Eva Smith (@evaasmity) profile picture

Eva Smith

@evaasmity
 London
Joined June 2011
  • Tweets33
  • Following237
  • Followers49
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Photo by Eva Smith (@evaasmity)Photo by Eva Smith (@evaasmity)Photo by Eva Smith (@evaasmity)Photo by Eva Smith (@evaasmity)Photo by Eva Smith (@evaasmity)Photo by Eva Smith (@evaasmity)Photo by Eva Smith (@evaasmity)Photo by Eva Smith (@evaasmity)
Eva Smith retweeted
LAGER Can (@CanLager) profile picture
LAGER Can@CanLager27 Sep 2021
Today our founder @kfreegard and I received the @QueensAwardVS at @wabbey on behalf of our amazing group, which includes legends like @Sheyla86614343 @runforyourwine @GracieGrazina @evaasmity & about 1797 other volunteers. What a privilege & a pleasure. Tx to all supporters.
Image from LAGER Can (@CanLager)
Image from LAGER Can (@CanLager)
Image from LAGER Can (@CanLager)
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Eva Smith retweeted
LAGER Can (@CanLager) profile picture
LAGER Can@CanLager2 Jun 2021
We are proud and excited to have been honoured with The Queen’s Award for Voluntary Service, the highest award a voluntary group can receive in the UK! We will celebrate by litter picking a few more streets for the #GreatBigSouthallCleanup! #QAVS2021 @QueensAwardVS
Image from LAGER Can (@CanLager)
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Fantastic stuff 👏 @CanLager #nubnews #nubit #news #ealing #litterpicking #queensaward ealing.nub.news/n/ealing-lit…
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Watch @vsmacdonald's report from #EalingHospital on @Channel4News at 7pm tonight. Featuring @harmanbhatia talking about how we're dealing with #Covid.
Image from London North West University Healthcare (@LNWH_NHS)
Image from London North West University Healthcare (@LNWH_NHS)
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Very proud of @DocGurj Dr. Gurjinder Sandhu @LNWH_NHS for getting #MBE for his work in #COVID__19. His leadership and vision helped us pull through the most difficult times! A very well deserved honour. #QueensBirthdayHonours #QueensHonours #BAME
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“I feel like I can plan for my future whereas two years ago, I could not even plan the day, let alone my future” @chanmillward tells @ElizabethGlinka about taking 50 drugs and supplements a day, including Orkambi Orkambi provision is being debated by MPs on Monday afternoon

Orkambi provision is being debated by MPs on Monday afternoon

Lunchtime political debate and films with @jo_coburn @afneil @BBCsarahsmith live six days a week when Parliament is sitting #bbcdp on weekdays - #bbcsp on Sundays

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Replying to @marionfellows
@marionfellows thank you for your moving speech at the Orkambi debate. We will get the drugs to help our children/grandchildren #OrkambiNow
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Today is the day of the debate! Over 100,000 signatures on the petition to make government stand up and realise how important it is that Orkambi becomes available in the UK! Our children’s lives matter. This is #afightwemustwin #fight4orkambi #orkambinow
Image from Claire O'Grady (@ClaireO281)
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You were brilliant @chanmillward really got the message across - well done and thank you so much. Thank you @daily_politics for the opportunity to reach the general public and explain about #OrkambiNow
Image from Strawfie Challenge (@strawfie)
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Please #OrkambiNow this is finally going to Parliament on a Monday, we can stop the needless deaths of thousands of Cystic fibrosis sufferers x
Image from Tina Burnham (@MrsDanielB)
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Joe can't eat, can barely breathe and weighs 4st. A small, pink pill called Orkambi could help thousands like him with Cystic Fibrosis, but NICE says it's too expensive. Heartbreaking to imagine my kids in this situation mirror.co.uk/news/uk-news/jo… #OrkambiNow
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Eva Smith retweeted
robyn (@robynbarnes99) profile picture
robyn@robynbarnes9919 Mar 2018
let’s hope today can bring us closer to getting access to orkambi, there should not be a price on a life, those with cf are suffering endlessly when there is a drug that could help improve their life dramatically and it’s being denied by NICE on the nhs due to cost!! #OrkambiNow
Image from robyn (@robynbarnes99)
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Eva Smith retweeted
Carl (@CKRosekilly30) profile picture
Carl@CKRosekilly3018 Mar 2018
Our government can find billions to facilitate war but can’t find the money to help the war that goes on inside of those of us that live with #CysticFibrosis. #OrkambiNow
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It’s immoral for anyone to withhold life saving medication because of cost - what price on a life??? #Orkambinow
Image from Joanne McCrossan (@JoanneMcCrossa1)
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#OrkambiNow #endtheDEADlock #CysticFibrosis TODAY'S THE DAY. The petition to get Orkambi approved is being debated in parliament at 4.30pm. The CF community will not give up until this drug is approved. Children and adults are dying waiting for it. please re tweet
Image from chris hobson (@chrishobson4)
Image from chris hobson (@chrishobson4)
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I still can’t believe there is a drug out there that’s such a game changer for cf, and yet it’s not available! #ORKAMBINOW
Image from Katy Mundford (@prettypinkkats)
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Replying to @Charles_MDuke
@Charles_MDuke - Are you supporting the #UKneedsorkambi campaign? We could do with you & your thousands of followers to back us. 🙌🏻
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Rly does. So hard to hear 6yr old wishing didn't have CF & not having power to take that away. Wd swap places in heartbeat #UKneedsorkambi xitter.cf/Nicole_Rennie/status/7…
Coleyy (@Nicole_Rennie) profile pictureColeyy@Nicole_Rennie4 Oct 2016
The thing with Cystic fibrosis is that It doesn't just effect us, it effects those around us to! @CFAware
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#ukneedsorkambi 2014 UK CF Registry: 2,789 people (England) 236 (Scot) 113 (Wales) & 111 (N. Ireland) could stand to benefit from Orkambi
Image from Strawfie Challenge (@strawfie)
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