Ash retweeted
able bodied people will never understand the constant rationing of energy to survive. Every bit of movement and energy is calculated and has consequences; insluding the types of food I eat, the meds I take, and even the emotions I feel--
Ash retweeted
Theres always a lot of bad news in the world. Please just enjoy 80 street dogs I feed having their big treat day today.
What a day they had. Unbelievable scenes 🥰🙏
Ash retweeted
I wish I had learnt about pacing earlier in my health journey.
I used to push through my pain & fatigue.
It was really hard for me to accept that resting did not mean I was weak or that I wasn’t trying hard enough. I felt like a failure, to be honest.
But now I really understand what pacing with EDS is and what it is not. I was able to implement strategies that I needed to find a sustainable rhythm to manage energy and avoid the boom and bust I used to experience regularly.
I'm absolutely heartbroken to hear Ozzy Osbourne died. I've sat for days not quite believing it, he will truly be missed 🖤
Ash retweeted
As a physician, I’m just not so sure our brains were made to stream this much grief and tragedy day in, day out, while not being able to do anything to stop the hurt/suffering.
Ash retweeted
Don’t beg. They knew you were breaking and still chose silence.
Don’t forget ,they watched you struggle and did nothing.
Ash retweeted
I absolutely HATE the idea of ‘well someone else has it worse’ like NO.
Your pain and trauma are completely valid despite what someone else went through..














