Trustee of @HGSupportUK and @long_covid, HG survivor, Patient Involvement in Research, Hyperemesis, pregnancy, research, advocacy for #LongCovid

Birmingham, England
Joined March 2016
I asked pwLC in the Fb group run by @long_covid to describe #LongCovid in single words There was an outpouring of the most heartbreaking cries of pain and distress. If you're minimising Long Covid, this is what you're trying to ignore, life-changing, scary, exhausting suffering
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Margaret O'Hara retweeted
1/3 ❌PIP cuts will be devastating for people with #LongCovid and #ME Our new briefing shows these reforms will push people further from work, deepen poverty & worsen health. We’re calling on MPs to oppose the cuts-help us flood their inboxes. Link to briefing & how to act⬇️
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At last, the @rcgp is doing some education about Hyperemesis Gravidarum. I look forward to never again hearing about a woman forced to end her wanted pregnancy because her GP refuses to prescribe antiemetics due to misguided fears and ignorance of the risks of untreated HG
🚨 Launching today! The @RCGP has released its first-ever screencast on Hyperemesis Gravidarum – giving GPs essential guidance on diagnosis, treatment, PUQE scoring & antiemetic safety. elearning.rcgp.org.uk/pregna… This is real #HGProgress #HyperemesisGravidarum #GPEducation
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Margaret O'Hara retweeted
We are pleased to announce appointment of Nigel Rothband as Chair of Trustees of Long Covid Support. Nigel brings with him a wealth of expertise along with personal experience of the devastating impact of #LongCovid. Welcome Nigel! Read more on our website - link below⬇️
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This is the first map of human brain mitochondria. 🧵1/11
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Margaret O'Hara retweeted
📣 1/2. Clinic Watch UK!! Are you UK based & have you recently been notified of changes to your local #LongCovid Clinic? If so, we want to hear about it! 🧑‍💻 Head to our clinics webpage & complete a simple survey - link below ⬇️ #LongCovidClinics
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Margaret O'Hara retweeted
Huge thanks to our Founding Trustee @Know_HG for presenting at the @Clinicalpcs conference on our #LongCovid clinics report produced with @LongCovidKids. Vital to ensure the many who need effective Long Covid services are heard!! Link to our report below⬇️ #ClosingClinics
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Margaret O'Hara retweeted
📺 1/2 Thanks to @DrDavidGK & BBC Midlands Today for covering our #LongCovid clinics report (written with @LongCovidKids) & our Trustee @Know_HG for speaking: “These people could work - but they need medical help, they don’t need a life coach” Report link ⬇️ #ClosingClinics
Segment on BBC Midlands Today covering the new report from Long Covid Support (@long_covid) Clip 1: The NHS has closed over half of its services for #LongCOVID. The BBC found the DoH and NHS England have no idea how many clinics are still running.
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Margaret O'Hara retweeted
French researchers analyzed blood samples from 100 Long COVID patients, 60 recovered COVID cases, and 60 uninfected controls. They identified immune and metabolic biomarkers that diagnosed Long COVID with 99% accuracy. croiconference.org/abstract/…
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CHESHIRE & MERSEYSIDE If you live in this area and have #LongCovid, there is a questionnaire on their website regarding services. Please complete if you can. Deadline is Sunday 16th. cheshireandmerseyside.nhs.uk…
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Margaret O'Hara retweeted
🚨.@AshleyDalton_MP tells @JoPlattLeigh that their stocktake of NHS #LongCovid services is complete but... “THERE ARE NO PLANS TO PUBLISH FINDINGS”!!! Perhaps Ashley would like to look at our own stocktake - Link below⬇️ ⭐️And our full #LongCovidClinics report is out soon!⭐️
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This is what I’ll be doing this weekend. #LongCovidAwarenessDay
📣 1/3. Final reminder!! Join us for the Long Covid Support Community Strategy Launch! 🗓️ Saturday 15th March 2025, 2-4pm GMT 📍 Lyric Theatre, Hammersmith AND 💻 Online Further details and link below to register ⬇️ #LongCovid #LongCovidAwarenessDay
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Margaret O'Hara retweeted
If Trump was President in 1940
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Earlier this week, I attended the All-Party Parliamentary Group on Long Covid, where Long Covid Support presented a report; among the numerous recommendations, it called on the government to provide additional funding to research the effects of Long Covid,
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Part Three: Mild
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Margaret O'Hara retweeted
2/ Above Trend Increase in Disability Since 2019, the number of disabled individuals has surged beyond the expected trend by nearly 2 million. This isn't just a statistical anomaly—it's a huge indicator of a deeper, underlying health crisis.
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Margaret O'Hara retweeted
⬇️ Don’t forget 5-year #LongCovidAwareness pins now available! A collaboration between Long Covid Support & @LongCovidKids, the pins spotlight the 5 years of fighting for recognition, appropriate healthcare and research, and supporting each other. Link below! ⬇️ #LongCovid
📣New #LongCovidAwareness Pins - Available Now! 5 years fighting for recognition, support & care. 5 years of resilience, advocacy & standing together. In collaboration with @LongCovidKids: 5️⃣ Limited Edition 5-Year Commemorative Pin 🎗️#LongCovid Awareness Ribbon Pin Link ⬇️
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