onlinelibrary.wiley.com/doi/… @yasspleen @SavitaRangaraj @nicola_curry
lynn malec retweeted
*NEW - EPISODE 5*
#MentalHealth and #Hemophilia in Adolescence and Young Adulthood
This episode explores the state of research & understanding of #haemophilia’s impact on a young person’s mental health.
Listen 🍎: apple.co/3tEfSNl
Learn 💻: bit.ly/3xYuF8h
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lynn malec retweeted
Cool work coming out of Emory @ChrisDoering4 lab on FVIII exposure and immune outcomes. @ATLPedsHemOnc @nashgreenie
Slower initial FVIII exposure rates evolving to steady-state FVIII levels in the normal or higher range support immune tolerance. loom.ly/EvLIrt8 #genetherapy #thrombosisandhemostasis
lynn malec retweeted
Pinch me, a #SoMe session at #ASPHO2022 for #PHODocs
Impressive panel @PTMcGann @PedsHemeDoc and @hmgcoa2 💪🏽♥️
