@lev_ian

I have a rare form of MND known as PLS

 Bideford, England
Joined February 2021
  • Tweets1.4K
  • Following325
  • Followers584
118Media
You can read my latest poem “Running!” by clicking on the link below - enjoy! Keep Strong 💪 Keep Positive!😎 m.facebook.com/story.php?sto…
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I’m back - writing poetry - you can read my latest by clicking on the following: Keep Strong 💪 Keep Positive!😎 facebook.com/100030197542811…

Ian Lev

Raising Awareness of MND! - POETS Day! The MND Association has released details for all those Warriors with the SOD1 gene who are having to travel and stay overnight outside of their NHS area to...

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Ian Lev retweeted
Saba Ahmad@SabSaba3Jan 31
Many in India are waiting for Tofersen approval which can treat SOD1 #ALS. When are we expecting it in India? It’s urgently needed to save lives @aiims_newdelhi @PMOIndia @JPNadda @MoHFW_INDIA
MND Campaigns
@mndcampaignsJan 28
We're grateful to @IanByrneMP for raising the issue of tofersen access at Prime Minister's Questions today. Everyone with SOD1 #MND should be able to access the life-saving treatment #tofersen. #PrescribeLife
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Every day matters when you have MND, no one understands that better than the people who share their stories with us, like Rob. We're shaped by their experiences, honesty and determination. We’re proud to share their voices as part of this new chapter.
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Every story matters. This is Rona's. Read it here 🔗 mndassoc.org/ronasstory
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"Be kind and love fiercely." "Love harder. Be present." "Do it now, don't wait." We recently asked our community what they would say to their younger self. Their responses were amazing.
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Six people are diagnosed with MND every day. Six people die from MND every day. There is currently no cure… not yet. This is exactly why every day matters. Help us make sure at least one more person learns about MND today.
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Every day we support people affected by motor neurone disease. Every day we push for better care and policy change. Every day we fund and drive research towards treatments and a cure. Every day matters.
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Today, the MND Association shared their rebranding, a project that I was proudly part of throughout 2025. The voice you hear was created using historical recordings of my voice and cloned using AI. All of this was made possible with funding from the MND Association.
MND Association
@mndassocJan 28
This is us, the MND Association. Renewed, united and driven every day to make change happen. Every day we support people affected by motor neurone disease, campaign for better care and fund ground-breaking research. Because with MND, every day matters.
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A real honour to represent Northern at the @mndassoc reception at Westminster, in the company of HRH Princess Royal. Pete Collins & the team are a great charity to work with, as we continue to build on our £23,000 fundraising efforts and our liveried & named Rob Burrow CBE train.
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A brand isn’t just a logo. It’s everything. Every moment of support, every day of research, every bit of awareness. Find out more about our new look and feel, shaped by you, the MND community.

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We’re so excited to share our new brand with you ✨🎉 If you’re an @mndassoc funded researcher, we’ll be in touch soon with more information for you! Keep an eye on your email inboxes over the next week 📩👀
MND Association
@mndassocJan 28
This is us, the MND Association. Renewed, united and driven every day to make change happen. Every day we support people affected by motor neurone disease, campaign for better care and fund ground-breaking research. Because with MND, every day matters.
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You can read my new poem/ blog on m.facebook.com/story.php?sto… Keep Strong 💪 Keep Positive
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Read my latest poem “A very much changed me!” - on my facebook page “Raising Awareness of MND! - POETS Day!” m.facebook.com/story.php?sto… Keep Strong 💪 Keep Positive!😎

Ian Lev

Raising Awareness of MND! - POETS Day! Just under a month 🗓️ to go until Sir Kev Sinfield will take on his 6th Challenge again running 🏃‍♂️ 7 in 7 - hopefully it will get its fair share of tv...

m.facebook.com
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Are you a local councillor interested in supporting people living with motor neurone disease, or do you know somebody who is? Join up to our new #MND Councillor Network today to find out more 👇 mndassociation.org/join-our-…
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Apply to become Chair of Trustees at the MND Association. We're recruiting a new Chair to help guide our mission to create a world free of #MND. Interested? Click below to learn more and apply. Closes Friday 31 October.

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- Lead a committed Board alongside the CEO and executive team - Be a trusted ambassador to stakeholders, partners, and policy makers - Help steer strategic development and manage the challenges of growth and change Apply below to become the MND Association Chair of Trustees.

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Apply to become Chair of Trustees at the MND Association. We're recruiting a new Chair to help guide our mission to create a world free of #MND. Interested? Click below to learn more and apply. Closes Friday 31 October.

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So, what is MND? Here are the facts. 👇 To find out more about MND, and what you can do to help, please visit our website 🔗 mndassociation.org 🧡 #MND
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One of my poems is featured! Keep Strong 💪 Keep Positive!😎 instagram.com/p/DPTDZ41DEWT/…

MND Association (@mndassoc) • Instagram photos and videos

instagram.com
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