ALS Advocate
Gurgaon India
Joined August 2013
- Tweets706
- Following283
- Followers91
- Likes6.2K
Why usually India is not considered as clinical trial sites for international researches ?
#ALS #MND
@PMOIndia @MoHFW_INDIA @vohglobal @IHWCouncil @AnupriyaSPatel @AnujaJaiswalTOI @JPNadda @alscasindia @IGIBSocial
SOD1 ALS now has a treatment and also many clinical trials are going on worldwide to find a cure. But Indians do not have access to any of them #clinicaltrials #ALS #Tofersen #neurology
@MoHFW_INDIA @CDSCO_INDIA_INF @aiims_newdelhi @AnujaJaiswalTOI @TargetALS_fdn @alscasindia
AIIMS had promised 2 years back to start ALS Multi speciality clinic. Has anyone been there and used the facilities ?
#ALS #EndALS
@aiims_newdelhi @alscasindia @NIMHANS_BLR @CDSCO_INDIA_INF @AnujaJaiswalTOI @vohglobal @IHWCouncil @MoHFW_INDIA @JPNadda
Why no ALS clinical trials in India when the whole world is trying to find a cure
#ALS #EndALS #MND
@CDSCO_INDIA_INF @IGIBSocial @MoHFW_INDIA @vohglobal @alscasindia @IHWCouncil @aiims_newdelhi @NIMHANS_BLR @TargetALS_fdn @AshaEkHope @AnujaJaiswalTOI @JPNadda
Saba Ahmad retweeted
❤️ Every Journey Is Built on Stories, Strength & Togetherness. 🧊
The ALSCAS journey has always been about standing together, sharing experiences, and reminding every ALS family that they are never alone. 🤝❤️
🧊 ALSCAS Ice Bucket Challenge 2026
Less Ice, Less Water, More Support, More Awareness!
From one voice to another, one video to the next, let’s carry this journey forward by spreading awareness, strengthening connections, and building a stronger ALS community. ❤️
🧊 Take the challenge. Pass it on. Keep the journey alive! 🤝
Saba Ahmad retweeted
The All India Institute of Medical Sciences (AIIMS) in New Delhi and the National Institute of Mental Health and Neuro Sciences (NIMHANS) in Bangalore are now part of our Global Natural History Study (GNHS)—adding to the most comprehensive and diverse #ALSResearch effort.
Saba Ahmad retweeted
MAJOR WIN FOR THE ALS COMMUNITY: ACT FOR ALS PASSES CONGRESS!
The Senate just passed the ACT for ALS Reauthorization Act, sending this critical legislation to the President’s desk.
This milestone is the result of the advocacy and unwavering determination from people living with ALS, their families, caregivers, and advocates across the country.
Today, we celebrate this important step forward and thank the ALS community and members of Congress for coming together to advance legislation that can make a meaningful difference for people living with ALS.
Now on to the President’s desk!
Saba Ahmad retweeted
Ice Bucket Challenge
Take Ice bucket challenge 2026 to help Raise awareness ✔️ instagram.com/reel/Ddn7qVgxa…
Take ALS Ice Bucket Challenge 2026 to help -
✅ Raise awareness
✅ Start and Speed up Clinical trials in India to find a cure
✅ Get TOFERSEN / QALSODY
approved in India
My voice represents many families waiting for options, action and hope.@MoHFW_INDIA @IGIBSocial @PMOIndia
Ice Bucket Challenge
Take Ice bucket challenge 2026 to help Raise awareness ✔️ instagram.com/reel/Ddn7qVgxa…
Start EAP Early Access Program for treating FUS #ALS in India .
Hurry! Every day counts!
