We are a voice for disabled people with energy limiting conditions and chronic pain. Join Us https://xitter.cf/t.co/nUFz5xUJ0W

United Kingdom
Joined April 2017
Chronic Illness Inclusion retweeted
ALT text for the entirety of the letter: Dear Mr Timms, Following the furore over Darren Jones and Rachel Reeve's comparison of the forthcoming disability benefit cuts to "pocket money," it is with astonishment that I see that you have referred to being unable to cut up food, needing assistance to wash or shower, and needing supervision to use the toilet as "low level functional" problems that can be dealt with by "small interventions" on April 7 in your reply to a question by Richard Burgon MP. At the same time, you defended the decision to change the eligibility for the Daily Living element of PIP to require 4 points in at least one category. The problem with the approach to disability benefits that you, your department, the chancellor, and the Prime Minister are taking is that you appear to be willfully using provocative language, misinformation, and downright lies in order to persuade the public at large that those of us with problems that are spread over a wide range of daily tasks are somehow not disabled enough to be worthy of a benefit. With this in mind I ask of you why you have only come to this conclusion since you have been in the party of government. After all, on June 8th, 2016, you voted against reductions in disability benefits when you were in opposition. Perhaps you would be good enough to tell us what has changed your mind? But let us return to those "low level" problems, those tiny inconveniences, of not being able to wash, cut food, or go to the toilet. I am sure I don't have to remind you that the dozen questions on the PIP form are there for the purposes of deciding whether we should get the benefit or not. Those questions, and the answers we give to them, are not the sum of the problems we have to deal with on a daily basis. If we need help with those things, it is highly likely that it is because of pain, discomfort, and restricted movement. That does not start and end with dressing and washing. It is there for every moment of every day, from the time we get up in the morning until the time go to bed at night. What is more, you appear to ignore the costs associated with that. Let us look at just one example: if we can only use a microwave to prepare meals, one would assume that means eating ready meals. Two ready meals a day is around £8-10. We know that cooking from scratch is considerably cheaper than that. So yes, using the microwave is a "small intervention," but it costs anyone who does that every day probably 50% more to eat than those who don't have to. That's an extra £28 a week for that "small intervention" alone. But you don't want PIP to cover that? Why? THAT is what PIP is there for - to pay for the things that cost us more because we are disabled. I might have some respect for your position if I thought that it was one that you actually believe in, but your previous voting record suggests that it isn't. I have psoriatic arthritis. I am in pain from the moment I get up in the morning until the moment I go to bed. I suffer from fatigue, as many do who have inflammatory conditions of this kind. Beyond that, I'm taking extra strong codeine three or four times a day that makes my brain foggy and makes me generally tired. And you want me - and others like me - to go to work. My biologic medication costs the NHS £650 every four weeks. Do you raelly think I would be given it by my consultant if my condition wasn't severe? And my consultant says I shouldn't work. But you say I should, and either way, you're going to take my PIP away from me because I'm just not disabled enough. Oh, and when you take that, you're also going to take away my LCWRA UC when the WCA is scrapped because it's somehow going to cause a "behavioural change" (according to Keir Starmer) and I'll be miraculously fit and able to go to work. What's more, you are not even allowing those of us with the mobility element of PIP to get that higher element of UC. Are you REALLY of the belief that those who can't walk more than one metre are not disabled enough to get the health element of UC? What you are suggesting is insane. It has no basis in reality. The disabled community knows this. The medical profession know this. And the worst of it all is that YOU know this. So does Liz Kendall, and Darren Jones, and Rachel Reeves, and Keir Starmer, and every member of your party who doesn't have the guts to stand up for those of us that need their help right now. What you're suggesting isn't just insane, it's insulting. It is patronising, pathetic, and puerile, and it is trivialising what we, the disabled community, have to go through every day of our lives, and through no fault of our own. How dare you tell us that what we have are merely "multiple low-level functioning needs" that need a "small intervention" just because your government has decided that we are collateral damage for your budgetary failures. Your position is no better than that of Boris Johnson who thought that COVID was "nature's way of dealing with old people." In the future, people will look back and view what you are doing as the Labour government's way of "dealing with the disabled." The results will be the same. People will die. I look forward to your reply, Yours faithfully S L Brown.
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Chronic Illness Inclusion retweeted
🚨DR UK's Statement on planned benefits cuts🚨 📢 We are shocked and appalled by the Government’s planned cuts to disability benefits. These changes will push millions into deeper poverty. We refuse to stay silent - read our full statement below.
