A global, secure, online, de-identified Personal Health Identifier-free registry to record all COVID-19+ cases in alopecia patients on immunomodulating therapy
Joined April 2020
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SECURE-Alopecia retweeted
Thank you to everyone who has contributed & all the groups who’ve supported awareness of the registries including @ad_secure @SecureAa
@debraireland @HealthySkin4All @ILDSDerm @SecureAa @AlopeciaUK @NAAF_org @eadv @eczemasupport @EczemaOutreach @nationaleczema @IADPO @BHNSociety
We’re still recruiting patients!
Delighted for others to participate, join the group & increase what we know!
securealopecia.covidderm.org
Check out some of the outcomes seen with #COVID19 from the @SecureAa presented by @NekiMeah. #BAD2021 #BAD101
Thank you for your great work on this. @SinclairDerm @DmitriWall @irvinederm
Thank you!
Check out some of the outcomes seen with #COVID19 from the @SecureAa presented by @NekiMeah. #BAD2021 #BAD101
Thank you for your great work on this. @SinclairDerm @DmitriWall @irvinederm
SECURE-Alopecia retweeted
Learning from Disease Registries During a Pandemic: Moving Towards an International Federation of Patient Registries.
So thrilled to have had the opportunity to write about #patientregistries during #COVID19 with such a wonderful group of co-authors.
cidjournal.com/article/S0738…
There's still time to register cases before we run the analysis - please share and encourage colleagues to do so!
#COVID19 #COVIDhair #Alopecia #hairloss #shedding
We're about to analyse our data!
So, as we unfortunately see new waves of #COVID19 emerge, registering patients secure-derm.com/secure-alope… who've had #alopecia/#hairloss before/after COVID diagnosis remains essential!
@AlopeciaUK @NAAF_org @BHNSociety @ISHRS @ILDSDerm
SECURE-Alopecia retweeted
Thanks to +500 people with #AtopicDermatitis (#eczema) who completed the SECURE-AD Patient Survey. The graph shows what happened to almost 200 of those who actually had #COVID19. If you have #AtopicDermatitis and had #COVID19, please complete our survey on secure-derm.com/secure-pad/
SECURE-Alopecia retweeted
Very grateful for the physicians reporting to the #AtopicDermatitis and #COVID19 registry. Below our latest results of 241 cases. Visit secure-derm.com to see more. Do you have #AtopicDermatitis and had #COVID19? Ask your doctor to report your case secure-derm.com/secure-ad-ph…
We're about to analyse our data!
So, as we unfortunately see new waves of #COVID19 emerge, registering patients secure-derm.com/secure-alope… who've had #alopecia/#hairloss before/after COVID diagnosis remains essential!
@AlopeciaUK @NAAF_org @BHNSociety @ISHRS @ILDSDerm
SECURE-Alopecia retweeted
Tagging my #covid registry collaborators so they can help spread the word that the Covid Dermatology Registry now captures dermatologic reactions/side effects of the #CovidVaccine ! @SuzanneOlbricht @PsoProtect @rheum_covid @ad_secure @SecureAa @MishaRosenbach @juleslipoff
SECURE-Alopecia retweeted
Pre-proof of our article is now available #openaccess in #ClinicsinDermatology
@NekiMeah @SinclairDerm @irvinederm @SecureAa
Shedding light on therapeutics in alopecia and their relevance to #COVID19
cidjournal.com/article/S0738…
Thanks Alan!
Reassuring data so far from the excellent SECURE IBD initiative re systemic #JAKi use in IBD in the COVID era
@ad_secure @SecureAa
Delighted to say that we have now recruited 200 patients. Please keep spreading the word re all #COVID registries such as @ad_secure @PsoProtect @AADskin @rheum_covid as we work together to shed light on the impact of COVID on our patients.
175 patients registered-thank you!
Please continue to spread the word & help understand #Covid19 & #alopecia #hairloss secure-derm.com
@AlopeciaUK @ISHRS @HealthySkin4All @ILDSDerm @AADskin @NAAF_org
@DmitriWall @SinclairDerm @irvinederm @Lidia_Rudnicka @TostiAntonella
2 weeks ago SECURE-Alopecia (sister 2 @ad_secure) recorded >100 #COVID19 patients with/developed #alopecia/#hairloss but now 151!
Thank you & please continue to spread the word!
securealopecia.covidderm.org……
@ISHRS @AlopeciaUK @NAAF_org @ahrsorg @SinclairDerm @NekiMeah @irvinederm
2 weeks ago SECURE-Alopecia (sister 2 @ad_secure) recorded >100 #COVID19 patients with/developed #alopecia/#hairloss but now 151!
Thank you & please continue to spread the word!
securealopecia.covidderm.org……
@ISHRS @AlopeciaUK @NAAF_org @ahrsorg @SinclairDerm @NekiMeah @irvinederm
SECURE-Alopecia (sister to @ad_secure) has recorded 111 #COVID19 cases in patients with/developed #alopecia
Please have your doctor anonymously record if you had #hairloss & COVID
securealopecia.covidderm.org…
@ISHRS @AlopeciaUK @NAAF_org @ahrsorg @SinclairDerm @NekiMeah @irvinederm
SECURE-Alopecia retweeted
Prof Phyllis Spuls, dermatologist/study lead SECURE-AD, draws your attention to her upcoming talk about the “Use of Biologics and Immunosuppressive Drugs during the COVID-19 Pandemic” at the @eadv congress. If you have eczema and had #COVID19 please visit secure-derm.com.
SECURE-Alopecia retweeted
Great work by our @PsoProtect friends. Real-world #patientregistry data is always vital, but particularly during #COVID19. Please support
psoprotect.org
@ad_secure @SecureAa secure-derm.com
aad.org/member/practice/coro…
hscovid.ucsf.edu/global-hidr…
Biologics use is associated with lower risk of COVID-19 hospitalizations, according to a new study published in @jacionline by the team behind the @PsoProtect patient registry for psoriasis and COVID-19. Read the article here: ow.ly/1HzC50C0a5J
SECURE-Alopecia retweeted
Very sorry to hear how #COVID19 has affected you. Hope you are improving
A global group of dermatologists @SecureAa are studying this. Those with COVID who had or develop hair loss can ask their doc to anonymously register their case secure-derm.com/secure-alope…
Grateful 4 awareness
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SECURE-Alopecia (sister to @ad_secure) has recorded 111 #COVID19 cases in patients with/developed #alopecia
Please have your doctor anonymously record if you had #hairloss & COVID
securealopecia.covidderm.org…
@ISHRS @AlopeciaUK @NAAF_org @ahrsorg @SinclairDerm @NekiMeah @irvinederm
#covid19 can result in hair shedding, often about 8 weeks post COVID.
We’d like to understand more about this, so if this, or any hairloss has affected you before or after COVID, please ask your physician to register your case..it’s simple & quick!
Secure-derm.com