We're dedicated to uniting for a #lifeunlimited for those living with #cysticfibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays.
United Kingdom
Joined February 2009
- Tweets32.9K
- Following4.2K
- Followers25.9K
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Cystic Fibrosis Trust retweeted
A charity is urging the government to take action to ensure clean air policies are high up on the agenda. UCB News reporter Lucy Baxter spoke to Kieran Earlam, from @cftrust about how poor air quality can impact those living with respiratory conditions 👇
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Cystic Fibrosis Trust retweeted
It’s #CFWeek with @cftrust. 1 in 25 carry the CF gene & 11,000+ people in the UK live with cystic fibrosis. #DCYPHR is advancing research, but we need you.
Join with your child (0–15) via the link in our bio & give a quick spit sample: bit.ly/463GCdX #CysticFibrosis
ALT Over 11,000 people in the UK live with Cystic Fibrosis, highlighted during CF Week from June 8th to 14th.
ALT Cystic fibrosis affects both adults and children, impacting lungs and digestion as a lifelong, life-limiting condition.
ALT NIHR and NHS invite adults and children with cystic fibrosis to join CF BioResource for research via hospitals or D-CYPHR online.
ALT Invitation to join D-CYPHR study for children aged 0-15, emphasizing all health conditions welcome and contribution importance.
Cystic Fibrosis Trust retweeted
🔴 LIVE NOW kicking off #CFweek on stream! Huge thanks to @cftrust for sending me some materials! 💛
youtube.com/live/LftnP0Ky9I0…
Cystic Fibrosis Trust retweeted
*YELLOW* Pokémon activity ideas for the FIRST EVER Pokémon Cystic Fibrosis Awareness Week, 8-21 June! 🤩
Pokémon Champions, Shiny hunting, playthroughs, nuzlockes, Pokopia - whatever you do, do it in yellow! 💛
And share it with #CFweek 🔁
@cftrust @CannedWolfMeat
🚨 ANNOUNCING THE FIRST EVER POKÉMON CYSTIC FIBROSIS AWARENESS WEEK! 🚨
8-21 June • YELLOW Pokémon • Hosts: me & @CannedWolfMeat
Whether you’re creating content, streaming or just taking part for fun, it would mean the world to make noise about CF 💛
🔁 Please RT!
#CFweek
Cystic Fibrosis Trust retweeted
Patient voices have been involved at every stage of establishing a UK-wide network of research hubs improving how lung infections are managed. Read more about how we work with patients: lifearc.org/work-with-us/pat…
@cftrust
Cystic Fibrosis Trust retweeted
We are proud to support and attend the @cftrust's UK Cystic Fibrosis Conference, taking place on October 1-2, 2025.
Conference information can be accessed here: cysticfibrosis.org.uk/about-…
#RareDiseases #CysticFibrosis #CF #CFTR #mRNA #mRNATherapies #mRNATherapeutics #Arcturus
Cystic Fibrosis Trust retweeted
👟 Team Pryor are on the move!
➡️ 5k or 10k for @cftrust
➡️ 1 million steps for @DiabetesUK
Every step helps change lives 💜💙
Support their challenges & read more 👉 pryormarking.com/stepping-up…
#TeamPryor #CharityChallenge #LifeUnlimited #DiabetesUK #CysticFibrosisTrust
Cystic Fibrosis Trust retweeted
BSRA & @cftrust form partnership to help people with Cystic Fibrosis to live longer, healthier lives.
Read more - bsra.org.uk/cystic-fibrosis-…
Cystic Fibrosis Trust retweeted
🫁 It's #CFWeek - this @cftrust campaign raises awareness of the daily realities of living with #cysticfibrosis (CF)
👩🏽⚕️We examine how #biofilms present a major problem for those living with CF and highlight new treatments and tools being developed
🔎tinyurl.com/53e2n938
Cystic Fibrosis Trust retweeted
I’m thrilled to win 1st place on "Coventry's Got Talent" last night. A truly humbling experience, made even more meaningful by supporting two incredible inspirational charities—@cftrust & @MindCharity.
Please consider supporting their amazing work
#talentshow #charity #magic
Cystic Fibrosis Trust retweeted
🗣️ "For a lot of people, #Christmas starts when I lay the lights... it's the end of an era."
For over a decade, Mr Christmas has been spreading this joy through his annual #Luton Christmas Lights display.
This year, he's switching on his 750,000 lights for the final time. He's raising funds for the @cftrust after his niece, Siobhan, was diagnosed with the condition.
Find out more 👇
just.ly/4iIaZuL
Cystic Fibrosis Trust retweeted
Our #research #ChristmasCountdown continues!
SCTU is part of a multi-million-pound "Innovation Hub", led by @OfficialUoM, which aims to improve treatments for people with the lung condition #CysticFibrosis.
Read more - bit.ly/3Y8FNMK
@lifearc1 @cftrust #AdventCalendar
Cystic Fibrosis Trust retweeted
What #CharityImpact example lies behind door number 14 of our AMRC advent calendar?
To find out more about how charities like @cftrust invest in research infrastructure, check out our report: bit.ly/46HH2Fz
Cystic Fibrosis Trust retweeted
🌟 @cftrust Cystic Fibrosis Trust is now PIF TICK re-certified
This means their health information continues to be:
- Evidence-based
- Up-to-date
- Easy to use and understand
Get PIF TICK certified: pifonline.org.uk/pif-tick/ho…
#HealthInformation #PIFTick
Cystic Fibrosis Trust retweeted
This is always a lovely event. It will also be livestreamed for those with CF to enjoy safely from their own home. Or for anyone else who wants to see it and fancies making a donation of whatever you can. youtube.com/@stlukesandchris…
Join us at St Luke's Church on 18 December for Carols by Candlelight, in memory of Alice Martineau. 🕯️
The wonderful David Haig will be joining our ambassador, Jenny Agutter, to once again give a reading at the service. Find out more on our website!
🎄 ow.ly/fw3750Umx8c
Cystic Fibrosis Trust retweeted
Congratulations to Professor @AlanRSmyth who has been awarded ‘Outstanding Clinical Researcher’ at the Cystic Fibrosis Trust @cftrust 60th Anniversary Awards.
Professor Smyth's research focuses on the safety and efficacy of #CysticFibrosis treatments, to allow clinicians to make the best treatment decisions in partnership with their patients.
He is also a member of @CochraneCollab, which is an enthusiastic team of people who are interested in producing high quality systematic reviews of interventions relating to the care of people with cystic fibrosis, and to their families.
Incredible work, Professor Smyth!
Read more ➡️ ow.ly/cNkj50UltoM
#LoveQUB #LoveQUBResearch @QUB_SMDBS @MHLSQUB
ALT Image shows Professor Alan Smyth holding his award from the Cystic Fibrosis Trust. He is pictured standing in front of the MBC building.
Cystic Fibrosis Trust retweeted
Join @cftrust on Mon 2 Dec (4:30-6pm) for online Festive Arts and Crafts! Come along in your cheesiest festive jumper. For children with #cysticfibrosis and their siblings aged 6-10.
Please email [email protected] to sign up.
Cystic Fibrosis Trust retweeted
Just a little reminder about the pensions online event on this Thursday at 12:30 see the link below!
Changes in treatments mean that more adults with CF are planning for their financial future and have questions about retirement and pensions.
Join us for a session with financial expert Lisa as we explore the options available for the CF community. ✨
➡️ ow.ly/avGQ50TRIXF
