#longcovid since January 2023 #millionsmissing #disabled #findacure #autoimmune #research
Boston
Joined March 2012
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Hey @AskRobinhood , your automated support is atrocious. And not having a legit phone number to call in for support is even more ridiculous. Answer my goddamn requests.
Hey @mercari_app, your ui interface for shipping orders on your website leaves much to be desired. No packing slips available to print, and the seller "dashboard" is useless. Make the "ship this item" indicator an actual button to start the shipping process!
Nathan Cope retweeted
Until we have treatment for #LongCovid — until we are start supporting those disabled — Every single person is one infection away from losing their career, house, savings, & relationships.
If you think this is hyperbole, literally talk to anybody living with this condition.
Nathan Cope retweeted
“The response to #LongCovid has been muted. In the rush to declare the pandemic over, the low quality of life experienced by millions with long COVID has apparently been deemed acceptable.”
“It is not acceptable.” — @julialmv latimes.com/opinion/story/20…
Nathan Cope retweeted
New highly anticipated #LongCovid study from @UCSF now out 👇
“Overall, these observations challenge the paradigm that COVID-19 is a transient acute viral infection & provide evidence for T cell activation & viral persistence in tissues well beyond the initial illness.”
Wow, this new paper is a huge deal! T cell activation & viral RNA persistence were found up to 2 years post acute infection in #LongCovid patients.
Patients with T cell activation in the spinal cord and gut wall were more likely to have Long Covid. 1/
dlvr.it/St1mkn
Nathan Cope retweeted
Covid-19 may increase risk of the heart condition POTS, Postural Orthostatic Tachycardia Syndrome, which is more common among women between 15 and 50 years old and in people with certain autoimmune conditions.
Nathan Cope retweeted
🚨🚨Bad news…real time Disability Data from US Bureau of Labor Statistics (BLS) rose 857k in June to a new all time high of 34.15 million. The rate of change is accelerating again. If this was a stock it’s a break out chart and reacceleration of trend. Both employed women & men hit new highs as well.
Nathan Cope retweeted
My patient before #Covid;
walked 10,000 steps daily,
biked 20 miles on weekends.
My patient after #LongCovid uses a cane to pick up mail from the front porch.
#Covid is still here
#LongCovid is still raging.
Nathan Cope retweeted
3 and a half years on, with millions chronically ill due to Covid, we should legitimately and reasonably expect to be seeing doctors / researchers throwing the kitchen sink and more at #LongCovid by way of treatments. Literally every single immunotherapy in the cabinet...
Nathan Cope retweeted
This tracks with UK data too, where disability claims doubled for all ages and tripled for teenagers last year.
New data from the U.S. Bureau of Labor:
The number of people with a disability dramatically increased & hit a new record of 34 million in June 2023.
#LongCovid is a mass disabling event.
ALT graph of population of a disability increasing from 27 million in 2008 to 34 million in 2023
Nathan Cope retweeted
“Lyle often thinks back on his life before he initially caught COVID.. He worked as a personal trainer and a nutrition coach, but now his energy levels wane so easily that just having coffee with friends.. can induce chronic fatigue for up to a week.” #LongCovid
Nathan Cope retweeted
75-90% of #LongCovid cases happen after “mild”/non-hospitalized acute infections.
How do we get this moving? #research #longcovid #millionsmissing #teamclots #bill congress.gov/bill/118th-cong…
Probably why ice water plunges help so much with symptoms. forbes.com/sites/williamhase…
Nathan Cope retweeted
Do any #LongCovid treatment trials or biomedical studies in the UK even once mention Dysautonomia or chronic mast cell activation? If not, they're missing some of the most if not the most significant elements of the disease.
Hey @netflix I want a “you’ve watched this x number of times” stat. I want to know how many hundreds of times I’ve watched all of Seinfeld. 😁
Nathan Cope retweeted
“Looking at proteins circulating in the blood, the scientists found a set of molecules associated with inflammation that were present only in a subset of patients with #LongCovid & were not seen in those who recovered from their disease.”alleninstitute.org/news/many…