French Registry of Myotonic Dystrophies / Observatoire Français des Dystrophies Myotoniques #RareDisease #DM1 #DM2 #Steinert #Database #MyotonicDystrophy
France
Joined October 2017
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DM-Scope@dm_scope
10 Apr 2024France
FranceConnected via WebAccount-level information, not a live location or per-post device.
Dr. Bassez’s presentation at the #IDMC14 congress in Nijmegen, Netherlands on “Mortality rate and predictors of death in the DM1 population, a registry-based study” . #DMScope
DM-Scope@dm_scope
8 Dec 2023France
FranceConnected via WebAccount-level information, not a live location or per-post device.
DM-Scope@dm_scope
16 Nov 2023France
FranceConnected via WebAccount-level information, not a live location or per-post device.
#JSFM2023 Suite des sessions posters avec les experts de l'@Inst_Myologie et @dm_scope au congrès @SMyologie
DM-Scope@dm_scope
16 Nov 2023France
FranceConnected via WebAccount-level information, not a live location or per-post device.
#JSFM2023 DM-Scope est présent au congrès JSFM 2023 à La Baule. Nous serons ravis de vous rencontrer sur place et d'échanger sur les projets de recherche en cours et à venir. Retrouvez-nous au poster P79 pour découvrir les dernières avancées de nos travaux. #DM1 #DM2 #DMScope
DM-Scope@dm_scope
15 Sep 2023France
FranceConnected via WebAccount-level information, not a live location or per-post device.
Today is International Myotonic Dystrophy Awareness Day Awareness Day.#MyotonicDystrophy #supportdm
DM-Scope@dm_scope
13 Feb 2023France
FranceConnected via WebAccount-level information, not a live location or per-post device.
DM-Scope@dm_scope
3 Jan 2023France
FranceConnected via WebAccount-level information, not a live location or per-post device.
DM-Scope@dm_scope
23 Nov 2022France
FranceConnected via WebAccount-level information, not a live location or per-post device.
RENDEZ-VOUS À TOULOUSE ! DM-Scope est présent au congrès #JSFM 2022 à Toulouse qui se tient actuellement jusqu'à vendredi soir. Nous serons ravis de vous rencontrer sur place et d'échanger sur les projets de recherche en cours et à venir.
Retrouvez-nous au poster n°19 !
DM-Scope@dm_scope
14 Sep 2022France
FranceConnected via WebAccount-level information, not a live location or per-post device.
DM-Scope@dm_scope
14 Sep 2022France
FranceConnected via WebAccount-level information, not a live location or per-post device.
#Myology2022 #DM1 Presentation of Denis Furling : Decoy gene therapy for Myotonic Dystrophy. It is now!
DM-Scope@dm_scope
13 Sep 2022France
FranceConnected via WebAccount-level information, not a live location or per-post device.
DM-Scope is attending the Myology 2022 congress, currently taking place in Nice until Thursday evening.
We would be very pleased to meet you on the spot and share information about ongoing and upcoming research projects. Meet us at poster number 324! #Myology2022 #DM1
DM-Scope@dm_scope
24 Jun 2022France
FranceConnected via WebAccount-level information, not a live location or per-post device.
DM-Scope@dm_scope
24 May 2022France
FranceConnected via WebAccount-level information, not a live location or per-post device.
📢 Le prochain #Téléthon aura lieu les 2 et 3 décembre 2022 partout en France et à l’étranger, sur le web et sur les antennes de @Francetele.
On compte sur vous👉bit.ly/3wBmYnA
#MondayMotivation #Téléthon2022
DM-Scope@dm_scope
28 Feb 2022France
FranceConnected via WebAccount-level information, not a live location or per-post device.
#raredisease #FSMR
C'est AUJOURD'HUI !
15ème JIMR le 28 février dans le cadre de la campagne de sensibilisation aux maladies rares "rendre visible l'invisible"
Toutes les Infos : alliance-maladies-rares.org/…
DM-Scope@dm_scope
3 Jan 2022France
FranceConnected via WebAccount-level information, not a live location or per-post device.
DM-Scope@dm_scope
24 Dec 2021France
FranceConnected via WebAccount-level information, not a live location or per-post device.
L'équipe de DM-Scope vous souhaite d'excellentes fêtes de fin d'année !
The DM-Scope team wishes you the very best of the holiday season !
DM-Scope@dm_scope
3 Dec 2021France
FranceConnected via WebAccount-level information, not a live location or per-post device.
DM-Scope@dm_scope
25 Nov 2021France
FranceConnected via WebAccount-level information, not a live location or per-post device.
#JSFM2021 Saint Étienne : Poster session, P22 : “Are research publications aligned with myotonic dystrophy type 1 individuals’ expectation? “ See you at the poster presentation to exchange ideas between 13h-14h25!
DM-Scope@dm_scope
26 May 2021France
FranceConnected via WebAccount-level information, not a live location or per-post device.
@IBECBarcelona researchers are developing the first three-dimensional model for #MyotonicDystrophy. The model combines patient cells and bioengineering techniques.
Congratulations for this huge work 👏👏👏
ibecbarcelona.eu/es/hacia-un…
DM-Scope@dm_scope
10 May 2021France
FranceConnected via WebAccount-level information, not a live location or per-post device.
Don't miss it !
To register 🔽
The next #euronmd webinar in association with @ERN_RND and @EANeurology is on the 20th May 4PM CET.
Muscle and Ageing
by Gillian Butler-Browne
from Centre of Myologie Research, INSERM, Paris, France
Register here, please:
aim.zoom.us/webinar/register…