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Chronic Illness Inclusion retweeted
We are celebrating the women in our community for Women’s History Month! This week, we are focusing on a woman we admire and how they are powerful. We have some lovely shares for you in writing and in videos! meaction.net/2025/03/05/meac… #WomensHistoryMonth
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Many people with #LongCovid are told " you look well" or on phone " you sound well" As @chronicinclude revealed with #EnergyLimitingConditions there is #Disregard & #Disbelief happens in healthcare, workplaces, education settings, #Benefits #LongCovidAwarenessDay2025
🚨 Mythbusting #LongCovid with Dr Amir Khan🚨 Long Covid is real. It’s serious. And it’s affecting millions. On #LongCovidAwarenessDay, @DrAmirKhanGP joins us to bust harmful myths. Watch, learn, and share—because the more we talk about Long Covid, the harder it is to ignore.
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Chronic Illness Inclusion retweeted
In 2018 we conducted a survey about Accessibility and You. This year, we're going even bigger! Video Description: A purple background with a white search box, text appears as though typed reading "How can I change the future of accessibility?" 1/2
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Stats #PIP : gbnews.com/money/pip-long-co… Seem low to me??? 12,841 claims =infectious disease as of October 2023 10,975 people awarded PIP for viral illness includes 5,808 claimants for #COVID19 October 2022 4,712 PIP recipients = #LongCovid #DWP captured LongCovid March 2021
Replying to @Dan_Wyke
We need #DWP figures for all claims #ESA #UniversalCredit #PIP for #LongCovid #MECFS but query if primary diagnosis always recorded ? Think we need to dig deep this yr in data available and new survey if we have the spoons via @long_covid and in collaboration with others …
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With implications for #LongCovid care, @zalaly states: “Resist the urge to simplify it, it can be many different things. If you’ve seen 1 Long Covid patient, you’ve seen 1 Long Covid patient. That’s how heterogeneous it is.” #TreatLongCovid @long_covid
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Chronic Illness Inclusion retweeted
Launched today, a new report by @livunigeog, @LiverpoolHopeUK & @chronicinclude reveals the discrimination faced by people with Energy Limiting Conditions and makes a series of recommendations to address the issue and improve care. news.liverpool.ac.uk/2023/09…
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Chronic Illness Inclusion retweeted
Now it's officially launched, we can share the animation from our @BritishAcademy_ project on energy limiting conditions. Huge thanks to @stacybias and @4foot11illo for the brilliant art work. Please do share: youtube.com/watch?v=AtdpgiNs… #NEISvoid #ChronicIllness @chronicinclude
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Chronic Illness Inclusion retweeted
🚨NEWS🚨Disability benefit assessment 'reform' will push more people with illnesses into work. Lowering the already dangerously low 'fit to work' threshold will see Disabled people hit by benefit sanctions if we are made to work when we're unable to inews.co.uk/news/politics/di…
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Interim report below 👇 on my reading list … Our work as @long_covid employment advocates was submitted to this call @somceo @UKVRA @chronicinclude @octoberpoppy @ScribblerPen @RCOT_Gen
Employment growth is set to halve in next decade as labour & skills shortages bite. New analysis from the Commission on the Future of Employment Support shows major reforms are needed to avoid weaker jobs growth contributing to higher inflation & falling living standards. 1/4
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Chronic Illness Inclusion retweeted
Replying to @useless_priest
There was ( ongoing) work the @chronicinclude amongst others to look at the social model of disability & how it can better include chronically sick people, and be fit for purpose in today's world. Identifying as disabled is a very personal thing, regardless of impairment
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1/ This U.K. consultation see link 2/ has considerable importance to #DisabledPeople, adults and children @long_covid @LongCovidKids @chronicinclude Pursglove publishes ‘action plan’ of working groups, reviews and awareness-raising disabilitynewsservice.com/pu… via @johnpringdns
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Replying to @WorkFoundation
"Recent Work Foundation research shows that 1.3 million disabled workers are stuck in insecure employment as they sacrifice predictable income as well as key employment rights and protections in order to be able to manage their health condition. (3/6)
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Chronic Illness Inclusion retweeted
Unions have called for government action to address the “absolutely criminal” pay gap between disabled and non-disabled employees. #TUCDisabledWorkers buff.ly/3XOzfB0
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I really think the work of @chronicinclude could be a unifying force for #MECFS, #longcovid and all ppl with #chronicillness & #disability
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Chronic Illness Inclusion retweeted
🚨Breaking News🚨 The Commission on COVID-19, Ableism and Racism has published a report today showing systemic racism worsened outcomes for Disabled Black, Asian and minority ethnic people, who were the worst impacted by the government's disastrous pandemic response.
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Pleased to have the opportunity to present👇 with Alice Arkwright on the @long_covid and @The_TUC report on Workers’ experiences of #LongCovid I’ll focus on: the personal financial impact of #LongCovid + experiences of #Benefit claims #DWP #PIP @chronicinclude @TUCEquality
Don't forget to register for the #LongCovid Webinar: Long Covid: What needs to happen next? 5 & 6 July (1000-1300 BST). Register now at - nihr.doclift.com/auth/regist… Even if you cannot attend on the day, registration will give you access to the recordings. Please share.
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