I’m so proud to announce that my book is now available on the American biggest bookseller website Barnes & Nobles. I hope it will help to raise awareness and to stop stigma about epilepsy @IntEpilepsyDay @IBESocialMedia @EpilepsyFdn @IlaeWeb @EEdmonton @epilepsy_fdn @CureEpilepsy – at Fameck, France

I did a #booksigning at a #bookfair to raise awareness about #epilepsy and the challenges we face as #caregivers 📚Being an #author is not only about sharing my story. It’s also inspiring and having a deep impact on people’s lives with my words!#EpilepsyVoices #epilepsyadvocate

My daughter has been transferred to another #hospital #intensivecareunit 🚨Since she’s vomiting up her #medication , #Urbanyl has been replaced by intravenous #Rivotril 💉 #CTscan shows #colon perforation and acute #pancreatitis😢My heart is broken💔#epilepsy #seizure #dravet 😭

Blood test results: liver and pancreas are affected 😔According to the CT scan results, my daughter has acute pancreatitis and a suspected perforated colon. Surgery is being considered. She had #seizures too! I’m heartbroken 💔😭 #epilepsy #dravet #neurology #disability #autism

While my mother is intubated in the ICU, I’m in another hospital with my daughter in the pediatric emergency room. I am so tired of this life 😢💔#cancer #epilepsy #autism #disability #ER #brain #neurology #dravetsyndrome #genemutation #genetics #weneedacure #hope #caregivers 🙏

#Healing is recovering from a hardship that is over. But how can you heal when this hardship never stops? When you live with a child suffering from a severe disease, you can’t heal. You become #resilient !Resiliency is the ability to thrive when life is still difficult #epilepsy

So honored to be invited by @IBESocialMedia for a zoom meeting aimed at shaping the next steps of the Epilepsy Dialogue Project to create tools to help people with #Epilepsy and #Caregivers to define clear priorities and prepared questions during a #medicalconsult of #neurology

#Newprofilepic #picoftheday #photography #blackandwhite #outfitdesign #ootd

I’m beyond proud to inform you about my #newbookrelease 📚I hope it will help highlight the need for more social change regarding the stigmatization about #epilepsy .I didn’t choose to be an #author but I choose to fight for my daughter✊#dravet #scn1a #genemutation #weneedacure

#Purpleday is over but #epilepsy does NOT disappear after 26th of March!Let’s continue raising awareness EVERYDAY💜 @PurpleDay @PurpleDayEvryDa #EpilepsyVoices #purpledayambassador #epilepsyismorethanseizures #YouAreNotAlone #braindisease #neurology #chronicillness #stopstigma 💟

Fear is contagious, but epilepsy isn’t! Today I visited 2 middle school classes to educate children about #epilepsyawareness and #firstaidrescue 🆘Together we can make a better place the 50 mln people living with #epilepsy worldwide! @PurpleDay #purpledayambassador #Purplepower

🪻In the frame of #Purpleday I visited 4 middle school classes to raise awareness about #epilepsy and to teach #firstaidrescue 🆘 I also educated them to #invisibledisability Epilepsy is a condition not a definition! #marchepilepsyawareness #purpledayambassador #EpilepsyVoices 💟

My daughter is rare like #Dravetsyndrome 72% of #rarediseases are genetic whilst others are result of infections,allergies, cancers and environmental causes.Let’s support the 300 mln people living with a RD worldwide🌍 @rarediseaseday @AllianceMR @RareDiseases #lightupforrare 💚