A global, secure, online, de-identified, Personal Health Identifier-free registry to record all COVID-19+ #atopicdermatitis patients on immunomodulating therapy
Joined April 2020
- Tweets45
- Following83
- Followers103
- Likes67
SECURE-AD retweeted
Does receiving a #COVID19 vaccine affect people with #eczema? @ad_secure is asking all patients with #eczema to complete the patient #survey. They investigate how the pandemic, including COVID vaccines, affects those with #eczema. See secure-derm.com/. Thanks!
SECURE-AD retweeted
Does receiving a #COVID19 vaccine affect people with eczema? Does it cause eczema to flare? We are asking all patients with #eczema to complete the SECURE-AD patient #survey to tell us how the pandemic, including COVID vaccines, affects those with eczema secure-derm.com/secure-pad
SECURE-AD retweeted
The @ad_secure team is asking everyone with atopic #eczema to complete their survey, which will provide insights into how the pandemic affected the eczema community & how Covid-19 vaccinations may affect people with eczema. 💉
More info here👉secure-derm.com/secure-pad/. Thank you!
SECURE-AD retweeted
Great work by our @PsoProtect friends. Real-world #patientregistry data is always vital, but particularly during #COVID19. Please support
psoprotect.org
@ad_secure @SecureAa secure-derm.com
aad.org/member/practice/coro…
hscovid.ucsf.edu/global-hidr…
Biologics use is associated with lower risk of COVID-19 hospitalizations, according to a new study published in @jacionline by the team behind the @PsoProtect patient registry for psoriasis and COVID-19. Read the article here: ow.ly/1HzC50C0a5J
SECURE-AD retweeted
How does #COVID19 affect people with #eczema? Help
@ad_secure to find that out. Do you have #eczema? Had #COVID19? Please fill in the patient survey at secure-derm.com/secure-pad/. Our patient representative Tim explains the project in a short video.
SECURE-AD retweeted
We've created global physician & patient organisation endorsed #patientregistries to learn from outcomes of #COVID19 patients with #atopicdermatitis & #alopecia
Anonymous, quickly entered data with huge potential
secure-derm.com
@med_indonews @susmitchellSBP @IMT_latest
SECURE-AD retweeted
The experience of #atopicdermatitis #eczema & #alopecia @SecureAa (any kind of hairloss) patients who've had #COVID19 can teach so much
secure-derm.com has physician-entered registries for both & a patient-entered registry for @ad_secure
@IrishPharmacy @irishpharmacist
We've created global physician & patient organisation endorsed #patientregistries to learn from outcomes of #COVID19 patients with #atopicdermatitis & #alopecia
Anonymous, quickly entered data with huge potential
secure-derm.com
@med_indonews @susmitchellSBP @IMT_latest
SECURE-AD retweeted
As restrictions ease there’s still so much to know about #COVID19
If you’ve had COVID19 & have #alopecia (including male/female pattern) #eczema or #psoriasis, please let your doctors know @SecureAa @ad_secure @PsoProtect
can harness your experience anonymously to teach us more
SECURE-AD retweeted
Does #alopecia #eczema & #psoriasis & their treatment affect COVID outcomes?
@SecureAa @ad_secure @PsoProtect can record outcomes of patients with these conditions who develop #COVID19 anonymously.
Please encourage registration & improve knowledge & treatment
@HealthySkin4All
SECURE-AD retweeted
#Dermatology registries for #COVID19 cases
#psoriasis - @PsoProtect
#atopicdermatitis - @ad_secure
#alopeciaareata - @SecureAa
#hidradenitis - @hscovid
#dermatology manifestations of #COVID19 - @AADskin aad.org/member/practice/mana…
#dermtwitter #SARSCov2
SECURE-AD retweeted
The SECURE-AD registry, in collaboration with ISAD, IEC, ETFAD, SPIN, EDEN, @EADV and @ILDSDerm, collects de-identified data of atopic dermatitis (AD) patients with a confirmed #COVID19 infection episode.
Submit cases to the @ad_secure registry here: covidderm.org
SECURE-AD retweeted
Our global atopic dermatitis #COVID19 registry @ad_secure has recently received national ethical approval in Ireland.
Grateful if affected eczema patients could encourage physicians to sign up covidderm.org & register their anonymous data
@ISFcharity @irvinederm @IPPOSI
SECURE-AD retweeted
The @SecureAa #patientregistry’s sister registry @ad_secure is now available with Spanish, in addition to English & Chinese.
Be grateful if you could spread the word @Desaze @SergioVanoG @DrRamonGrimalt
SECURE-AD retweeted
So important to share & support these #patientregistries. The value of data collected will be immense in the fight against #COVID19
covidibd.org
@ad_secure @SecureAa covidderm.org
@PsoProtect psoprotect.org
@SecureCirrhosis covidcirrhosis.web.unc.edu
SECURE-IBD data updated today. 275 cases to date. Thanks to everyone for their support! If get a moment of break from this crisis please upload cases this weekend. #WeWillGetThroughThis covidibd.org/