First marathon run this weekend as part of #BMVirtual with over £1000 raised for @cftrust. A big thank you for access to Orkambi and Kaftrio and fighting for a life unlimited 💛

Thank you @LetsRockCF! Medal pack arrived for #RockCFVirtual in the UK today. My own CF warrior loves the T-shirt. Would be great to support you again virtually next year.

Socially distanced 13.1 for #RockCFVirtual @LetsRockCF this morning, including wind and snow!

Celebrating today’s news with a glass of full fat milk. @MattHancock please don’t leave Wales & NI behind and ensure the UK has equal access to #LifeSavingDrugs4CF

#strawfiechallenge Every day my son fights to keep his lungs clear of sticky mucus to prevent infection and lasting damage. He needs #LifeSavingDrugs4CF. @MattHancock @NHSEngland @VertexPharma do a deal and save lives of people with #CysticFibrosis #OrkambiNow #PrecisionMeds4CF

@SeemaKennedy @MattHancock @Jeremy_Hunt @NHSEngland @VertexPharma Time for action, do a deal or set a date for #PlanB #LayDown4CF #OrkambiNow

Anglo-Saxon #CFYeflie #IHateYellow

#CFYeflie #IHateYellow

@SeemaKennedy @MattHancock please set a timeline for looking at alternative options and drive @VertexPharma to a date for accepting @NHSEngland’s offer or invoke #PlanB ..

Lovely time at Bella Pasta, thanks @Big_Bella #BellaKidsComp