@MoHFW_INDIA @alsadvocacy @alscasindia @PMOIndia @JPNadda @vohglobal @IHWCouncil @aiims_newdelhi @NIMHANS_BLR @PTI_News @DDNewslive @AnujaJaiswalTOI @AnupriyaSPatel
Start clinical trials in India for SOD1 #ALS
#icebucketchallenge
@MoHFW_INDIA @vohglobal @IHWCouncil @IGIBSocial @JPNadda @AnujaJaiswalTOI @DDNewslive @toi @PTI_News @PMOIndia @alsadvocacy @aiims_newdelhi @NIMHANS_BLR @alscasindia
Let Tofersen be approved in India to treat SOD1 #ALS a Neuro degenerative disease
@biogen @TOIIndiaNews @AnujaJaiswalTOI @alscasindia @MoHFW_INDIA @ICMRDELHI @JPNadda @PMOIndia @TargetALS_fdn @PTI_News @MndTrust @AshaEkHope
At the #PatientFirstNationalLeadershipRoundtable, Ms Saba Ahmad, Member, ALS Care and Support Foundation, India, brought the lived reality of the ALS community to the forefront
🌐 Join us in shaping a patient-first future.
ihwcouncil.org/patientfirsts…
📅 23 October 2026
📍 Mumbai
Tofersen/Qalsody by @biogen which treats SOD1 #ALS has been approved in 40 plus countries. A @FDA drug . Why it’s not approved in India 🇮🇳?@ICMRDELHI @MoHFW_INDIA @IGIBSocial @aiims_newdelhi @NIMHANS_BLR @Sci_MFaruq @JPNadda @alscasindia @MndTrust @TargetALS_fdn @AnujaJaiswalTOI
Is India starting clinical trial for #ALS any time soon
Patients waiting to get cured
@alscasindia @TargetALS_fdn @aiims_newdelhi @NIMHANS_BLR @MoHFW_INDIA @IGIBSocial @ICMRDELHI @DDNewslive @JPNadda @MndTrust
When world is conducting clinical trials, what is stopping India from starting one for #ALS #SOD1
@mndaustralia @alscasindia @TargetALS_fdn @CDSCO_INDIA_INF @MoHFW_INDIA @iamalsorg @PTI_News @JPNadda @aiims_newdelhi @NIMHANS_BLR @DDNewslive @AnujaJaiswalTOI
Why @biogen is delaying to get Tofersen approved in India to treat SOD1 #ALS. Hurry!
@AnujaJaiswalTOI @TargetALS_fdn @alscasindia @aiims_newdelhi @NIMHANS_BLR @ICMRDELHI @MoHFW_INDIA @JPNadda @DDNewslive @biogen
Approve Tofersen in India for SOD1 ALS @MoHFW_INDIA @aiims_newdelhi @alscasindia @JPNadda @TargetALS_fdn @biogen @CDSCO_INDIA_INF
Saba Ahmad retweeted
Your skills can create hope. Your support can change lives. 💚
Whether you're a designer, journalist, editor, digital media professional, student, or simply someone who wants to make a difference, there's a place for you at ALSCAS.
Volunteer | Donate
Scan the QR code to join us.
Saba Ahmad retweeted
Over a decade ago, our founder, Dan Doctoroff, took the # IceBucketChallenge with Mike Bloomberg.
We must continue to raise #ALS awareness and fund the research that gives those living with it hope for a better future.
Take the challenge and give today: ow.ly/NeWv50ZqVEH
India has more than 1L cases of #ALS out of which 2% are SOD1 ALS, no one talks about. Approve Tofersen NOW! People need treatment to survive. Why the delay
@alscasindia @TargetALS_fdn @AnujaJaiswalTOI @biogen @MoHFW_INDIA @CDSCO_INDIA_INF @JPNadda @aiims_newdelhi @NIMHANS_BLR
Chris Johnson's decision to share his diagnosis has brought the #ALSIceBucketChallenge back into the spotlight, and we're inviting you to join in to raise awareness and funds.
Research is the only way to build a world where #EveryoneLives — donate today: ow.ly/ibql50Zmay7